banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
12,701 Registered Members
28 Forums
43,356 Topics
515,774 Posts

Most users ever online: 1,568 @ 06/29/16 03:25 PM
Newest Members
Mia82, Clairee79, metmot, sophierowe, monicaal
12701 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Page 2 of 2 < 1 2
Topic Options
#510580 - 04/24/15 08:25 PM Re: Really tough decision - any advice [Re: SunnyD1979]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21298
Loc: Upstate NY
I can't comment on taking a biologic while having the neuropathy.

but if the two are not incompatible, does your doctor know,

i've been on humira for almost two years and it has helped a lot of my problems.
_________________________


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#510594 - 04/25/15 06:17 PM Re: Really tough decision - any advice [Re: dmx07]
Timo Offline


Registered: 07/16/01
Posts: 3333
Loc: BC, Canada
Quote:
You will feel great on Enbrel


A better way to say that is that you *might* feel better with Enbrel.
Everyone is wired differently so results will vary.
I was on Humira for 5 months and didn't feel anything so I stopped. Next I went on Enbrel and only lasted 3 weeks because of the side effects. Massive headaches and nausea that I never had before so I quit that too.
Now I'm trying Remicade and so far, after 1 month, the constant pain has pretty well gone so I'm quite hopeful. I'm also hopeful all the other physical issues I had with the liver, the gastric problems etc might get better now that the inflammation is down. Fingers crossed!
_________________________
Timo

Top
#510639 - 04/27/15 02:20 PM Re: Really tough decision - any advice [Re: SunnyD1979]
SunnyD1979 Offline
Member

Registered: 10/08/14
Posts: 47
Loc: UK, South
Hi all, thankyou for all your replies. I am more of the thinking that Enbrel might help me and know that this wont remove the neuropathy pain sadly. I cant tell whats the AS and whats neuropathy anymore so if Enbrel works then maybe that will give some insight into what is what.
Its good to hear it has helped others with their additional issues that came along with AS.
My rheumatologist has sought advice from neurologist ref Enbrel. All the literature I have read says avoid in demylinating neuropathy. Mine isnt classified as demylinating as small fibres dont have myelin apparently. It still feels like quite a risk but I am at the point where every single option carries risks,including doing nothing.
I think the gabapentin I take for neuropathy may be making tinnitus worse, sure this is a side effeect. Sadly I cant stop taking this as need this to numb out exruciating nerve pain.
I hope one day soon there is a cure for all these ills. I actually really wish I was in my 60's and not 35. I genuinely feel that way. The thought of what state I might be in in another year frightens and depresses me quite alot. Hopefully enbrel may bring some relief from all things and I wont write such depressing posts anymore, haha.
Thanks again everyone :-)


Edited by SunnyD1979 (04/27/15 02:22 PM)

Top
Page 2 of 2 < 1 2

Who's Online
1 registered (Orch), 113 Guests and 4 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
Eating once a day
by Klasa
Yesterday at 11:08 AM
Poor response to steroids
by pspondylitis
09/17/17 01:59 PM
ICES device
by j87x
09/12/17 07:06 PM
Collage type 2
by j87x
09/11/17 12:24 AM
Perineural Injection Therapy for Pain
by Jingabee16
09/10/17 11:46 AM
cold and flu that never ends?
by Didier
09/02/17 10:02 PM
MRI resolve - AS
by jay_bharat
08/29/17 12:06 AM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 34,605,415
hmmm 1,733,243
Has anyone had Pedicle subtraction Osteotomy ? 1,476,725
What to do about healthcare? Can it be fixed? 959,762
User names revisited 836,613
Medicinal Marijuana 750,945
A.S and beds, What do you find best? 739,218
OMG!!!! 692,383
No/Low Starch Diet Success Stories 509,980
THE STARCH CONTENT OF FOODS - THE LIST 419,007