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#511484 - 06/25/15 03:59 AM Healing the gut with glutamine?
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21302
Loc: Upstate NY
Hi all,

I've searched and read the info on glutamine here, but thought i had read more detail from someone at some point, so i'll ask the question.

Who uses glutamine.

How much do you take.

What has been your experience with it.

The humira helps the chronic constipation, but its still an issue. i'll be good for a few days after the humira, then it starts going downhill. its always a challenge.

diet, certain foods, probiotics, plenty of water, plenty of exercise, magnesium all help too, but i feel like i still need more. humira more often could work, but there are tradeoffs to that.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#511488 - 06/25/15 06:10 AM Re: Healing the gut with glutamine? [Re: Sue22]
Staffy Offline
Apprentice_AS_Kicker

Registered: 02/02/10
Posts: 79
Loc: Oxford, England
I take it infrequently, usually before exercise when I want to perform well eg a competitive tennis match. 5g with some fruit juice (helps with absorption).

I find it well tolerated and I *think* it helps reduce my inflammation/stiffness whilst I exercise.

One word of warning though if you have any cancer history - it can feed cancer cells. This is why I use it sparingly.

Top
#511495 - 06/25/15 05:30 PM Re: Healing the gut with glutamine? [Re: Sue22]
dlee Offline
Second_Degree_AS_Kicker

Registered: 01/09/12
Posts: 229
Loc: Auckland, New Zealand
I used it but found it did nothing for me.....however I was on NSAID's so if there was any gut healing going on I'm sure it was quickly wiped out by NSAID use. I used 5 grams at a time. Usually morning and evening.


Edited by dlee (06/25/15 05:31 PM)
_________________________
_________________________________________________________
Diagnosed AS year 2000 age 26; First onset of major symptoms came with severe food poisoning leaving me in chronic pain hardly able to walk/sleep/sit - never been the same since; HLA-B27 positive; bouts of iritis; no biologics ever, controlling with NSAID's and diet but trying to get off NSAID's through various "biohacking" experimentations; Live in Auckland, New Zealand

Top
#511500 - 06/26/15 05:23 AM Re: Healing the gut with glutamine? [Re: Sue22]
Grumpyally Offline
Black_Belt_AS_Kicker

Registered: 01/24/12
Posts: 419
Loc: UK
Hi,
I have taken it but couldn't say if it did anything and I am so nervous about taking supplements especially white tablets that may have hidden starch in.

However I still have half a bottle left and will be taking it again shortly as part of a plan to heal my gut. I think if are planning to take it to help heal the gut it won't work on its own you need to do a whole load of other stuff as well. I have been reading the Gut Health Protocol along with some other books and will keep everyone posted if I feel it all makes a difference.

Have you tried unpasteurised sauerkraut for constipation I have read that it can help with that.

x
_________________________
NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop

'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi

Top
#511521 - 06/27/15 09:54 AM Re: Healing the gut with glutamine? [Re: Staffy]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21302
Loc: Upstate NY
Originally Posted By Staffy
I take it infrequently, usually before exercise when I want to perform well eg a competitive tennis match. 5g with some fruit juice (helps with absorption).

I find it well tolerated and I *think* it helps reduce my inflammation/stiffness whilst I exercise.

One word of warning though if you have any cancer history - it can feed cancer cells. This is why I use it sparingly.


thanks.

just the info i was looking for.

i don't have a history of cancer. its also not something that runs in our family; maybe because we die relatively young of other things first like liver failure and heart disease from the diabetes.

but now i know a potential negative side effect. i do tend to go for completely safe things so now not sure what i want to do to proceed? but i have pros and cons to balance now.

maybe i'll just try it and if it seems to work, think about using it. if it doesn't work, well at least then i'll now.

thanks again.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#511522 - 06/27/15 09:56 AM Re: Healing the gut with glutamine? [Re: dlee]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21302
Loc: Upstate NY
Originally Posted By dlee
I used it but found it did nothing for me.....however I was on NSAID's so if there was any gut healing going on I'm sure it was quickly wiped out by NSAID use. I used 5 grams at a time. Usually morning and evening.


thanks. yes, i think you are correct. when my GI doc found inflammation and small crohns like ulcers in my ileum and i asked him what could cause that, he said, "spondylaorthropathy or nsaids"; i was not on nsaids at that point, hadn't had even one for years. so that helped with the spody dx. but yes, nsaids can contribute to the gut inflammation for sure. so they help the joint inflammation and make the gut inflammation worse.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#511523 - 06/27/15 09:58 AM Re: Healing the gut with glutamine? [Re: Grumpyally]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21302
Loc: Upstate NY
Originally Posted By Grumpyally
Hi,

However I still have half a bottle left and will be taking it again shortly as part of a plan to heal my gut. I think if are planning to take it to help heal the gut it won't work on its own you need to do a whole load of other stuff as well. I have been reading the Gut Health Protocol along with some other books and will keep everyone posted if I feel it all makes a difference.

