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#475898 - 08/28/12 04:02 PM
Fibro Fog and A.S.
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Gold_AS_Kicker
Registered: 02/24/11
Posts: 1531
Loc: Pacific Northwest
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Have any of you on here with Fibro and A.S. ever experience your fog to be heavier and last longer when your A.S. is worst as well? I haven't really put this together on paper or tried to keep a record of it but I'm thinking that I need too. Yes, we all know our A.S. pain can make us a little forgetful as well as some of our med's but those of us with Fibro really know what "The Fog" is. Since I have been off of the Remicade my fog started in at least 2 weeks ago and is getting worst and so has the pain in my wrist, elbows and knees (enthesitis) that I never had before I started Remicade. Never has my fog lasted this long. It is so bad that I missed an appt. yesterday, went to another one today that is for tomorrow and played a game of dice with my family the other night and swore some of the numbers were different. Forget even trying to find the right words. It's really making me cry because I am getting more sensitive to it. Now it's downright embarrassing. My husband feel's so bad for me but he needs to learn how to have some thoughtfulness when he corrects me. Just wondered if others have had this too. I am going back on the right date tomorrow to ask my Dr. about it since she just got back from a Fibro conference. 
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Pea Diagnosed with A.S. 26 year's ago. Diagnosed with Fibro 9 year's ago. Sulphasalazine, Folic Acid, Remicade
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#475903 - 08/28/12 06:38 PM
Re: Fibro Fog and A.S.
[Re: Pea]
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Very_Addicted_to_AS_Kickin
Registered: 01/13/08
Posts: 19020
Loc: Upstate NY
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Not from fibro, but from celebrex, mobic.
And when i thought my enthesitis was taking a major turn for the worst, it was due to edema caused by vioxx at one point, a statin another time.
while drugs can be helpful, but can some of them have side effects. just make sure that's not the problem. it took me three years to realize what vioxx was doing to me. only a month to realize the same issues with the statin; hey, guess i learned something, though even a month is a long time.
the fog thing on the celebrex and mobic was much easier to spot. when it took me several hours to go over some lecture notes for a class that i had written, that should have taken me just a few minutes, i knew i couldn't live / work like that. it was like i was reading the words, but somehow they weren't making it to my brain.
whatever is causing it for you, i sure can relate and hope you get past it soon.
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   sue USpA LDN/zanaflex/flector vits C, D. probiotics. fish oil. CoQ, Mg, Ca pred taper for flares occasional naproxen / Aleve chiro walk no dairy (casein sensitivity), limited eggs future: humira, soon I hope
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#475910 - 08/28/12 09:20 PM
Re: Fibro Fog and A.S.
[Re: Pea]
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Ninja_AS_Kicker
Registered: 02/06/04
Posts: 816
Loc: Northern Manitoba/Huntsville, ...
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Sure do Pea! It's a rather disturbing thing when I have no idea about things I should have an idea about and misplace the car keys for the 5th time that day!
_________________________
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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#475933 - 08/29/12 12:15 PM
Re: Fibro Fog and A.S.
[Re: Pea]
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Third_Degree_AS_Kicker
Registered: 03/30/11
Posts: 271
Loc: Blenheim ON CANADA
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yes and worse with Pain. and it cycles out of control if i get depressed too. Was getting worse and worse and worse because of right side so painful with apparently spasmed muscles. and frustration at inability to do anything. and trying to talk to husband sometimes I felt ... well "special" and couldn't articulate. Got pain under control and it helped. Also having a <3 to <3 with him and having him explain what he sees helped. I still feel the need to shout out my accomplishments to keep depression from creeping back in.
I have found that i am using the wrong spelling alot! and I used to pridemyself on being a pretty good speller, and cracked at my mom when she would spell totally wrong so much so they were other words (not even sound the same) so Spell check didn't notice. I blame her upbringing of Charlie Farquason for that though :-)
Humor helps. My husband and I have a running joke about Appliances. When we were moving everything became the "dishwasher" or microwave. still happens today.
But I feel for ya Pea and hope you are feeling and thinking better soon. As far as wrong words, a friend of mine posted something funny his son "a healthy individual" said. : Sun catcher. he meant Solar Panel but couldn't think of the correct tearm. and he is young man in his early 20's and should have no excuse. So it happens to the best of us. but its nice to have something to blame.
Edited by NewNormalCharity (08/29/12 12:18 PM) Edit Reason: forgot something
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Diagnosed Fibromyalgia 2004 Diagnosed Ankylosing Spodylitis Sept 2011. Vertigo Since October 21 2012 Humira June 2012 Spending Each day using it to the full to help people in my community have hope, the only hope that keeps me going despite pain and fatigue every day most of the day.
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#476153 - 09/01/12 07:25 PM
Re: Fibro Fog and A.S.
[Re: Pea]
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Gold_AS_Kicker
Registered: 02/24/11
Posts: 1531
Loc: Pacific Northwest
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Thank you guys. I didn't know if it was the usual fog or if some of the pain from the A.S. was triggering it because I wasn't having too much Fibro pain at the time but my spine was screaming.
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Pea Diagnosed with A.S. 26 year's ago. Diagnosed with Fibro 9 year's ago. Sulphasalazine, Folic Acid, Remicade
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