banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
9916 Members
28 Forums
40191 Topics
487694 Posts

Max Online: 312 @ 11/11/12 01:26 PM
Newest Members
Leafs1, Kcc6487, simon909, YJoyeux, Dmlindsey
9916 Registered Users
KickAs Team
Chief Administrator:
Melinda (mig)
Administrator/owner:
John (Dragonslayer)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Topic Options
#475898 - 08/28/12 04:02 PM Fibro Fog and A.S.
Pea Offline
Gold_AS_Kicker

Registered: 02/24/11
Posts: 1531
Loc: Pacific Northwest
Have any of you on here with Fibro and A.S. ever experience your fog to be heavier and last longer when your A.S. is worst as well?

I haven't really put this together on paper or tried to keep a record of it but I'm thinking that I need too. Yes, we all know our A.S. pain can make us a little forgetful as well as some of our med's but those of us with Fibro really know what "The Fog" is.

Since I have been off of the Remicade my fog started in at least 2 weeks ago and is getting worst and so has the pain in my wrist, elbows and knees (enthesitis) that I never had before I started Remicade. Never has my fog lasted this long. It is so bad that I missed an appt. yesterday, went to another one today that is for tomorrow and played a game of dice with my family the other night and swore some of the numbers were different. Forget even trying to find the right words. It's really making me cry because I am getting more sensitive to it. Now it's downright embarrassing.

My husband feel's so bad for me but he needs to learn how to have some thoughtfulness when he corrects me.

Just wondered if others have had this too. I am going back on the right date tomorrow to ask my Dr. about it since she just got back from a Fibro conference. roll roll
_________________________
Pea
Diagnosed with A.S. 26 year's ago.
Diagnosed with Fibro 9 year's ago.
Sulphasalazine, Folic Acid, Remicade

Top
#475902 - 08/28/12 06:32 PM Re: Fibro Fog and A.S. [Re: Pea]
jpinperth Offline
Copper_AS_Kicker

Registered: 12/01/03
Posts: 1240
Loc: Canada, Ottawa
Hi Pea,

I don't have fibro, but I am in a fog from my ABilify. I just wonder if that is adding to your situation ? I can sit for hours and just play on the computer, I was never like that. I find it helps the depression but sure makes me in a fog.


Hugs,
Janet

Top
#475903 - 08/28/12 06:38 PM Re: Fibro Fog and A.S. [Re: Pea]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 19020
Loc: Upstate NY
Not from fibro, but from celebrex, mobic.

And when i thought my enthesitis was taking a major turn for the worst, it was due to edema caused by vioxx at one point, a statin another time.

while drugs can be helpful, but can some of them have side effects. just make sure that's not the problem. it took me three years to realize what vioxx was doing to me. only a month to realize the same issues with the statin; hey, guess i learned something, though even a month is a long time.

the fog thing on the celebrex and mobic was much easier to spot. when it took me several hours to go over some lecture notes for a class that i had written, that should have taken me just a few minutes, i knew i couldn't live / work like that. it was like i was reading the words, but somehow they weren't making it to my brain.

whatever is causing it for you, i sure can relate and hope you get past it soon.
_________________________


sue

USpA
LDN/zanaflex/flector
vits C, D. probiotics. fish oil. CoQ, Mg, Ca
pred taper for flares
occasional naproxen / Aleve
chiro
walk
no dairy (casein sensitivity), limited eggs
future: humira, soon I hope

Top
#475910 - 08/28/12 09:20 PM Re: Fibro Fog and A.S. [Re: Pea]
samzee Offline
Ninja_AS_Kicker

Registered: 02/06/04
Posts: 816
Loc: Northern Manitoba/Huntsville, ...
Sure do Pea! It's a rather disturbing thing when I have no idea about things I should have an idea about and misplace the car keys for the 5th time that day!
_________________________
Samantha

A.S.
Fibro
Undiagnosed Chronic Fatigue

Live like nobody is watching, Love until you can't and Travel to the moon & back

Top
#475933 - 08/29/12 12:15 PM Re: Fibro Fog and A.S. [Re: Pea]
NewNormalCharity Offline
Third_Degree_AS_Kicker

Registered: 03/30/11
Posts: 271
Loc: Blenheim ON CANADA
yes and worse with Pain. and it cycles out of control if i get depressed too. Was getting worse and worse and worse because of right side so painful with apparently spasmed muscles. and frustration at inability to do anything. and trying to talk to husband sometimes I felt ... well "special" and couldn't articulate.
Got pain under control and it helped. Also having a <3 to <3 with him and having him explain what he sees helped.
I still feel the need to shout out my accomplishments to keep depression from creeping back in.

I have found that i am using the wrong spelling alot! and I used to pridemyself on being a pretty good speller, and cracked at my mom when she would spell totally wrong so much so they were other words (not even sound the same) so Spell check didn't notice. I blame her upbringing of Charlie Farquason for that though :-)

Humor helps. My husband and I have a running joke about Appliances. When we were moving everything became the "dishwasher" or microwave. still happens today.

But I feel for ya Pea and hope you are feeling and thinking better soon.

As far as wrong words, a friend of mine posted something funny his son "a healthy individual" said. : Sun catcher. he meant Solar Panel but couldn't think of the correct tearm. and he is young man in his early 20's and should have no excuse. So it happens to the best of us. but its nice to have something to blame.


Edited by NewNormalCharity (08/29/12 12:18 PM)
Edit Reason: forgot something
_________________________
Diagnosed Fibromyalgia 2004
Diagnosed Ankylosing Spodylitis Sept 2011.
Vertigo Since October 21 2012
Humira June 2012
Spending Each day using it to the full to help people in my community have hope, the only hope that keeps me going despite pain and fatigue every day most of the day.

Top
#476153 - 09/01/12 07:25 PM Re: Fibro Fog and A.S. [Re: Pea]
Pea Offline
Gold_AS_Kicker

Registered: 02/24/11
Posts: 1531
Loc: Pacific Northwest
Thank you guys. I didn't know if it was the usual fog or if some of the pain from the A.S. was triggering it because I wasn't having too much Fibro pain at the time but my spine was screaming.
_________________________
Pea
Diagnosed with A.S. 26 year's ago.
Diagnosed with Fibro 9 year's ago.
Sulphasalazine, Folic Acid, Remicade

Top



Who's Online
5 registered (MaryL, bettyrawker, aussiegirl, Pezami, Kleb_Slayer), 19 Guests and 1 Spider online.
Key: Admin, Global Mod, Mod
Recent Posts
Which ice cream manufacturers are safe?
by MaryL
18 minutes 2 seconds ago
Is soy lecithin a starch??
by MaryL
24 minutes 51 seconds ago
Any tips on fighting fatigue?
by Kcc6487
Today at 07:19 PM
Help
by simon909
Today at 06:10 PM
New Update, Broken Hand
by aussiegirl
Today at 03:21 PM
It's ONE of those days!!
by CentralGAGal
Today at 08:39 AM
Fairy Sue from Cairns Australia
by Fairy_ASKicker
Today at 08:03 AM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 8589727
Has anyone had Pedicle subtraction Osteotomy ? 346644
hmmm 267072
What to do about healthcare? Can it be fixed? 210607
THE STARCH CONTENT OF FOODS - THE LIST 153583
A.S and beds, What do you find best? 148089
User names revisited 139410
No/Low Starch Diet Success Stories 123766
Medicinal Marijuana 123588
OMG!!!! 121357