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#493813 - 08/26/13 02:00 PM Re: Standing shouldn't feel like a contact sport [Re: Sue22]
naj Offline
Diamond_AS_Kicker

Registered: 10/04/07
Posts: 1728
Loc: U.S.A.
Standing is the WORST!!
_________________________
______________________
Jan
(naj)

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#493816 - 08/26/13 02:26 PM Re: Standing shouldn't feel like a contact sport [Re: Possi]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21342
Loc: Upstate NY
Possi,

That story really made me smile; sounds like something that would happen to me. smile

I do nap in my office when I need to; have a backpacking pad here to lay on the floor. Also, will fall asleep in the chair with the back; especially if my heating pad is on my back and I've just eaten....then its nappy time for sure!
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

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#493817 - 08/26/13 02:26 PM Re: Standing shouldn't feel like a contact sport [Re: Dotyisle]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21342
Loc: Upstate NY
Tim,

Yes, thanks. Off pred for two days now and not doing so badly; hoping the pred knocked that flare down and out for awhile; fingers crossed.

Hope you are doing well.
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#493818 - 08/26/13 02:28 PM Re: Standing shouldn't feel like a contact sport [Re: naj]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21342
Loc: Upstate NY
You can say that again Jan!

But Humira does help; probably helped my feet the most the fastest of all my body parts. But too, then since my PF is better, I stand more, and that bothers the heels more. But its mostly when I first wake, can barely make it to the bathroom, but after the shower, heels are better. Sure beats the all day every day PF before Humira.

Hope you are well! smile
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#493882 - 08/27/13 11:02 AM Re: Standing shouldn't feel like a contact sport [Re: Sue22]
rumble Offline
Supreme_AS_Kicker

Registered: 01/31/09
Posts: 4501
Loc: NE Oklahoma
Originally Posted By: Sue22
Rumble, Ugh!

Laying down in the middle of the floor after 30 minutes would be a change in position grin2

The lab floor is NOT a place I'd like to lay on. eek2
Worked hard on Saturday, then Sunday and Monday off. Hurt most of Sunday and glad I didn't have anything I HAD to do. Less pain on Monday and heading back to work in a few minutes now. Hoping that I can explain to manager how important it is for me to NOT work that station any more (unless the coming changes make it a little easier to put a chair in place).

I looked on my nifty pain tracker app for my iPad....shocked to see all the string of (relatively) average pain days since April, when Humira really kicked in, broken up with the high pain day on Saturday (it's showing red on the calendar function). Next Saturday, I'll have the same station, so if it's bad again, I can show definitively that it's bad for me.

Hope the Humira really does kick in more. I noticed difference pretty fast in the 2nd month and now I rarely have a lapse of symptoms right before the dose comes. Almost forgot it the last time....did it later in afternoon, rather than in the morning. Good luck!
_________________________
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9

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#493904 - 08/27/13 05:14 PM Re: Standing shouldn't feel like a contact sport [Re: Sue22]
Possi Offline
Addicted_to_AS_Kickin

Registered: 11/13/02
Posts: 6922
Loc: Oklahoma where the wind comes...
Sue, hope today was a betters day. :o)

Hugs.
_________________________


Possi
*********************************************************

RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."


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#493909 - 08/27/13 05:26 PM Re: Standing shouldn't feel like a contact sport [Re: Sue22]
Pea Offline
Captain_AS_Kicker

Registered: 02/24/11
Posts: 1968
Loc: Pacific Northwest
Sue,

I have just recently noticed that at the end of my Remicade infusions, the enthesitis in my feet start hurting so instead of doing the "Curly Shuffle" I am scooting my feet across the carpet. I know what you are talking about. It hurts! Takes several days after the Remicade to make my dawgs feel any better!
_________________________
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013

Top
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