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#486088 03/25/13 09:31 AM
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Hi,

I am a female and struggling with the diagnosis, or non diagnosis of AS. I will now shed some light on this. I have a head dr and then researcher's who work under her. The main dr says they are still looking into the diagnosis and the researcher says I have AS. I have called a meeting with the director of the whole department as this is really getting me down.

They also want to keep putting me on drug trials for AS, but will not formally diagnose me with AS. I have spoken to them several times with my concerns, but they say i still need to come to all appointments. The dr said I tick all the boxes. It's not only my back, it's also my neck now being affected. I have had issues with my back for years.

I hope I am in the right place for support, it just really getting me down

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Hey, if you really have AS then check out the following thread.
Its about a no starch diet.

Maybe it helps you.

I will start next week, because i get diagnosed only a few weeks ago.

https://www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number=205870#Post205870

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Oh my gosh!!!! how have you taken the news?

Thank you for your reply. I will check it out.

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Im sorry, my english is not so well as it should be.
My mother tongue is german and so i cant understand everything.

I think you should wait for the real diagnose. Dont get panic, maybe you dont have any rheumatic disease.

I only want to give you a tip if thats really AS.

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I have two specialists telling me two different things, it really confusing. I did read the link and I think wow. I have an appointment with head of the department next week.... Scary

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Also, good luck with the no starch diet. It's sounds tough at the start

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Ask your doctor for a blood test. Do you have the HLA-B27 gen? If yes, then you are more AS prone then others.

Make a MRI from your sacroiliac, there you can find the first signs and inflammations.

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I have done all of that and yes to all. There are also changes in my lower back/si area

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I have loads of testing done, scans, X-rays etc. they said they can see physical changes in certain areas in my body, that's also why I think they tell me to keep going back.

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Maybe it is AS, but Im not a doctor.

I also have the HLA-B27 gen and inflammations in the sacroilliac.
My rheumy said, thats to 100% AS (in Austria its called Morbus Bechterew).
I think its better to live with a NSD than with a ruined health.

I wish you a lot of power to find your correct diagnose!

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