This is an exciting update on the LDN scene. Anyone in the UK and taking LDN (or who would 'like' to try taking LDN or, who knows of a UK resident taking LDN, or, etc etc) then please to contact your/their/the member of parliament - all hands to the deck on this one.

LDN - UK Parliament
Posted by: "jaynelcrocker" jaynelcrocker@gmail.com jaynecrocker64
Date: Tue Jul 10, 2012 2:30 pm ((PDT))

After Nia Griffith MP's debate on the availability of LDN in the UK at the
House of Commons on 8th December 2011, I am pleased to say that as a result
of this and due to the number of MPs supporting LDN's use on the NHS, Nia
Griffith MP has managed to set up a "LDN All Party Parliamentary Group"
(APPG).

What this means is that there are a sufficient number of MPs from cross
parties who will be meeting on a regular basis to discuss how best we can
get LDN more widely available on the NHS. This will be invaluable in aiding
MPs to understand the nature of the issues surrounding LDN.

We are asking as many people as possible who live in the UK to contact their
MP and ask them to join this exciting initiative. It is vital to get as
many MPs involved in this as possible so I am sharing this in the hope that
those of you who live in the UK will write to your MP advising them that the
inaugural meeting of the LDN APPG is to take place on:-

Thursday 13th September 2012 at Room 0, Portcullis House at 10.30am.

Should you be interested in helping you can contact your MP by going here
<http://www.writetothem.com/> http://www.writetothem.com/

A link to include in your email of the debate held on 8th December is
<http://www.theyworkforyou.com/debates/?id=2011-12-08a.490.0>
http://www.theyworkforyou.com/debates/?id=2011-12-08a.490.0

If I can be of further assistance to you with contacting your MP please
email me on the above email address or via the <http://www.ldnnow.com>
www.ldnnow.com website.

It would also help us if you can tell us when you have done this and who you
have contacted.

Thank you in advance!

Jayne Crocker

LDNNow logo the one to use

www.LDNNow.com

LDNNow are a political/pressure group of individuals dedicated to getting
Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the
myriad of uses it shows benefit for.

<http://www.youtube.com/watch?v=5p5nhzP2OaI> Dr Chris Steele MBE, talking about LDN

Hi Jayne,

thanks for taking the time to give us an update on the progress.

I have just started LDN last week but I am feeling amazing already. no stiffness, no pain. I have been re-born. I am bouncing with excitement. it feels like a miracle.
And yes I can sleep, like a baby, no pain waking me up.

I have requested my MP Yvette Cooper to go to next meeting.

I am a bit worried that my Rheumatologist will tell me off when I go there next because she tried to persuade me to go on anti TNF which I would nerver do, I'd rather be in pain.

Let's hope that it will be easier to get hold of it soon.

Thanks for your work on this.

Marie

Hi Marie - GREAT you are doing so well on the LDN. Terrif good news. And well done on contacting yr MP.

Next step - educate rheumatologist!

I have been on LDN for 'n' number of years. Been my life saver -

Molly C (France)
(Ex-pat Brit) Keeping on Keeping on

Hi Guys,

my MP Yvette Cooper has already written back to me, she has contacted the NHS Calderdale Kirklees and Wakefield District Cluster Partnership as a matter of urgency. She'll be in touch when she gets a reply.
Sounds promising to me.

I don't really want to go through GP now that I am in touch with the Dr. through LDNinternational, he really cares and is super responsive when I have questions.

Just upped my dose to 2ml yesterday. I love this stuff, works perfectly with Paleo diet and Acupuncture- I feel normal.

Hope more people get on board writing to MPs it's super easy and that's what they are there for, sorting stuff on our behalf.

Marie

I admit I'm skeptical of LDN but since i cannot take the biologics anymore because of reactins to them I would like to try them.
Any advice on how much to start with and how to convince your doctor to give you a script for them?

hi finnari,

i did as others instructed me to do, started with 1.5 mg, then 3 mg, then 4.5 mg within about a month i think. been on 4.5 mg for 3 years now.

its the single one thing that stopped my tendons and ligaments from tearing. prior to LDN, a whole laundry list of tendonitises, tendon and ligament pulls, and a few rather nasty tears, some that took 1 or more years to heal. really scary the things that happened to my tendons and ligaments prior to LDN, but no more.

yes, i still flare, still wake with a sore back and ribs, still deal with a cranky SI joint, still have to watch how much i'm on my feet, etc etc.

but, the improvement of the enthesitis and the way the LDN helps my body recover from inflammation so much faster makes it a no brainer for me.

i took three pieces of information with me:

the abstract for the study on crohns and LDN:

http://www.ncbi.nlm.nih.gov/pubmed/?term=LDN%20crohn%27s

the abstract for how it helped people with fibro, especially for those with inflammation:

http://www.ncbi.nlm.nih.gov/pubmed/19453963

and the info on the LDN website stating how safe it is, as that was the rheumy's argument for why he wouldn't allow me to try anything else:

http://www.lowdosenaltrexone.org

that worked for me.

but if it hadn't, i was prepared to go to the naturpath in town that readily prescribes it. i got her name from the local compounding pharmacy, as i was instructed to do here.

my current rheumy continued the prescription. his motto seems to be "whatever works".

good luck!

Hi finnari - Sue has covered it. Great you are going to give LDN a try. Certainly can't loose anything.

Yes, titrate up from a start of 1.50 to 1.75mg - then gradually increase to 4.5o - 4.75mg.

Should your doctor be unwilling to RRx, then do point out that you have nothing to loose by taking. IF still doubtful, give him the run down of ALL the success stories - available on line and also to direct him to the many YouTube videos. In worse case scenario...can purchase without a RRx.

Keep us posted -

P.S. Latest from LDN - http://forum.ldnresearchtrust.org/index....-win-a-new-car/