Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·Forums Main Index
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
·In Memorium
·KickAS Stories
·KickAS Banners
Forum Stats
13,202 Registered Members
28 Forums
43,587 Topics
517,526 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
maitetxu, rema1016, KRZNana, KC59, Elkhouly
13202 Registered Users
KickAs Team
John (Dragonslayer)
Melinda (mig)
Timo (Timo)
Brad (wolverinefan)

- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Page 2 of 2 < 1 2
Topic Options
#517119 - 05/15/17 09:26 PM Re: AS Targeting New Areas (limbs)- Humira Not Helping [Re: jackson]
Kahuna23 Offline

Registered: 11/25/16
Posts: 26
Loc: Alberta

I started Humira a month ago and it is life changing. I feel like I did 10 years ago. As soon as my pain and inflamation went away I got back to doing yoga daily and have regained most of my mobility back. I has troubles turning my neck, bending reaching pretty much everythi g was getting harder and I was always in pain. I looked at where I was headed and it was a no brainer for me. I saw the choice of slowly being cripple in pain and a chance and being able to play with my son the way we used to.

I have not noticed any real side effects but holy tolido amigo, within a day I started feeling the pain and inflamation go. I am bounci g on the trampoline with my kid, running, doing yoga and feel greatful for this. I realize it may not last for ever but I am going to enjoy this as long as it does. I still maintain a fairly strict low starch diet and do yoga religiously as I plan to keep this mobility as long as I can.

#517175 - 05/28/17 08:46 AM Re: AS Targeting New Areas (limbs)- Humira Not Helping [Re: jackson]
mig Offline

Registered: 04/27/02
Posts: 12461
Loc: ON, Canada
Hi Jackson,

I do have tinnitus, however mine started before I started on Remicade. I have not heard of it being listed as a possible side effect of Remicade or Humira, but I suppose it is possible.

I was on Sulfasalazine for 15+ yrs which is said to have tinnitus as a side effects, so possibly that's the cause in my case, or perhaps it is simply age-related. crazy2 My Mom suffered from tinnitus too that was quite bad.

I'm not sure what to suggest but I would mention this to your Rheumatologist.

#517176 - 05/28/17 08:47 AM Re: AS Targeting New Areas (limbs)- Humira Not Helping [Re: ]
mig Offline

Registered: 04/27/02
Posts: 12461
Loc: ON, Canada
Thanks Frederick! smile

Gosh, 55 yrs with AS is a long journey - so glad to hear that you've found some relief on Enbrel!

#517177 - 05/28/17 08:51 AM Re: AS Targeting New Areas (limbs)- Humira Not Helping [Re: Kahuna23]
mig Offline

Registered: 04/27/02
Posts: 12461
Loc: ON, Canada
Hi Kahuna,

It sounds like you are experiencing fantastic results on Humira - long may it continue!!

It was life-changing for me too, when I started Remicade and similarly, my pain rapidly started vanishing on day 4. I remember how shocking it seemed to not be in pain after all those years. It still amazes me!

#517475 - 08/03/17 02:51 PM Re: AS Targeting New Areas (limbs)- Humira Not Helping [Re: woodbine]
MikeGinnyMD Offline

Registered: 01/24/09
Posts: 71
Loc: SF Bay Area, CA, USA
About 20 years after I got AS, I developed involvement of my fingers and toes. As a physician, this horrified me. I need my hands!

My rheumy added sulfasalazine to my regimen. It took about 4 months to work but WOW did it work. I get a swollen joint maybe twice a year now and that responds to a steroid injection. No side-effects for me, either. It's a bit annoying having to take three horse pills twice a day, but worth it!

Page 2 of 2 < 1 2

Moderator:  Megan, WendyR 
Who's Online
1 registered (FlexibleMind), 92 Guests and 4 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
In my Bones - AS documentary on YouTube
by CoolTech
01/16/19 05:45 AM
Kicking Opiates
by Melliej
01/14/19 11:05 AM
Newbie- Travelling with/transporting biologicals
by habiba
01/10/19 06:41 AM
NSD for AS and IBS: some help with candidiasis?
by Bazel
01/09/19 12:41 AM
Hello Forum! New here, my story and questions.
by Bazel
12/30/18 01:43 AM
No Wonder!
by Lon
12/29/18 11:19 AM
Sad news
12/27/18 04:22 PM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 41,964,898
hmmm 2,189,104
Has anyone had Pedicle subtraction Osteotomy ? 1,826,181
What to do about healthcare? Can it be fixed? 1,235,907
User names revisited 994,477
A.S and beds, What do you find best? 921,280
Medicinal Marijuana 920,554
OMG!!!! 863,139
No/Low Starch Diet Success Stories 667,139