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Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
these Doctors are hard work
Don't I know it!
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Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
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OP
Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
forgot to mention...my sister is underweight had Psoriasis in her younger days and occasionally suffers from a badly inflamed eye!
I could tick that list off but I am at a loss as to what to suggest next to my sister when she sees her doc in a weeks time for her blood results other than to mention the eye problems and the fact that normal/low CRP levels prove nothing
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Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
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OP
Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
anyone have a "ballpark figure" for the ratio of AS sufferers with and without elevated CRP?
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Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
If she ever has that inflamed eye again, tell her to get off to an emergency eye clinic immediately and tell them she has a family history of autoimmune disorders. Apart from that kind of thing needing prompt treatment to avoid damage, it might help with getting a diagnosis.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
agree with cemc, plus the doctors usually take eye inflammation pretty seriously, that can often help a lot with getting a dx.
At least the doctor is doing something, those blood markers are a first step. if they are high, it makes the doctor's job much easier to do referrals, make a dx, treat, etc. So let them do the blood work and just see.
I had a doctor who did the simple SI xray and HLAB27/SedRate/CRP but then stopped when those things were negative. I think a good doctor sees a negative as a reason to move on, not a reason to just quit.
I'd definitely have her tell the doc about the eye inflammation and the psoriasis.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
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OP
Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
thanks all,you have all been very helpful and kind and some of you have spent a LOT of time on your answers, bless you
I will certainly have her all clued up as to what next weeks plan of action should be
will log in next week with the latest
John
salty
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
anyone have a "ballpark figure" for the ratio of AS sufferers with and without elevated CRP? At worst, I have high normal of both CRP and ESR. With treatment, they are both into normal range or a little lower. Never thought they correlated with my pain levels, though.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away. Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2 SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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