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#518255 - 02/14/18 05:42 AM Fringe foods
Josh300788 Offline
New_Member

Registered: 04/06/17
Posts: 10
Hi guys

After my initial improvements within the first 6months of being on NSD i have failed to improve any further, so id like to ask if anyone thinks any of the following foods i eat regularly could be halting progress: Chia seeds, almonds, macadamias, coffee, all types of fruit, sesame seed snacks (with glucose syrup), cacao.

Any opinions appreciated.

Cheers

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#518256 - 02/14/18 12:21 PM Re: Fringe foods [Re: Josh300788]
annelore Offline
Member

Registered: 09/05/13
Posts: 32
Sometimes is not enough with NSD or LSD. I had to check with FODMAP diet created especially for IBS suffers

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#518259 - 02/16/18 06:57 AM Re: Fringe foods [Re: Josh300788]
Robin_H Offline
Third_Degree_AS_Kicker

Registered: 09/13/15
Posts: 282
Loc: Central Canada
Hello Josh:

Pretty much every iffy food you just listed can hold you back for many reasons.

I'm more strict than you and am suffering. My major obstacles are coffee, chocolate and nuts.

We should eliminate them for at least a month and see what happens. You should eliminate all nuts, seeds and fruit. Perhaps cacao and any added sugar is a risk.

Get it all out and then add one back for three days and eat it for at least two meals a day. If you get worse then you know it is out.

IMHO the only safe fluids are soups and water. Even be careful of herbs and spices used in foods.

BTW: I was 100% symptom free for a month or two in late 2015. I only ate steamed cucumbers, celery, red onion, garlic, bok choy, spinach, carrot, broccoli, asparagus, red cabbage, cauliflower, radish. I ate chicken and once a week red meat. That was my supper! Then I had the left-overs in the morning for lunch.

Then I took a salad to work made from the same above ingredients but with two hard boiled eggs.

However, it seemd that I could not hit 100% remission until I removed the carrots and brocolli.

These days it seems I must remove eggs too. Basically it is a low allergen diet plus no starches.

I hope that helps.

And as annelore mentions, you might need to eliminate FODMAPs since most AS victims have IBS. SIBO is likely a problem too https://www.siboinfo.com/handouts.html

Lastly, make sure you have no parasites or pathogens. Send some poop to a lab.

I hope that helps
_________________________
HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Scratched by a sick cat
2013.08:Reverse blockage in a SCUBA accident
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal

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#518287 - 02/24/18 09:42 AM Re: Fringe foods [Re: Robin_H]
Josh300788 Offline
New_Member

Registered: 04/06/17
Posts: 10
Thanks Robin, very helpful 😀

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