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#517706 - 10/08/17 08:10 PM Re: Tried Humira and Remicade and no relief...now what [Re: psr]
psr Offline
Apprentice_AS_Kicker

Registered: 08/21/13
Posts: 90
Thanks for all the replies, everyone. I have now been on Remicade (inflectra) for 1.5 years. My morning stiffness is quite a bit better, but other than that, I am struggling with plantar fasciatis, neuromas in my toes, stiff lower back (unable to bend forward), stiff neck and shoulders. Initially, I wonder if I should switch to cosentyx...

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#517753 - 11/03/17 07:13 AM Re: Tried Humira and Remicade and no relief...now what [Re: psr]
Robin_H Offline
Apprentice_AS_Kicker

Registered: 09/13/15
Posts: 92
Loc: Hubei, China
When NSAIDs and DMARDs really do not work for a patient might they have been misdiagnosed???
_________________________
HLA-B27 neg; Mis-diagnosed with fibromyalgia in mid-20s.
Vague AS symptoms in 20s and early 30s (no diagnosis).
During age 47 (2015) from NSAID use developed complete axial inflammation (started from from skull and progressed down to sacrum). Included psoriasis. Trigger in scull was reverse blockage in a SCUBA mishap in 2013. Straw that broke the camels back was over use of NSAIDs. NSD works well but not perfect. Strong involvement between symptoms and gut integrity.

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#517755 - 11/03/17 08:00 AM Re: Tried Humira and Remicade and no relief...now what [Re: psr]
Frederick Offline
First_Degree_AS_Kicker

Registered: 03/28/06
Posts: 161
It is a possibility the rheumatologist must consider.

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