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#470650 - 05/28/12 10:29 AM Re: LDN negative side effect [Re: ValsMum]
danyhurts Offline
Fourth_Degree_AS_Kicker

Registered: 01/19/09
Posts: 318
Loc: New York, USA
Hi Valsmum,
Thanks so much. I appreciate you checking for me. I will also go to the roadback site. Trying to figure all this out is quite the puzzle!!!
Laurie

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#470654 - 05/28/12 10:54 AM Re: LDN negative side effect [Re: danyhurts]
drizzit Offline
Silver_AS_Kicker

Registered: 02/25/06
Posts: 1416
Loc: Montana
Laurie

here is the group I followed for awhile. It is focused on MS so I quit after awhile though.


http://health.dir.groups.yahoo.com/group...c=dir&slk=1
_________________________
No families take so little medicine as those of doctors, except those of apothecaries.

Oliver Wendell Holmes

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#470659 - 05/28/12 11:49 AM Re: LDN negative side effect [Re: danyhurts]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 19052
Loc: Upstate NY
i do not remember, but then again, i don't have issues with starch.

reading the LDN website just now, reading a suggestion to use either lactose or sucrose as filler, depending if one is lactose sensitive or not.

if i were you, i'd get the script from the doctor, then see if someone like Skip's Pharmacy (suggested on the LDN site) could fill it for you with something like sucrose as a filler.

or call around locally and find a compounding pharmacist who will take your concerns seriously.

someone who says "oh, that shouldn't be a problem." is clearly not listening to you. this is not a theoretically discussion on what should and shouldn't be a problem. this is a real discussion on trying to figure out what IS the problem.

stay strong! and be politely persistent! heart


Edited by Sue22 (05/28/12 11:49 AM)
_________________________


sue

USpA
LDN/zanaflex/flector
vits C, D. probiotics. fish oil. CoQ, Mg, Ca
pred taper for flares
occasional naproxen / Aleve
chiro
walk
no dairy (casein sensitivity), limited eggs
future: humira, soon I hope

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#470668 - 05/28/12 01:05 PM Re: LDN negative side effect [Re: danyhurts]
SJLC Offline
Iron_AS_Kicker

Registered: 02/16/10
Posts: 1046
Loc: CA, USA
sucrose sounds better than lactose as a filler, lactose can be similar to starch for those of us who don't digest it efficiently

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#470676 - 05/28/12 04:01 PM Re: LDN negative side effect [Re: SJLC]
danyhurts Offline
Fourth_Degree_AS_Kicker

Registered: 01/19/09
Posts: 318
Loc: New York, USA
ok thank you. We will ask the doctor for LDN with sucrose. Hopefully that will work.

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#470677 - 05/28/12 04:02 PM Re: LDN negative side effect [Re: Sue22]
danyhurts Offline
Fourth_Degree_AS_Kicker

Registered: 01/19/09
Posts: 318
Loc: New York, USA
Thanks again Sue. I will call Skipps Pharm and talk to them.

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#470678 - 05/28/12 04:03 PM Re: LDN negative side effect [Re: drizzit]
danyhurts Offline
Fourth_Degree_AS_Kicker

Registered: 01/19/09
Posts: 318
Loc: New York, USA
Thanks drizzit,
I'll check out that site. Great input!!

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