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Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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They showed a segment on "The Doctors" of a young boy with C diff who's mother lent her "fecal material" to her young son....worked like a charm! The little boy is now healthy!

Not the same "The Doctors" segment, but thought others might find this useful:

http://www.thedoctorstv.com/videolib/init/5761

Last edited by Sue22; 08/22/13 02:27 AM.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jun 2012
Posts: 75
E
Apprentice_AS_Kicker
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Apprentice_AS_Kicker
E
Joined: Jun 2012
Posts: 75
Check this out... http://thepowerofpoop.com/

E


Evan
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Thank you SO MUCH for that link!

Definitely something to consider.....the more I read up on it, the more I think its for me.

While the Humira and prednisone help with the chronic constipation, its always a battle between my body and my meds....



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jan 2008
Posts: 21,346
Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Well, looks like in the U.S., the FDA has only approved this (in a clinic) for C diff.

Not prepared to go the DIY just yet, though there is a doctor in my town who screens and consults, maybe I'll go have a chat with him.

Think I will start with a conversation with my GI doc first, see if he wishes he could do it or if he thinks I'm crazy, go from there.

And then too I'll see what my rheumy thinks about it. He was the one who told me, "I think all spondyloarthropathies start in the gut." Mine certainly did.

As for doing it, maybe the doctor will encourage me to give DIY a shot....maybe I'll wait til the FDA realizes this is a better option then being on strong meds ones whole life?

Interesting none the less.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Sep 2013
Posts: 104
L
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
L
Joined: Sep 2013
Posts: 104
Hello, I'm new here. Do you have some news from Lindyap? And does somebody tested those new probiotics they are trying to make (like "repoopulate")?
greats from France

Joined: Dec 2005
Posts: 223
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Dec 2005
Posts: 223
http://www.mdbuyline.com/repoopulate-how...h.Snokkwf0.dpbs

I was browsing the web reading about this subject and came across this Canadian research team that has isolated a group of 33 bacteria that are susceptable to antibiotics and therefore may be missing in our guts to our detriment possibly. They found this mixture cure C. Difficie just like using feces. They call it "rePOOPulate". So its really nothing more than a very comprehensive probiotic.

Anyone heard of this, and is there a way to get it?

Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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I think of it as "probiotics on steroids" smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Sep 2013
Posts: 104
L
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
L
Joined: Sep 2013
Posts: 104
It seems they wait for an authorisation before to put it on the market in Canada. Also they are still working on something more complexe with more than 30 types of bactérias ( 3 in actual probiotics, about 1000 in the microbiome).


Then you should read it :
http://www.newyorker.com/reporting/2012/10/22/121022fa_fact_specter

http://blogs.law.harvard.edu/billofhealth/2012/10/25/the-uncertain-future-of-probiotics/

Joined: Sep 2013
Posts: 104
L
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
L
Joined: Sep 2013
Posts: 104
And I also found this (page 39 of the pdf):

https://custom.cvent.com/BB1C1C9B50404AD...20ab270c1c0.pdf

Joined: Dec 2005
Posts: 223
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Dec 2005
Posts: 223
Wow you have found some good information...How on earth did you find page 39 in that long paper?

That article in the new yorker is an eye opener...asthma, childhood obesity.

Thanks for your help.

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