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#516914 - 04/17/17 02:55 PM Symptoms typical worsen later in the day?
Exacta Online   content
Member

Registered: 12/12/16
Posts: 26
I know that AS is commonly associated with morning stiffness and improvement with movement. I actually find that I feel better in the mornings, and then after several hours sitting at my desk and moving around the office that I start to get some pains in the afternoon and evening.

Anyone else share this pattern?

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#516930 - 04/19/17 07:33 AM Re: Symptoms typical worsen later in the day? [Re: Exacta]
Frederick Offline
First_Degree_AS_Kicker

Registered: 03/28/06
Posts: 188
With A.S. anything is possible. Sorry that is no help to you but with A.S. sometimes that's just the way of it.

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#516940 - 04/20/17 07:41 AM Re: Symptoms typical worsen later in the day? [Re: Exacta]
Rayd Offline
Member

Registered: 03/13/16
Posts: 39
Loc: Germany or Austria
Have similar experience. But in my case I had the morning stiffness, than improvement with movement and than some pain in the late afternoon and evening. I felt better in the morning than in the evening.

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#516955 - 04/21/17 11:41 AM Re: Symptoms typical worsen later in the day? [Re: Exacta]
aprila Offline
New_Member

Registered: 05/02/11
Posts: 11
My stiffness goes away with movement. In the morning I get up and move around. Most of the day I'm moving periodically. When I sit down to dinner, though I linger for half an hour or more enjoying my family and when I get up I waddle for a few minutes. They think it's funny (I have a 10 year old boy - all bodily functions are funny). So, for me...the stiffness returns after a period of inactivity.
_________________________
DX: USpA 2007
2017 - Off of all medications, treating with supplements and diet

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#516965 - 04/22/17 07:21 AM Re: Symptoms typical worsen later in the day? [Re: Exacta]
stevec Offline
Addicted_to_AS_Kickin

Registered: 09/05/01
Posts: 6222
Loc: Millstone NJ
Sounds a bit like me

I changed my chair at work several times before things got better

I have found how I sit and what I sit on even if briefly can make my pain or stiffness increase quickly

I will alternate sitting and standing at my desk also to find the right balance
_________________________


L-R: Julianna, Jamie, Diane and Tonimarie

stevec-they also serve who stand and wait

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#516975 - 04/22/17 07:49 PM Re: Symptoms typical worsen later in the day? [Re: Exacta]
Dotyisle Offline


Registered: 03/07/02
Posts: 9383
Loc: Rosario, Argentina
Stiffness always worse in the morning when my AS presented more issues.. if i slept wrong, it could make so much pain could not get out of bed easily, would take me several minutes to try and roll out of bed to my hands and knees.

After hot shower and movement got better.. then depending on what I did during day could improve or worsen.

Best to you,

Tim
_________________________
AS may win some battles, but I will win the war.

KONK - Keep ON Kicking

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#516980 - 04/22/17 09:28 PM Re: Symptoms typical worsen later in the day? [Re: Exacta]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21314
Loc: Upstate NY
There were times when laying to sleep hurt, sitting hurt, standing hurt, walking too much hurt....I was stiff and sore when I woke and I was sore and tired by the end of the day.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

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#518074 - 01/15/18 08:39 AM Re: Symptoms typical worsen later in the day? [Re: Exacta]
Exacta Online   content
Member

Registered: 12/12/16
Posts: 26
I wanted to follow up on this because at times it makes me question the diagnosis. I wake up every morning with zero pain. As the day goes on, pain creeps into my upper back and neck. Typically there is also tightness in my hips.

Any thoughts?

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#518075 - 01/15/18 05:05 PM Re: Symptoms typical worsen later in the day? [Re: Exacta]
Kellybells Offline
Apprentice_AS_Kicker

Registered: 01/21/17
Posts: 88
Loc: Toronto, ON
Exacta, have you ever had pain in the morning? Or has it always been later in the day? Is this every day or just when you flare? Also curious to know what is a flare like for you?
_________________________
Suspected SpA. HLA B27, xray, u/sound, blood tests all -ve. Ancient history of plantar fasciitis, SI joint pain, knee arthritis. Recent history of tendinitis, neck pain, debilitating finger pain and stiffness (especially mornings). No diagnosis, no meds.

Jan 2017 - discovered NSD - 97% improvement in symptoms, continually amazed by my results, wish I'd found kickAS sooner
2014 - stopped eating all grains
2012 - stopped eating wheat
2010 - stopped eating dairy

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#518080 - 01/16/18 08:14 AM Re: Symptoms typical worsen later in the day? [Re: Exacta]
Exacta Online   content
Member

Registered: 12/12/16
Posts: 26
The moment I wake up in the morning I have no pain. I have also never had the characteristic AS issue of losing sleep due to stiffness during the night. I sleep just fine. Also never experienced uveitis.

When I flare, I typically develop pain in my back and neck throughout the day, as well as tightness in the hip joints. Also my left foot. It is usually accompanied by fatigue, depression, and general malaise.

My history is essentially that I had a bout of Reiter's in 2007, which made me aware of my HLA B27+ status and the autoimmune factor. I cruised along pretty nicely until 2016 when I started to develop back and neck pain. I essentially diagnosed myself with AS at that point, and my rheumatologist did not disagree.

I have responded pretty well to NSD. Alcohol makes me flare.

I know AS can vary widely between people. Curious whether anyone thinks that morning stiffness is so characteristic of AS that I should consider other diagnosis.

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