Have you tried unpasteurised sauerkraut for constipation I have read that it can help with that.

x


thanks, yes, i'm doing pretty much EVERYTHING else including the good sauerkraut and most of the time all of that keeps things going, but i still cycle and sometimes its still really bad, so that's why i'm still in search of what else i can add to the mix.

thanks!
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#511533 - 06/28/15 08:18 PM Re: Healing the gut with glutamine? [Re: Sue22]
dlee Offline
Second_Degree_AS_Kicker

Registered: 01/09/12
Posts: 229
Loc: Auckland, New Zealand
I've just made a nice big batch of Sauerkraut and my wife has got some coconut yoghurt currently fermenting. I've been off NSAIDs for the last 4 weeks and really struggling but have to get off the damned things. I learnt on the weekend they can actually shutdown one of the livers detox pathways.

I got my Glutamine from a body building shop in powder form. Read the labels and make sure its just Glutamine and nothing else.
_________________________
_________________________________________________________
Diagnosed AS year 2000 age 26; First onset of major symptoms came with severe food poisoning leaving me in chronic pain hardly able to walk/sleep/sit - never been the same since; HLA-B27 positive; bouts of iritis; no biologics ever, controlling with NSAID's and diet but trying to get off NSAID's through various "biohacking" experimentations; Live in Auckland, New Zealand

Top
#511540 - 06/29/15 11:23 AM Re: Healing the gut with glutamine? [Re: dlee]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21302
Loc: Upstate NY
Originally Posted By dlee
I've just made a nice big batch of Sauerkraut and my wife has got some coconut yoghurt currently fermenting. I've been off NSAIDs for the last 4 weeks and really struggling but have to get off the damned things. I learnt on the weekend they can actually shutdown one of the livers detox pathways.

I got my Glutamine from a body building shop in powder form. Read the labels and make sure its just Glutamine and nothing else.


thanks for the advice. yes, i too got pure glutamine powder, nothing else, from GNC.

can you give me the recipe for coconut milk yogurt, i want to make my own. what brand machine do you use, or do you go low tech? please share, thanks! smile
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#511542 - 06/29/15 02:17 PM Re: Healing the gut with glutamine? [Re: Sue22]
Grumpyally Offline
Black_Belt_AS_Kicker

Registered: 01/24/12
Posts: 419
Loc: UK
I would be interested in the recipe too. I have just started making coconut yoghurt and chose this recipe:

http://tasty-yummies.com/2014/06/03/how-to-make-coconut-milk-yogurt/

I made my own coconut milk as per the instructions (my usual recipe is 1 cup coconut to 4 cups water). The first time I used my probiotic tablets x 4 as the starter, the second time I used a tablespoon of organic bio-yoghurt and I think two capsules. I did that because it didn't feel like it had fermented at all other than it separating out and needing stirring before refrigerating. However they both turned out the same.
I looked around for recipes and they all used a sweetener I dont know if it is essential but didn't dare try it without. I used maple syrup.
I used great lakes grass fed gelatin as the thickener and though runny when it came out of my yoghurt 'flask' it thickened up nicely in the fridge. It does have a slightly jelly like consistency because of the thickener but I quite like that and it doesn't re-separate out presumably because of the gelatin.

x
_________________________
NSD almost all the way
No dairy hard cheeses occasionally and homemade ghee
Still trying to work out what makes me tick and what makes me drop

'Chew your drinks and drink your foods'
'Let your knife & fork do the work of your teeth and let your teeth do the work of your stomach'
Mahatma Gandhi

Top
#511543 - 06/29/15 07:34 PM Re: Healing the gut with glutamine? [Re: Sue22]
dlee Offline
Second_Degree_AS_Kicker

Registered: 01/09/12
Posts: 229
Loc: Auckland, New Zealand
Its fairly basic recipe. We were inspired by a commercial product we purchase which tastes divine.....its just really expensive. We have made only 1 batch at the moment as a test and now making the next lot now.

