Good morning everyone

Well I finally got the go ahead for remicade treatment. My first infusion is wednesday and to be honest Im kinda scared and very excited all at the same time. It will be so nice to be able to move if this works I have had a very bad couple of months actually year but been real bad lately. Anyways the doctor called to explain and I was told to take benedryl and 2 regular tylenol prior to treatment. Now I understand the benedryl but the tylenol? Is this going to hurt? Also I have heard of people feeling rather ill after. How long and what kind of sick is it? It's funny I have been looking forward to this day now for awhile but now that its here Im freaking out. Desperation to feel normal again has led me down the biologic road a road I always said I wouldnt take but am now very open to it since everything else has failed . Any input, experiences and such would be great.
Hope everyone has a great day
Nat

Hi Nat,

I know some people get a fever with Remicade, so maybe that is what the tylenol is for.


Janet

Nat- I was on Remicade for awhile. I didn't think it hurt at all and had no bad reactions during the infusions. We are used to a great deal of pain so a little needle going in is no big deal. My sister is on Remicade for her AS now and she is very active with two kids and owning her own shops. She can go all day, and I am just amazed at how well it works for her.

Keep us posted. Pain relief for you will be coming soon with the help of Remicade .

Shari

i was on remicade gives you a headache to some people so they give you tylenol. i really had no problems with it intill doc. keep uping my dose. it gave me a sore throat for a couple of days or a sinus infection. not trying to scare you but it work for me for a while but they took me off of it for 5 months for other problems and they gave it back to me it stop working so i decided to do the diet and see if that works. but if you have any question ask the nurse they are pretty helpful if you are concern. if you want to can ask me any questions about it just email me and good luck hope it works for you. gina

Congratulations. I just had my 4th infusion and it is working great.. I don't take any meds other then the remicaid and I have no side effects other then a little tiredness nothing major.

Nat,
This might sound sad, but it is my favorite place to go anymore. I look forward to my infusions. The staff is the best and they make you so comfortable. I make my appt.s at 10:30 each time and they give me an awesome lunch.

They put in a small amount of steroid before they put in the Remicade and I haven't had any side effects. Well, I did, when they started but that was because they start you back to back and that gave me thrush but I took some Diflucan for 5 days and it was gone. When I started going every 6 weeks, it was all good.

Take a book or your computer. It's normal to be apprehensive when you haven't done it before but you will get used to it. Let us know how it goes.