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#467322 - 04/14/12 05:05 PM
Re: At a total loss...
[Re: Michelle70605]
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New_Member
Registered: 04/14/12
Posts: 8
Loc: Wales (United Kingdom)
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Michelle,
I am new to the boards - but just wanted to pass on my best wishes to you and yours and hope that you get a lucky break!
All the best and see you about,
Geo.
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#467405 - 04/15/12 08:14 AM
Re: At a total loss...
[Re: Farinelli]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6215
Loc: Louisiana
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Sorry to hear that the hands & wrists are giving you trouble...  I had strange feelings, much like you describe, in my legs a couple of years ago...feel better soon, Craig... 
_________________________
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#467406 - 04/15/12 08:16 AM
Re: At a total loss...
[Re: Geo]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6215
Loc: Louisiana
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Thank you so very much Geo...and welcome to KA!!!  It's a great place, full of wonderful people and tons of support & information!!! 
_________________________
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#467410 - 04/15/12 08:45 AM
Re: At a total loss...
[Re: Michelle70605]
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First_Degree_AS_Kicker
Registered: 09/07/11
Posts: 160
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Michelle,
My brother finally came through this is what he said:
"take what you want to eat and add milk (I would use what ever milk you use ie, coconut, almond), blend in blender. That’s all I did, you name it, blend in blender with milk. "
He told me he would take anything, roast, burger, et el and blend...If it was me I would try one thing at a time...
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Where your mind goes your life follows
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#467412 - 04/15/12 09:50 AM
Re: At a total loss...
[Re: Michelle70605]
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Very_Addicted_to_AS_Kickin
Registered: 01/21/04
Posts: 8610
Loc: Brittany, France (since Nov 08...
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'Blech' - <LOL> Only a bloke! Roast, burger, the lot, stuff in blender an add milk...Yea *Trying to 'imagine' what the result might taste like...!!
Michelle - awaiting with bated breathe - glad there is a watery divide in between... (Alida, the best larf of the day gal -)
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MollyC1i - Riding OutAS
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#467434 - 04/15/12 12:50 PM
Re: At a total loss...
[Re: MollyC1i]
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First_Degree_AS_Kicker
Registered: 09/07/11
Posts: 160
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'Blech' - <LOL> Only a bloke! Roast, burger, the lot, stuff in blender an add milk...Yea *Trying to 'imagine' what the result might taste like...!!
Michelle - awaiting with bated breathe - glad there is a watery divide in between... (Alida, the best larf of the day gal -) I know MollyC1i....but he had his jaw wired shut for something like 3-6 months and gained 15 or so pounds, so I thought I would ask him for the recipes he used....little did I know what he would tell me.
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Where your mind goes your life follows
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#467436 - 04/15/12 12:55 PM
Re: At a total loss...
[Re: Michelle70605]
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Very_Addicted_to_AS_Kickin
Registered: 01/21/04
Posts: 8610
Loc: Brittany, France (since Nov 08...
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Awww shoot, poor guy. Miserable for him. But, hmmmmm. Why not juice the meat separate from the milk - like have 'shakes' in two meals... Fellas. Tell ya <LOL> (But better than my nephew who is fed on a spigot, can't taste owt as unable to swallow. Nasty).
Take care -
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MollyC1i - Riding OutAS
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#467475 - 04/15/12 05:17 PM
Re: At a total loss...
[Re: MollyC1i]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6215
Loc: Louisiana
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(Alida, the best larf of the day gal -) ...I have to agree!!! 
_________________________
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#467477 - 04/15/12 05:19 PM
Re: At a total loss...
[Re: Alida1]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6215
Loc: Louisiana
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....little did I know what he would tell me. ... 
_________________________
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#467571 - 04/17/12 01:09 AM
Re: Pain, pain & more pain...
[Re: Michelle70605]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6215
Loc: Louisiana
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...tomorrow will make 2 weeks since my last Enbrel & Methotrexate injections and my body is just screaming...  (wow, you weren't kidding, rumble!  )...I have Oxy on hand for breakthrough pain but I haven't taken it yet...I'm just miserable, my fever is spiking again and I can't get this pain under control... I was okay but a weather system moved in last night and I think it kicked off this flare...even though the meds were prescribed together, I don't know if you are supposed to take them at the same time or space them out, I took my hydrocodone about 2 hours ago, I called the 24hr Walgreens but had to leave a message after holding for 20 minutes, they must be really busy...I'm just praying the pharmacist calls back and tells me that I can go ahead and take it...
_________________________
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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