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#516925 - 04/18/17 06:07 PM COSENTYX?
arsimoun Offline
New_Member

Registered: 02/17/05
Posts: 23
Humor stopped working. Apparently I have formed antibodies. Sigh. Rheumie is recommending Cosentyx. Anyone have any experience with this drug? Thoughts?

As always, TIA.

Adam Rodman

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#516929 - 04/19/17 07:28 AM Re: COSENTYX? [Re: arsimoun]
Frederick Offline
First_Degree_AS_Kicker

Registered: 03/28/06
Posts: 163
Have you asked about another Anti-TNF such as Enbrel?

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#516941 - 04/20/17 09:19 AM Re: COSENTYX? [Re: Frederick]
arsimoun Offline
New_Member

Registered: 02/17/05
Posts: 23
I could try another anti-TNF, but doc is recommending Cosentyx.

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#517356 - 06/29/17 05:43 AM Re: COSENTYX? [Re: arsimoun]
snipe_Chief Offline
New_Member

Registered: 07/16/09
Posts: 20
Loc: Virginia, USA
I just started Cosentyx 3 weeks ago and it's working amazing so far! I can't use anti-TNF because apparently I'm one of the lucky ones that experiences congestive heart failure on them. Since Cosentyx is an IL-17a inhibitor, I'm not having those issues and I'm virtually pain free! I'm almost maxed out on methotrexate, allergic to sulfa so Cosentyx is a miracle drug for me so far. YMMV of course, but give it a shot!

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#517416 - 07/12/17 11:50 PM Re: COSENTYX? [Re: arsimoun]
rumble Offline
Supreme_AS_Kicker

Registered: 01/31/09
Posts: 4478
Loc: NE Oklahoma
I'm going to be starting it soon, so this is good to know. Yea for your success, Snipe Chief. <-- nice name. wink
_________________________
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cosentyx (6th biologic) starting soon.
Epidural Steroid Injections x7; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x8

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#517425 - 07/17/17 09:02 AM Re: COSENTYX? [Re: arsimoun]
MikeGinnyMD Offline
Active_Member

Registered: 01/24/09
Posts: 71
Loc: SF Bay Area, CA, USA
I don't know anyone who's taken it for AS yet, but my rheumy has three.

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#517434 - 07/19/17 08:17 AM Re: COSENTYX? [Re: arsimoun]
snipe_Chief Offline
New_Member

Registered: 07/16/09
Posts: 20
Loc: Virginia, USA
Thanks Rumble! Let us know how it works once you start it!

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#517580 - 09/03/17 11:45 AM Re: COSENTYX? [Re: arsimoun]
Wotan Offline
New_Member

Registered: 05/13/17
Posts: 9
I started Cosentyx (had two of the loading shots) and it is working quite well so far. I had some pain this week end but nothing too strong. I had a few heavy starched meal during a business trip, which probably had an effect.

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#517858 - 11/30/17 06:47 AM Re: COSENTYX? [Re: arsimoun]
Winter Offline
Black_Belt_AS_Kicker

Registered: 12/01/10
Posts: 437
I just started Cosentyx. I have gone through 4 TNF biologics but always get bad side effects from TNF biologics such as hives, worsening fibromyalgia/insomnia, nerve issues and tachycardia. The TNF biologics did help my spondylitis, if I was not allergic to it, but I always had bad side effects.

I had one loading dose shot of the Cosentyx so far and have noticed minimal improvement so I am optimistic. Had one morning with watery stool but other than that, no other issue.

Shari
_________________________
Meds -Prednisone 4 mg , Tylenol with codeine , ketoprofen, ketamine, and gabapentin compounded cream, Cosentyx

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