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#468855 - 05/04/12 01:29 PM
LDN in near future :)
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Third_Degree_AS_Kicker
Registered: 12/01/10
Posts: 262
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I know some of you are on LDN. I saw a new doc today, who is an Immunologist. He wants to try me on LDN in a few months possibly. He said I can stay on Methotrexare too, if I need to. Anyone with experience taking both LDN and methotrexate? Also, he is treating my systemic yeast with anti-fungal medicine and taking me off Prednisone. Methotrexate is causing me some mild nausea, fatigue and insomnia but is helping my severe pain and bringing it down to mild-moderate so it is a trade off right now. I finally feel I have a good support system with the help of everyone on this site and my doctors. Thanks again guys for all the support  Shari
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Meds: injectable MTX, Simponi, daily hydrocortisone, pain meds, NSAIDs, Methylprednisone for flare ups, Armour thyroid
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#468856 - 05/04/12 02:20 PM
Re: LDN in near future :)
[Re: Winter]
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Very_Addicted_to_AS_Kickin
Registered: 01/13/08
Posts: 19020
Loc: Upstate NY
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not the two, just LDN right now,
but sounds like if we need to go on SSZ, can stay on the LDN.
we've talked about it. and that was the decision.
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  sue USpA LDN/zanaflex/flector vits C, D. probiotics. fish oil. CoQ, Mg, Ca pred taper for flares occasional naproxen / Aleve chiro walk no dairy (casein sensitivity), limited eggs future: humira, soon I hope
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#468858 - 05/04/12 02:24 PM
Re: LDN in near future :)
[Re: Winter]
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Very_Addicted_to_AS_Kickin
Registered: 01/21/04
Posts: 8601
Loc: Brittany, France (since Nov 08...
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Shari - That is terrif - he knew the LDN. WOW. I tried to see an immunologist over here, but my erstwhile GP scorned the idea... Was a good one as well - known to Ebringer! So am annoyed was stymied in going that route. Oh well. At least I do have a good rheumy in the UK.
I take just the LDN.
Best of luck with it all - when you get there, keep us posted as to how y're doing with the LDN.
Go well -
_________________________
MollyC1i - Riding OutAS
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#468859 - 05/04/12 02:30 PM
Re: LDN in near future :)
[Re: Winter]
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Veteran_AS_Kicker
Registered: 05/29/10
Posts: 538
Loc: Scotland
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how are you folk gettin' on wae the LDN?
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nope,not interested in the NSD or fasting,thanks very much
hemorrhoids
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#468860 - 05/04/12 02:35 PM
Re: LDN in near future :)
[Re: Winter]
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Veteran_AS_Kicker
Registered: 05/29/10
Posts: 538
Loc: Scotland
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ps does it have any other benefits like reducing CRP levels fer instance?
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nope,not interested in the NSD or fasting,thanks very much
hemorrhoids
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#468862 - 05/04/12 03:19 PM
Re: LDN in near future :)
[Re: Winter]
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Very_Addicted_to_AS_Kickin
Registered: 01/21/04
Posts: 8601
Loc: Brittany, France (since Nov 08...
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Never had raised CRP levels (not a perquisite). So don't know. But do know that I could stop taking NSAIDs incl COX-2 inhibitors! LDN, no side effects. NSAIDs + COX-2 = very many side effects including triggering NTG (no tension glaucoma).
LDN helps me cope with the inflammation of the spine and helps control gut probs. Doing a good job.
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MollyC1i - Riding OutAS
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