I'm not sure if my problems are like the ones you have, but I have a lot of problems with mine, I'll try and explain, maybe it's similar in some way.
Mine started 16 years ago, and initially I got a clicking sound similar to the one you get when you equalize pressure after a flight or if you have a large change in altitude. Started on on side, then rapidly came on the other. Took me a long while to realize that my jaw and my ear problems were linked.
"clicking noise" that goes off by itself, but I can also to some degree make it happend; If I relax my jaw by will, they will go off more.
Jaw pain (took longer for that to set in and has gotten worse in the years.)
Feeling of soreness in the ears and the area around the ear. (I once became visibly swollen below and around one ear.)
Clicking sound will at times be painful too, but mostly is just an annoyance I dont notice anymore apart from when its worse than usual.
Jaw more painful and sore = ears the same, and the other way round. Clearly linked.
Jaw has developed cracking noises after all these years, a lot more the last 2 when the spine pains set in. They crack if I open too much, if I strain the muscles, and lately also when I open my mouth, if I have been quiet for a while. (Luckily I rarely are :p) If I do not provoke the cracking now and then by stretching my jaw muscles, the jaws become painful.
When the ears go real bad, it sometimes affect my balance. It took me ages to realise this, I was told it was anxiety. I knew it was possible to get a virus on your balance nerve, and that makes you unable to stand, I just never had thought that an inflammation could do something inbetween normal and balance cut. These episodes are unpleasant, but knowing what they are, it's a lot better to deal with. Actually affecting balance AND coordination is a better description.
Feeling of "fulness" in the ear
I get better for prolonged periods of time. (Should be good to know)
I've tested for sinusitis, and it's not that, but it has in time spread to affecting my sinuses. Just plain feels like inflammation there too.
I sleep with a teeth guard to spare my teeth, as I grind my teeth a lot in sleep. That makes my jaw feel better too. Dentist makes them.
And the good news part:
Even after 16 years of this, and even though it affects balance in periods, it has NOT done permanent damage to balance or hearing. I get regular hearing tests at work and mine's perfect. I cant say I think the same is the case for my jaw joints, but meh; I can live with that just fine
Not sure if that helps or is similar at all, but I hope it could answer some questions Seb?