400ml of coconut milk or coconut cream to 1 probiotic capsule. Our probiotic capsule contained acidophilus as one of the bacteria. We just used whatever we had. I don't believe you need to be fussy about the type of probiotic you use. Any bacteria that likes sugars I think will do.

Mix it up and put it in a very basic yoghurt machine which is nothing more than a big flask type device that you place another container (containing the mixture) into the middle of and pour hot water around the outside of it so that it raises the temperature. Put the lid on it for 24 hours or so to get the culture started then seal and move the container holding the mixture to the fridge. Apparently leaving it out longer can thicken it more. I don't see a problem leaving it out longer it depends on how warm your surrounding environment is for the bacteria I guess.

It came out of the yoghurt maker after 24 hours like runny liquid. It tasted like......coconut milk. I wasn't hopeful. But we put it in fridge (sealed) and found it thickened beautifully over the next 3 - 4 days. I gave it a stir once every 2nd day. And it developed the characteristic sourness to it which indicated to me that the bacteria had eaten the sugars in the coconut milk and it was now Yoghurt.

If you don't have a yoghurt maker, you can put the mixture in a sterile glass jar and to put in the oven with just the light on for 24 hours, then move to the fridge. You just need to get it warmed up so that the bacteria multiply and do their thing. I would give it 48 hours in the oven (or any other warm environment) to be honest. It doesn't have to be too warm obviously if an oven with a light on will do. Something consistently over 21/22 degrees celcius I would hazard a guess.

The texture was light and fluffy. Not as thick as what the commercial product was. We read the label on the commercial product and noted they used Coconut Cream so we are trying that now.

We use a lot of coconut cream in our house. I like it for the high fat content and its not watered down like coconut milk is and it tastes nicer and its thick. The one we favour is Kara UHT coconut cream which I believe is widely distributed around the world. We prefer to get it the 1 litre cartons rather than a can. I don't believe you will need to add a thickener to the Yoghurt mixture but some of the recipes we read say to use gelatin to thicken if necessary. But coconut cream is naturally thick to start with.

Anyhow, will let you know if a few days how it turns out smile


Edited by dlee (06/29/15 07:40 PM)
_________________________
_________________________________________________________
Diagnosed AS year 2000 age 26; First onset of major symptoms came with severe food poisoning leaving me in chronic pain hardly able to walk/sleep/sit - never been the same since; HLA-B27 positive; bouts of iritis; no biologics ever, controlling with NSAID's and diet but trying to get off NSAID's through various "biohacking" experimentations; Live in Auckland, New Zealand

Top
#511547 - 06/30/15 01:26 AM Re: Healing the gut with glutamine? [Re: dlee]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21302
Loc: Upstate NY
thank you both for the recipes / instructions.

yes, i get the commercially available stuff now, but its spotty in our store, i think they're gonna discontinue it....which is ashame, but if i can make it, it won't matter.

thanks again smile
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#511549 - 06/30/15 03:10 AM Re: Healing the gut with glutamine? [Re: Sue22]
dlee Offline
Second_Degree_AS_Kicker

Registered: 01/09/12
Posts: 229
Loc: Auckland, New Zealand
I just tasted the coconut cream version. Its identical in texture and taste to the commercial version and it is DELICIOUS!

It's not quite ready I think......just needs another couple of days to add just a bit more sourness to it. 1 probiotic capsule to 400 ml of coconut cream. Easy.
_________________________
_________________________________________________________
Diagnosed AS year 2000 age 26; First onset of major symptoms came with severe food poisoning leaving me in chronic pain hardly able to walk/sleep/sit - never been the same since; HLA-B27 positive; bouts of iritis; no biologics ever, controlling with NSAID's and diet but trying to get off NSAID's through various "biohacking" experimentations; Live in Auckland, New Zealand

Top
#512194 - 08/21/15 07:24 PM Re: Healing the gut with glutamine? [Re: Sue22]
MarkyT Offline
Apprentice_AS_Kicker

Registered: 04/24/14
Posts: 77
I was taking it before, I stopped taking it and went into remission, I started having back pain recently again and thought I might start taking glutamine again as well. It made me feel worse.

It's crazy when you think about it, one supplement might work for someone, and make someone else feel the opposite.

Those autoimmune diseases are really, really messed up.

Top
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