Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; New to NSD

Hi everyone,

This is my first post. I will be starting the NSD after reading through many success stories.

Though excited I am also afraid and uncertain about how to proceed with this. I have read over "NSD QuickStart and tips" thread and the links included by DragonSlayer in that post.

What would be the best way to start?

Would the Cayce Apple fast be the best start before the NSD? or simply the NSD?


Sometimes I feel like I can't do anything because of AS as you all know those are dark times. So I must thank you, everyone who has contributed a story, and information. You've has given me the encouragement to start this.
Wish me luck!

If you can leave the potato chips, pasta, cake, biscuits etc then you will have done the difficult bit, the London AS diet. This can be enough, but some have to try the other things as well. But there is no need to try everything from the start at once.

thanks for the encouragement Bilko.

Right now I don't eat sweets, candy, processed foods, meat, dairy, and haven't been for a long time. It won't be hard to cut out chips. Pasta , mom's cake, noodles, rice, those will be more difficult but I can do it.

I eat a lot of beans and lentils. I guess those will have to go to.
I'll have to put meat back in my diet, though I'd prefer no to.

I read some people even cut out fruits. That's scary but if it means my back wont fuse and I don't have to take meds then I'll try.

Just curious....why do you day you 'have to put meat back in the diet'? There are lots of other animal protein options
Personally what has helped me a lot is cutting out PUFAS from fatty fish,pork,nuts&seeds,avocado and emphasizing saturated fats from coconut products and I've been able to tolerate goatdairy over time.

What has really been important to my succes imho,is emphasizing a higher calcium(with adequate magnesium) to phosphorus ratio. This somewhat correlates to the Acid/Alkalinity within the body.
You migth want to rethink cutting out fruits,bc a lot of them have an aproximate 1:1 ca:ph ratio and some even higher calcium....and proper ripe ones are starchless.

Still learning. These are my assumptions. I'll be experimenting and learning from what others have already learned.

I react to diary , so that's not an option. And apparently Eggs too , I took an allergen test and they showed up high. That leaves blood i guess which I can take, and honey.

I don't want to cut fruits out. I love them. Especially Durian, and berries. I'm not sure how sensitive my body is yet so I'll see if I can take them.

I've tried to balance my omega 6 and 3 ratio. The PUFAS restriction , might try that.

I found when I had cut out all the PUFA foods and pay attention to keeping phosphorus low compared to calcium(&magnesium and the other alkaline minerals),over time I was able to tolerate Goat and sheep dairy. (basically a pro-thyroid way of eating.)

Eggs are a common allergen. It's usually the eggwhite people react to,the yolk not so much. I think it also matters if the chicken has been fed grains/corn/soy.

Interesting. I will keep them out for now and start very strict and introduce from there. I love eggs, would be nice to eat them again.

After taking to my naturopath I'm going to start a diet without FODMAP. I'll be eating green veggies, oil, and meat. And after time introduce one item at a time.

I first started out by just cutting out all starches, based on the starch list on this site and by reading food labels. I was shocked to find how much starch is in so many products. I took some time, but it ended up being so worth it. I went from starting the process to go on disability, to working full time with no problems.

--Greg

Cutting out fruit is not typical. Keep in mind that not everyone here solely has AS. They are battling other ailments and autoimmune diseases that you may not see up front. You would have to read through all their posts to get the whole picture, and even then you might not get it. I'm just starting the research and if I cut out everything everyone else does, I'd be just drinking water and taking supplements... oh darn... those upset my stomach... Fruit making stomach discomfort can also be a food allergy. My son is allergic to carrots and since it's generally the pollen that's the culprit, he may be allergic to apples and other things in the same pollen family. Between that and my AS and IBS, I think I'm going to take us both in for allergy testing before I start getting serious about it. Because once your body gets rid of it... all heck can break loose when you try to put it back Good luck!

I eat so much fruit, and have had so much success with NSD too!

Melons, kiwi, pears, pineapple, grapes (and raisins), ripe apples, figs, dates, blueberries, raspberries, grapefruit, persimmons, blackberries, and in the summer ripe peaches, cranberries, nectarines, apricots, plums...

I just make sure to mostly eat my fruit "alone" and have fruit based meals that are not combined with lots of fats or especially meats, as the fruit will not digest as quickly, get slowed down in transit with all the fats/animal proteins and start a fermentation and fart factory in my gut. But if I keep it simple, eat fruit first, before a meal, or on an empty stomach, I am good to go! I eat fruit every day. I love fruit, especially when ripe in season.

And I have found this diet is still pretty easy to do without a lot of meat. I eat a little wild seafood/grassfed beef, but really not that much, most days are vegan plant based diets for me, and I have had amazing success with this diet. Especially when starting it at the point where I was/am, in an advanced stages of AS, with quite a bit of fusing already and bone degeneration, this diet has been a life saver.

I wish you great pain free success with this diet! It is definitly a change up in the kitchen at first, but after 2 years on this diet (and 7 years of eating a gluten/dairy free, and mostly paleo grain free diet) I haven't felt at all limited or restricted. Once you get a base of safe foods that make you feel good worked out, you are good to go! It took me a good 6 months of NSD to get to pain free, no inflammation in my body, and now it tetters a little based on the little bits of starch I allow at times (carrots, zucchini, cauliflower), stresses, sleep, how hard I push it, but overall I totally feel like I have this disease under control.