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#466371 - 04/02/12 12:41 PM intimacy and AS
DocRox Offline
Member

Registered: 03/18/12
Posts: 42
Loc: Canada
just wondering how people are dealing with being intimate with their spouse? i am finding this very difficult due to the pain and physical limitations in my hips... any thoughts or words of wisdom? thank you!
_________________________
Dx with AS in 2000, after birth of my 4th child. Through hell & back with pain/immobility & out of control inflammation. (Vioxx was my BF)
Received healing from Jesus (spine is now UNFUSED!)
Homeopathics- amazing!
Rebuilding my body... some days I struggle, right hip is locked & flares the most, but God is good and I am alive!
Proteolytic Enzymes, Nutra- Fix Probiotics, Vit C, D3, E,
B complex, KappArrest and BioAllay (Biotics Research) for pain and inflammation
Low dose naltrexone, NSD

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#466375 - 04/02/12 02:02 PM Re: intimacy and AS [Re: DocRox]
Pea Offline
Captain_AS_Kicker

Registered: 02/24/11
Posts: 1968
Loc: Pacific Northwest
Mig, can we move this to the women's forum???
_________________________
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013

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#466415 - 04/02/12 09:49 PM Re: intimacy and AS [Re: DocRox]
inkyfingers Offline
Gold_AS_Kicker

Registered: 04/08/09
Posts: 1595
Loc: Melbourne, Australia
There was quite a good thread on this maybe a year ago? Could have been in the Women's Forum - so you'll need to ask the mods to access that area if you haven't already....
_________________________
Louise

Happy to be a physio by day, not happy to be a Spondy 24/7! wink3

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#466491 - 04/03/12 05:56 PM Re: intimacy and AS [Re: inkyfingers]
DocRox Offline
Member

Registered: 03/18/12
Posts: 42
Loc: Canada
thanks Inkyfingers, i did not know there was a woman's forum, Pea told me to ask to get on that group, so thank you to both of you! there is a lot to learn on this group... feel a bit lost. i am sure it will get easier to navigate!
_________________________
Dx with AS in 2000, after birth of my 4th child. Through hell & back with pain/immobility & out of control inflammation. (Vioxx was my BF)
Received healing from Jesus (spine is now UNFUSED!)
Homeopathics- amazing!
Rebuilding my body... some days I struggle, right hip is locked & flares the most, but God is good and I am alive!
Proteolytic Enzymes, Nutra- Fix Probiotics, Vit C, D3, E,
B complex, KappArrest and BioAllay (Biotics Research) for pain and inflammation
Low dose naltrexone, NSD

Top
#469241 - 05/10/12 07:16 AM Re: intimacy and AS [Re: DocRox]
nat5150 Offline
Active_Member

Registered: 11/18/11
Posts: 74
Loc: ON, Canada
where is this women's forum? I've looked everywhere cant seem to find it. I to would love info on this said topic. smile
_________________________
When you live with chronic pain, you never tell the truth. When someone asks you how you are or how you feel, you lie & say, I'm fine or I'm OK, & you smile.

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#469398 - 05/11/12 11:03 PM Re: intimacy and AS [Re: nat5150]
jessxo Offline
Third_Degree_AS_Kicker

Registered: 05/20/08
Posts: 285
Loc: NJ (trying to escape somewhere...
Hello. I suggest you can reach out to one of our site administrator/moderators for access. It is private so you must be given access by request.
Good luck!
_________________________
Dx'd AS (seronegative spondylarthopathy), Fibromyalgia 8/2007
Be happy for this moment... This moment is your life.





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#471418 - 06/08/12 11:40 AM Re: intimacy and AS [Re: DocRox]
kushagra9120 Offline
Active_Member

Registered: 06/07/12
Posts: 52
Loc: india
The only solution is practice yoga that strenthen your back muscles and increase your ability to be more flexible. yoga is best and effective way.. you will see good result .. be gentle and slow when you start the program.. believe me it will do wonders..
_________________________
Life is 10% what it happens to you,
And 90% how you respond to it.............
http://mypartnerspondylitis.blogspot.in/

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#471439 - 06/08/12 09:03 PM Re: intimacy and AS [Re: DocRox]
SusanS Offline
New_Member

Registered: 06/08/12
Posts: 4
Loc: USA
Hi all! I am brand new here and to my disease...any tips? Thanks!

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#472197 - 06/23/12 04:57 PM Re: intimacy and AS [Re: DocRox]
Pea Offline
Captain_AS_Kicker

Registered: 02/24/11
Posts: 1968
Loc: Pacific Northwest
Relaxation is the clue for me. A hot bath before I go to bed and a wonderful husband to rub my back. Mornings, I am really relaxed so I wake up and send my husband a cute text. If you are on pain med's, take your pills and get in the tub while they are starting to work and then by the time you get out, you will probably feel better to be intimate. It helps to really discuss this all with your husband first and teach him how to be gentle. My husband loves it when I let him know what works and what doesn't.

I have Rhizotomies done in my Lower back and that really helps.
_________________________
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013

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#472392 - 06/27/12 09:57 AM Re: intimacy and AS [Re: DocRox]
Magician Offline
Copper_AS_Kicker

Registered: 09/21/09
Posts: 1251
Loc: Manitoba Canada
It is not just sex which is almost impossible with a partner but the leg cramps! Tried everything to NOT get any cramping. Impossible. frown

Climbing into a 'low' vehicle is impossible. Sitting in the backseat of a vehicle is also impossible.

Can't lie on left side. Have to sleep on two pillows.

Sucks.
_________________________
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Kyphoscoliosis

Previously told Mechanical Back 'Issues'. Hate this term!
Read my story here: http://www.ebrandon.ca/profile_blog.aspx?person_id=1051#1688

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