banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
12,734 Registered Members
28 Forums
43,368 Topics
515,902 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
Jl22, SunSof, daylightami, Koti, Vantuckygirl
12734 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Topic Options
#516301 - 12/28/16 06:52 PM Full body spasms while laying down?
Jennyfaaa Offline
New_Member

Registered: 12/28/16
Posts: 11
Posting again so soon...
Does anyone else experience full body spasms when they are laying down? It feels like the jerky moments are coming from the lower back area? My doctor couldnt specify whether this was directly related to the AS..

Top
#516313 - 12/30/16 06:43 AM Re: Full body spasms while laying down? [Re: Jennyfaaa]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 9729
Loc: Brittany, France (since Nov 08...
Hi again Jennyfaaa - I cannot lye down flat ! Am like to a beached whale... The pain is indescribable. I need help to get upright. MRIs are fun, not ! I have to take pain meds for getting into and getting out of. Especially bad if doing a long MRI scan. That can take two people to get me upright again.

I have retrolisthesis, osteophytes and fusing in the spine. All good stuff... alien But, we Keep on Keeping on -

Molly C
_________________________
MollyC1i - Riding OutAS

Top
#516314 - 12/31/16 05:53 PM Re: Full body spasms while laying down? [Re: Jennyfaaa]
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1169
Hi,Hope you are doing ok.
A lot of weird symptoms I have had in the past were all due to a side effect of a medication I was taking. It took me years to figure it out since I thought it was the disease(which it can be ). But since it happened to me a few too many times, I thought I would offer it as an option to what you are describing.

I had anemia from a medication and once I was off my anemia went away and stayed away.
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

Top
#516322 - 01/01/17 02:22 PM Re: Full body spasms while laying down? [Re: Jennyfaaa]
drone3 Offline
Member

Registered: 03/12/16
Posts: 29
Hi Jenny, I have had really bad leg spasms, only when lying down. If I take magnesium chelate before bed it goes away. I'm also anaemic so im pretty sure it's either not enough oxygen to the legs due to anaemia or low magnesium.
_________________________
1992-'93 DX Colitis -> Total Colectomy / J-Pouch.
2015 DX Sacroilitis (USpA, AS?)
Taking - Infliximab, H2O2, Triphala, Transdermal Magnesium w/MSM
Diet - No Sugar/Dairy/Starch/Alcohol

Top
#516375 - 01/06/17 09:17 AM Re: Full body spasms while laying down? [Re: Jennyfaaa]
Frederick Offline
Journeyman_AS_Kicker

Registered: 03/28/06
Posts: 148
The best explanation I heard about such spasms was from a physiotherapist. She said that when the body experiences pain such as the pain of A.S. the body goes into a sort of muscle spasm around the area of the pain. This is the body's natural way of protecting an injury. So the brain feels the pain and then brings on the muscle spasm to protect wherever the pain is.

Now when we go to bed at night we naturally try to relax so as to hopefully get some sleep. The muscles are however so tightly spasmed that they can't relax in the natural way. So they just go into a sort of jerk like spasum that relaxes them instantly and not in the slow way that a muscle would usually relax before sleep.

I used to get such painful muscle spasms myself at one time. Thankfully now that my A.S. is under better control I only very rarely get this problem. As for an answer to it all, well to be honest I never did really find a proper answer. I used to dread going to bed at night and would take extra painkillers just to try and get a bit of relief. The answer is I think to try and not get to much stressed by pain in the evening before going to bed. There are probably some relaxation exercises that if done before going to bed might help. The thing is to find and learn the right exercises. I would suggest you see a physiotherapist and see what she/he has to say about this. I even wonder if your doctor could prescribe some muscle relaxant that may help.

Top
#516403 - 01/11/17 10:32 PM Re: Full body spasms while laying down? [Re: Jennyfaaa]
Jennyfaaa Offline
New_Member

Registered: 12/28/16
Posts: 11
Thank youuu!!!!

Top

Who's Online
0 registered (), 104 Guests and 3 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
Drug/Medicine for AS Cure - is there any hope
by ravirajhn
10/19/17 05:48 AM
Guy claims to know the cure for AS must see!
by L33
10/11/17 04:57 PM
women who have as
by connieb
10/02/17 11:43 PM
taken off biologic, help
by Winter
10/02/17 06:51 AM
Drinking diluted bleach eliminated symptoms
by Robin_H
09/30/17 09:29 PM
pain pump
by connieb
09/30/17 03:52 PM
Salad greens? (Romaine/spinach)
by kj243
09/30/17 08:28 AM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 35,106,892
hmmm 1,785,412
Has anyone had Pedicle subtraction Osteotomy ? 1,515,103
What to do about healthcare? Can it be fixed? 984,222
User names revisited 855,589
Medicinal Marijuana 773,377
A.S and beds, What do you find best? 757,759
OMG!!!! 707,239
No/Low Starch Diet Success Stories 523,706
THE STARCH CONTENT OF FOODS - THE LIST 423,403