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#508696 - 01/15/15 09:48 PM Re: Fecal transplant & Helminthic therapy [Re: evand1991]
evand1991 Offline
Apprentice_AS_Kicker

Registered: 06/20/12
Posts: 75
Loc: Ottawa valley, Canada
Depends what you are doing it for...C diff can be cured in 3 sessions. but more refractory cases can take 10 plus days in a row..with top ups every few months.
_________________________
Evan

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#508872 - 01/23/15 11:19 AM Re: Fecal transplant & Helminthic therapy [Re: evand1991]
MikeGinnyMD Offline
Active_Member

Registered: 01/24/09
Posts: 71
Loc: SF Bay Area, CA, USA
Well, I'm talking about for AS. If it's a big initial course but then only every few months, I can do that. If it's multiple times a week forever, that's a bit less practical.

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#508888 - 01/23/15 09:04 PM Re: Fecal transplant & Helminthic therapy [Re: evand1991]
evand1991 Offline
Apprentice_AS_Kicker

Registered: 06/20/12
Posts: 75
Loc: Ottawa valley, Canada
Well mike i did it 15 times in a row..unfortunately didnt work for my AS..did help my IBS though and anxiety
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Evan

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#509882 - 03/15/15 02:04 PM Re: Fecal transplant & Helminthic therapy [Re: evand1991]
MikeGinnyMD Offline
Active_Member

Registered: 01/24/09
Posts: 71
Loc: SF Bay Area, CA, USA
Yeah, I've been reading through this and I haven't seen reports of dramatic improvements in AS symptoms with FMT.

I have zero "ick" factor for this. It's just a lot of effort if it doesn't work.

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#509932 - 03/19/15 04:16 PM Re: Fecal transplant & Helminthic therapy [Re: evand1991]
Dreamer Offline
Member

Registered: 05/28/14
Posts: 42
Loc: Arizona, US
To piggyback on Mike's question: I too have seen lots of reports of improvements in UC/IBD/C Diff- but not AS specifically. (Except maybe Betty Rawker posted about a friend with AS who got better?) So, if anyone out there knows of improvement in AS specifically, could you let us know? Sound off and it'll be much appreciated! smile

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#510097 - 03/30/15 10:36 PM Re: Fecal transplant & Helminthic therapy [Re: evand1991]
Lindyap Offline
Fourth_Degree_AS_Kicker

Registered: 01/11/09
Posts: 313
Loc: Georgia
I had two FMT treatments, and now I supplement periodically with pills.

I think the FMT treatments helped me get about 60% improvement, but the results don't seem to last.

I'm very curious if the Klebsiella bacteria is just so aggressive that the numbers die back and then just come back again.

I'm almost thinking of going through a bigger antibiotic regimen, but I'm unsure of my next steps. I have to go towards the FMT route again since biologics have failed me again.

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#510870 - 05/10/15 06:20 AM Re: Fecal transplant & Helminthic therapy [Re: evand1991]
boz Offline
Active_Member

Registered: 05/04/15
Posts: 63
Loc: Norway
Anyone have experience with diy FMT? Would you see any problems with trying this at home with FM from my significant other?
_________________________
Norway

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