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#518263 - 02/16/18 07:12 AM Eye Pain, but not inflammatory uveitis
Sue22 Offline

Registered: 01/13/08
Posts: 21321
Loc: Upstate NY
Hello all,

Every so often I get this really bad eye pain.

Its not uveitis / iritis / inflammation; my ophthalmologist said he'd be able to see remnants of damage if I had that.

And I do get dry eye (from the inflammatory process), but that feels like grit in my eye, and isn't nearly so painful.

But every so often, I get this really bad eye pain. Probably not as bad as uveitis, but not having it, I have no comparison, only my experience.

I woke with my right eye very painful, and a migraine. I took an Aleve. I wore my theraspecs all day...both helped somewhat.I stayed off the computer all day which means a whole day of work that I couldn't do, but I had no choice. No tv either; in the evening we put it on and I closed my eyes and just listened. A shower helped some. Taking a walk outside helped some. Systane (preservative free) helped some.

Took Humira last night and after that and a good nights sleep, its almost better. Am on the computer, but still wearing my theraspecs.


1. Do you get this? Is there something between "dry eye" and uveitis...worse than the first, not as bad as the second? I've asked my doctors this and its an ongoing discussion.

2. What do you do about it? to treat it, the symptoms?

yesterday was a wasted day of pain, but too, I know I'm lucky that it was just one day and that it isn't uveitis.


Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

#518338 - 03/03/18 10:17 PM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
KickASaurs Offline

Registered: 11/11/09
Posts: 334
Loc: Sydney, NSW, Australia
Hi Sue,
Long time! sorry to hear that your eye pain is still bothering you. I have been doing single use sterile drops to keep eyes hydrated. Sometimes wear glasses that help eye muscles to relax

hope it gets better soon. Love.

#518363 - 03/06/18 07:06 PM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
Magician Offline

Registered: 09/21/09
Posts: 1244
Loc: Manitoba Canada
You know the first thing which came to my mind was could it be optic neuritis?
Then super dry eyes = thyroid difficulties. Any of these ring a bell or have been investigated and ruled in/out?
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+

Previously told Mechanical Back 'Issues'. Hate this term!
Read my story here:

#518402 - 03/11/18 06:49 PM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
Boroboy Offline

Registered: 10/25/03
Posts: 469
Loc: North East, U.K.
I've suffered from photophobia & eye pain for over 10 years now, due to an initial uveitis flare within my right eye. I've had the usual related treatments, also a cataract operation within the effected eye. Seen many specialists over the years. I still suffer from photophobia, wear wrap around sunglasses all of my waking time, indoors & out due to light sensitivity.
Now down to your original question, I too have eye pain, no active inflammation present. I also use Hyabak, additive free eye drops, similar to the type you are using. I use these often and on a daily/night time basis, which help.
I also believe Sjogrens plays a big part to my eye condition. I wasn't diagnosed with it until I was around 40, yet probably suffered from it from the age of around 18, prior to the onset of my A.S. I believe both conditions are linked. My dry eyes become worse in the summer, within an air-conditioned room. Reading often increases my eye pain. When my eye or eyes flare they tend to be worse for around 2-5 days. Seem dry, sore & gritty. I've also had my tear ducts plugged, which has helped to retain the little amount of natural tears I have left. Most of the time my eyes feel like a desert.

#518404 - 03/12/18 05:48 AM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
Frederick Offline

Registered: 03/28/06
Posts: 220
Sorry to hear about your eye problems Boroboy. I have been very lucky and have only ever had the one attack of iritis and that was many years ago. Glad to see you are still on the Forum Boroboy.

#518407 - 03/12/18 05:27 PM Re: Eye Pain, but not inflammatory uveitis [Re: Frederick]
Boroboy Offline

Registered: 10/25/03
Posts: 469
Loc: North East, U.K.
Thanks for your kind words, yes I pop in from time to time. I've had my eye condition now for over 10 years, just something I have to learn to live with. Add it to the A.S pain list lol.
It's difficult when sometimes we don't have a correct diagnosis or we really don't know the reasons why, especially when there's no obvious eye inflammation present.

Edited by Boroboy (03/12/18 05:27 PM)


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