banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
13,091 Registered Members
28 Forums
43,542 Topics
517,211 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
Skip24, Emacdona, CHANDRAMOHAN, AkshayN, nathanbauman1
13091 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Topic Options
#518263 - 02/16/18 07:12 AM Eye Pain, but not inflammatory uveitis
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21326
Loc: Upstate NY
Hello all,

Every so often I get this really bad eye pain.

Its not uveitis / iritis / inflammation; my ophthalmologist said he'd be able to see remnants of damage if I had that.

And I do get dry eye (from the inflammatory process), but that feels like grit in my eye, and isn't nearly so painful.

But every so often, I get this really bad eye pain. Probably not as bad as uveitis, but not having it, I have no comparison, only my experience.

I woke with my right eye very painful, and a migraine. I took an Aleve. I wore my theraspecs all day...both helped somewhat.I stayed off the computer all day which means a whole day of work that I couldn't do, but I had no choice. No tv either; in the evening we put it on and I closed my eyes and just listened. A shower helped some. Taking a walk outside helped some. Systane (preservative free) helped some.

Took Humira last night and after that and a good nights sleep, its almost better. Am on the computer, but still wearing my theraspecs.

Questions:

1. Do you get this? Is there something between "dry eye" and uveitis...worse than the first, not as bad as the second? I've asked my doctors this and its an ongoing discussion.

2. What do you do about it? to treat it, the symptoms?

yesterday was a wasted day of pain, but too, I know I'm lucky that it was just one day and that it isn't uveitis.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#518338 - 03/03/18 10:17 PM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
KickASaurs Offline
Fourth_Degree_AS_Kicker

Registered: 11/11/09
Posts: 334
Loc: Sydney, NSW, Australia
Hi Sue,
Long time! sorry to hear that your eye pain is still bothering you. I have been doing single use sterile drops to keep eyes hydrated. Sometimes wear glasses that help eye muscles to relax

hope it gets better soon. Love.

Top
#518363 - 03/06/18 07:06 PM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
Magician Offline
Copper_AS_Kicker

Registered: 09/21/09
Posts: 1247
Loc: Manitoba Canada
You know the first thing which came to my mind was could it be optic neuritis?
Then super dry eyes = thyroid difficulties. Any of these ring a bell or have been investigated and ruled in/out?
_________________________
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+

Previously told Mechanical Back 'Issues'. Hate this term!
Read my story here: http://www.ebrandon.ca/profile_blog.aspx?person_id=1051#1688

Top
#518402 - 03/11/18 06:49 PM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
Boroboy Offline
Warrior_AS_Kicker

Registered: 10/25/03
Posts: 469
Loc: North East, U.K.
Sue,
I've suffered from photophobia & eye pain for over 10 years now, due to an initial uveitis flare within my right eye. I've had the usual related treatments, also a cataract operation within the effected eye. Seen many specialists over the years. I still suffer from photophobia, wear wrap around sunglasses all of my waking time, indoors & out due to light sensitivity.
Now down to your original question, I too have eye pain, no active inflammation present. I also use Hyabak, additive free eye drops, similar to the type you are using. I use these often and on a daily/night time basis, which help.
I also believe Sjogrens plays a big part to my eye condition. I wasn't diagnosed with it until I was around 40, yet probably suffered from it from the age of around 18, prior to the onset of my A.S. I believe both conditions are linked. My dry eyes become worse in the summer, within an air-conditioned room. Reading often increases my eye pain. When my eye or eyes flare they tend to be worse for around 2-5 days. Seem dry, sore & gritty. I've also had my tear ducts plugged, which has helped to retain the little amount of natural tears I have left. Most of the time my eyes feel like a desert.

Top
#518404 - 03/12/18 05:48 AM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
Frederick Offline
Third_Degree_AS_Kicker

Registered: 03/28/06
Posts: 284
Sorry to hear about your eye problems Boroboy. I have been very lucky and have only ever had the one attack of iritis and that was many years ago. Glad to see you are still on the Forum Boroboy.

Top
#518407 - 03/12/18 05:27 PM Re: Eye Pain, but not inflammatory uveitis [Re: Frederick]
Boroboy Offline
Warrior_AS_Kicker

Registered: 10/25/03
Posts: 469
Loc: North East, U.K.
Fred,
Thanks for your kind words, yes I pop in from time to time. I've had my eye condition now for over 10 years, just something I have to learn to live with. Add it to the A.S pain list lol.
It's difficult when sometimes we don't have a correct diagnosis or we really don't know the reasons why, especially when there's no obvious eye inflammation present.


Edited by Boroboy (03/12/18 05:27 PM)

Top
#518557 - 04/10/18 10:32 PM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21326
Loc: Upstate NY
For the most part, using my systane drops whenever I start feeling any eye pain seems to be doing the trick. It had just been a while since I needed the drops.

I have a great eye doctor who checks my eyes yearly for evidence of past or present inflammation and for diabetes damage...both are not a problem thus far. But even with "just" dry eye, he takes my issues seriously and with both spondy and diabetes, he takes the potential for issues related to these seriously.

and I could go see him more often if I needed to...I have in the past.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#518593 - 04/22/18 12:11 AM Re: Eye Pain, but not inflammatory uveitis [Re: Sue22]
rumble Offline
Supreme_AS_Kicker

Registered: 01/31/09
Posts: 4491
Loc: NE Oklahoma
Never have had uveitis and have no other eye disorders, but a different type of dry eye--eye doc says it's blepharitis which she says irritates like dry eye but has different mechanism. Have to keep the eyelash bases clean so the little Meibomian glands are able to secrete oils that keep the tears from drying up too fast. No pain, per se, but the irritation can be off the charts in the mornings. Also, bright lights bother me, but cataracts aren't an issue yet, though they are present. Blepharitis is linked to auto-immune disease, too.

Hope you find your answers. (what are theraspecs?)
_________________________
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9

Top

Who's Online
0 registered (), 99 Guests and 2 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
How I cured my AS (continued)
by davidchen
09/06/18 02:46 AM
vagus nerve stimulation, using ear clips with tens
by j87x
09/04/18 02:30 PM
ME DIAGNOSTICARON HACE 1 MES NECESITO APOYO
by yovafranc
08/30/18 05:45 PM
probiotic ideas, sbi protect, and prescript assist
by kj243
08/29/18 05:25 PM
3rd Spinal Correction Surgery Within Last 14 Month
by AJ_FUSED
08/25/18 08:10 AM
Teeth/Dental Problems
by Amber_UK
08/23/18 03:49 AM
Running out of FMLA
by mutagen
08/22/18 06:58 PM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 39,520,723
hmmm 2,108,420
Has anyone had Pedicle subtraction Osteotomy ? 1,757,413
What to do about healthcare? Can it be fixed? 1,178,486
User names revisited 958,736
Medicinal Marijuana 883,719
A.S and beds, What do you find best? 872,628
OMG!!!! 824,640
No/Low Starch Diet Success Stories 628,179
THE STARCH CONTENT OF FOODS - THE LIST 459,635