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#516937 - 04/19/17 03:41 PM I think the remicade is no longer working
wallwe Offline
General_AS_Kicker

Registered: 07/14/02
Posts: 2618
Loc: nova scotia canada
I know that I have not been here is a long while but there was a lot going on and none of it good. Mainly with my family which of course affected me. I don't know if it is because of this or not but the remicade seems to have stopped working. I get my infusion every four weeks and just received the latest 1 week ago. I was feeling bad before the infusion but I swear that I am feeling worse this week. Is it possible that after 5 years it has stopped working? If it has is there something else that I can go on?
_________________________
Take care Valerie

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#516939 - 04/20/17 05:25 AM Re: I think the remicade is no longer working [Re: wallwe]
Frederick Offline
Apprentice_AS_Kicker

Registered: 03/28/06
Posts: 86
There are at least a couple more Anti-TNFs that you could try. There is Enbrel (etanercept) and Humira (adalimumab). They are both administered by injection. The Enbrel as one injection a week and the Humira one every two weeks.

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#516943 - 04/20/17 01:10 PM Re: I think the remicade is no longer working [Re: wallwe]
wallwe Offline
General_AS_Kicker

Registered: 07/14/02
Posts: 2618
Loc: nova scotia canada
Thanks for the info.
_________________________
Take care Valerie

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#516962 - 04/21/17 11:35 PM Re: I think the remicade is no longer working [Re: wallwe]
Lon Offline
Very_Addicted_to_AS_Kickin

Registered: 09/11/01
Posts: 8321
Loc: Gillette, Wyoming
Well my dear friend from years gone by. I am concerned and if I can help you by listening, I would love to help you!

My remicade has not kicked in yet.

Br'er
Lon

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#516964 - 04/22/17 07:16 AM Re: I think the remicade is no longer working [Re: wallwe]
stevec Offline
Addicted_to_AS_Kickin

Registered: 09/05/01
Posts: 6220
Loc: Millstone NJ
Sorry to hear the Remicade may not be working. Hope that you find an alternate med that does
_________________________


L-R: Julianna, Jamie, Diane and Tonimarie

stevec-they also serve who stand and wait

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#516966 - 04/22/17 08:11 AM Re: I think the remicade is no longer working [Re: wallwe]
drone3 Offline
New_Member

Registered: 03/12/16
Posts: 22
Remicade stopped working for me after 6 months but them i discovered that certain foods were nullifying its effects. I had to go full NSD and not eat any form of sugar or alcohol. In combination with food management i started to take drops of food grade Hydrogen Peroxide 35% dilluted. This combination has seen the best results and the Remicade started working again. I'm pretty sure it all relates back to a massive bacterial dysbiosis but yeh i have no data only experience.
_________________________
1992-'93 DX Colitis -> Total Colectomy / J-Pouch.
2015 DX Sacroilitis (USpA, AS?)
Taking - Infliximab, H2O2, Transdermal Magnesium
Diet - No Sugar/Dairy/Starch/Alcohol

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#516974 - 04/22/17 07:46 PM Re: I think the remicade is no longer working [Re: wallwe]
Dotyisle Offline


Registered: 03/07/02
Posts: 9381
Loc: Rosario, Argentina
Hope you find solution that works for you if remicade stops working.

If your family situation is causing a lot of stress, that could also be causing a flare. I have had flares in past due to stress.

Best to you

Tim
_________________________
AS may win some battles, but I will win the war.

KONK - Keep ON Kicking

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#516983 - 04/23/17 01:58 AM Re: I think the remicade is no longer working [Re: drone3]
jay_bharat Offline
Sergeant_AS_Kicker

Registered: 12/08/08
Posts: 594
Loc: INDIA, Tamil Nadu
If remicade stopped working, generally it is due to antibodies. I have same problem. With NSD, I do not understand how remicade started working. Is it only due to NSD?. In fact, I am taking Exemptia (Humaria) now and been on NSD for eight months, but without any results. Can you elaborate, it may give some tips to me.

How many drops of food grade Hydrogen Peroxide 35% dillute you take per day and for how many days.

Jay


Edited by jay_bharat (04/23/17 02:09 AM)

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