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Max Online: 312 @ 11/11/12 01:26 PM
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#467340 - 04/14/12 08:07 PM Hello to my peoples
Kancie Offline
Third_Degree_AS_Kicker

Registered: 11/30/11
Posts: 256
Hi guys! Hoping everyone is feeling well. smile My shoulder is still frozen pretty solid, though pt says I am making progress though some days I don't feel it. Eyes are trying to flare with all this pollen, but I'm fighting it.

I haven't been in because frankly it hurts to be online. I very much WANT to spend all day here, and if I go poking my nose about, I certainly will. But being online is very uncomfortable arms wise. So I have avoided checking in, but I miss you all very much!

I am still doing fantastically on the NSD, and still a rather poor cook. smile I will try to check in more often, but not with the usual thread volume that I'm generally capable of.

LOVE!!!
_________________________
Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.

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#467346 - 04/14/12 08:26 PM Re: Hello to my peoples [Re: Kancie]
gbash Offline
Decorated_AS_Kicker

Registered: 10/09/08
Posts: 725
Loc: Oklahoma
Kancie, I'm glad you checked in. I hope your shoulder starts to get better. It's also good to hear that the NSD is doing well for you. Keep up with the effort!

--Greg
_________________________
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Now getting good results with no-starch diet.

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#467349 - 04/14/12 08:48 PM Re: Hello to my peoples [Re: Kancie]
ValsMum Offline
Senior_AS_Kicker

Registered: 07/05/10
Posts: 942
Hello Kancie,

Sorry your shoulder hurts, that was my first arthritis pain/symptom and I could not lift it or move it and getting dressed was something to be seen. Glad the NSD is working well for you, its helping me too and gives me hope.
We miss you too!!!

take care!
_________________________
Rheumatoid Arthritis

I feel better with the NSD for my lower back pain and The Gerson Therapy has really helped my joint pain/RA.
www.gerson.org

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#467350 - 04/14/12 08:52 PM Re: Hello to my peoples [Re: Kancie]
DragonSlayer Offline
AS Czar

Registered: 09/05/01
Posts: 5134
Loc: So Cal (high chaparral)
Hey, Kancie:

I had frozen shoulder and "adhesive capsulitis," and I did PT on my own: Very heavy dumbells (weights), and small circles parallel with floor. As my shoulder relented each a little more each week, the circles got bigger until I was able to do full-range, but even after that, I was unable to lift my arm too far above my head.

Hope You resolve this quickly--and get out and stay away from that inflammation.

HEALTH,
John
_________________________
HANLON'S RAZOR: Never attribute to malice that which can be explained by stupidity.

Important AS Resources

RED ARROW --> Philippines

Professor Ebringer: On Diet and AS;


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#467355 - 04/14/12 09:11 PM Re: Hello to my peoples [Re: Kancie]
Kancie Offline
Third_Degree_AS_Kicker

Registered: 11/30/11
Posts: 256
Thanks for the well wishes! You see I've already spent well over an hour here, reading and replying a bit. smile

This is my second battle with adhesive capsulitis. First the right shoulder now the left. I have to say the left is far worse. I didn't have much pt with the right, and it was 3 years before I had any real range of motion back, even doing exercises for it at home. Then a few months after feeling better - BAM left shoulder.

The first round, all I heard was, "We don't know what causes this. Women get it more than men. Diabetics get it." This time I have heard that, however I have very attentive physical therapy treatment this time, with both doctor and therapists HEARING me when I say that I have encountered many others here with AS who have also had recurring frozen shoulder. They are interested in a connection between arthritis and FS, and try many types of therapy and pain management. It is refreshing to be a part of my own recovery.
_________________________
Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.

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#467359 - 04/14/12 09:21 PM Re: Hello to my peoples [Re: Kancie]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 19040
Loc: Upstate NY
hi, good to see you here! smile

when i'm in pain so that sitting at a desk on a computer is hard, i'm glad i have my little mac book air with wireless. i sit in my recliner with a heating pad on with the MBA on my lap, arms close to my body and down. and a very ergonomically "correct" keyboard. makes being on a computer much easier. unless of course the thumbs, fingers, or wrists are flared. otherwise, these little computers can help.

of course there are sometimes when nothing really works. so if its one of those times, hope you are feeling a bit better soon smile
_________________________


sue

USpA
LDN/zanaflex/flector
vits C, D. probiotics. fish oil. CoQ, Mg, Ca
pred taper for flares
occasional naproxen / Aleve
chiro
walk
no dairy (casein sensitivity), limited eggs
future: humira, soon I hope

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#467364 - 04/14/12 09:45 PM Re: Hello to my peoples [Re: Kancie]
Kancie Offline
Third_Degree_AS_Kicker

Registered: 11/30/11
Posts: 256
I have a pretty big lappy, Sue... but I do have a good lap table for it. What I don't have, that I feel would REALLY help me, is a recliner. I would LOVE to have a recliner.

Propped on the couch with the lappy just isn't the same, and still strains my neck and shoulders. My hands have been irritated as well. I do feel getting ergonomically correct would give me a lot more time online.I guess I should price chairs!
_________________________
Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.

Top
#467384 - 04/15/12 01:01 AM Re: Hello to my peoples [Re: Kancie]
SJLC Offline
Iron_AS_Kicker

Registered: 02/16/10
Posts: 1046
Loc: CA, USA
Sorry to hear you're having this trouble. I'd be climbing the walls (figuratively...) and in deep trouble job-wise if I ever had to stay offline very long. That's one of the things that spooked me most about iritis, lying in a dark room imagining having to learn a braille terminal...

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#467415 - 04/15/12 10:07 AM Re: Hello to my peoples [Re: Kancie]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 8601
Loc: Brittany, France (since Nov 08...
I did respond to this - but dunno where I put it...! Sheesh gotta take some 'K' is all I can suggest...<LOL> http://onlinelibrary.wiley.com/doi/10.10...tomisedMessage=

Hi Kancie - nice to see you - but not good to hear about the rotten shoulder problem. (John's 'circles' could well help - but no weights to start with, OK?) Take care gal -
_________________________
MollyC1i - Riding OutAS

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#467421 - 04/15/12 11:11 AM Re: Hello to my peoples [Re: Kancie]
Pea Offline
Gold_AS_Kicker

Registered: 02/24/11
Posts: 1539
Loc: Pacific Northwest
clap Hi Kancie,
I was asking about you in the shout box. Wondered where you went to. Glad that you checked back in. So sorry you are still having problems with that arm. I know it takes awhile. Happened to my sister too. We miss you! Be well and God Bless.
_________________________
Pea
Diagnosed with A.S. 26 year's ago.
Diagnosed with Fibro 9 year's ago.
Sulphasalazine, Folic Acid, Remicade

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