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#510483 - 04/21/15 04:24 PM TNF Adalmumab
Stewart Offline
New_Member

Registered: 04/15/15
Posts: 9
Loc: UK
Hi, have been offered the TNF Adalmumab. Was wondering if anybody has any experience of this drug good or bad.

Thanks,

Stewart

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#510701 - 04/30/15 12:07 AM Re: TNF Adalmumab [Re: Stewart]
rumble Offline
Supreme_AS_Kicker

Registered: 01/31/09
Posts: 4478
Loc: NE Oklahoma
I loved it.....till I couldn't take it any more. frown

Worked great for 4 months, then rheumy noticed it was running down my WBC, specifically the neutrophils. It worked so well, I missed the day to inject the next dose by a day or two or 3 on a couple of occasions. But it was serious business when I had to stop to see if the WBC rebounded (it did) after a couple of months off. So on the 6th month, I had to stop it for good. Nothing else has worked as well as it did. Currently have been on Cimzia for 16 months and it is doing well, but not quite as good as Humira. But it has no side-effects for me so I'll stick with it for now.

Good luck with Humira. It's a good drug and you should have no problems. Mine was a rare thing, apparently. Don't fear it.
_________________________
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cosentyx (6th biologic) starting soon.
Epidural Steroid Injections x7; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x8

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#510716 - 04/30/15 09:52 PM Re: TNF Adalmumab [Re: Stewart]
MikeGinnyMD Offline
Active_Member

Registered: 01/24/09
Posts: 71
Loc: SF Bay Area, CA, USA
Rumble, how low did it get?

When I first started Enbrel, my WBC got down to 4.8-4.9 (normal is 5) but all the cell line counts were normal. That's called a "mild, asymptomatic leukopenia without specific cytopenia."

Now I tend to run around 7-8.

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#510896 - 05/12/15 12:20 AM Re: TNF Adalmumab [Re: Stewart]
rumble Offline
Supreme_AS_Kicker

Registered: 01/31/09
Posts: 4478
Loc: NE Oklahoma
WBC=2.2 and the ANC=1000. I'm usually around 5.0 for the WBC and normal on the ANC (not really remembering that number right now and can't find a recent lab result paper). Rheumy was not happy with those numbers and I work in a hospital lab and didn't like the risk it put me at in the winter with sick people all over the place...despite washing hands, doing all the preventive things.
_________________________
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cosentyx (6th biologic) starting soon.
Epidural Steroid Injections x7; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x8

Top
#510967 - 05/16/15 11:12 AM Re: TNF Adalmumab [Re: Stewart]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21302
Loc: Upstate NY
i've been on humira almost 2 years now and feel so thankful for it. no side effects to it.

i got my blood work done when i read about rumble's low WBC counts, but mine are still borderline high....i think my body is even stronger than humira, though the humira puts up a good fight.....

humira has made a big difference for me.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

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#511792 - 07/19/15 08:18 PM Re: TNF Adalmumab [Re: Stewart]
osja Offline
New_Member

Registered: 07/19/15
Posts: 6
Loc: New Zealand
Thanks for raising this Stewart. I am new here and am facing going onto this as well. I have been unsuccessful with salazopyryn, methatrexate and melodican. Currently having temporary cortisone injections had 3 in 5 months. Going to Rheumy Wed so need to think about this. I also have iron deficiency anemia caused by inflammation. I am a little apprehensive about anti TNF.

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#512714 - 09/21/15 04:30 AM Re: TNF Adalmumab [Re: Sue22]
Tigerlady Offline
New_Member

Registered: 09/20/15
Posts: 4
Loc: WEST VIRGINIA
I've been on Humira for 2 months. No side effects. Has been the best 2 months of my last 3 years! I've actually felt like my normal self again. Wbc still at 5.5. I've got anterior chronic uveitis with my inflammatory arthritis. 3 days ago, my left eye flared back up again. I've had to start oral prednisone again, which I despise. It makes me gain weight and be very irritable. I hope this is just a single incident and not a foreshadowing of the old problems returning. Any suggestions?
_________________________
Tkwilliams

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#512954 - 10/12/15 02:19 AM Re: TNF Adalmumab [Re: Stewart]
AudioKiwi Offline
New_Member

Registered: 11/07/14
Posts: 6
Humira for 2 months now. No side effects. It's good, I'd say Enbrel was slightly better but it had side effects. Haven't had WBC tested (oh New Zealand health system..) but will soon hopefully.

If you have AS then humira is definitely worth a shot. It makes a world of difference.

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