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#467279 - 04/14/12 09:51 AM
MRI shows MS
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New_Member
Registered: 11/07/11
Posts: 18
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I'm in the hospital right now, they wanted to get things under control and me being in a central location lots of
dr. have access to me. They did a spinal tap to confirm but they are pretty sure. Anyone know a good place to go for info similar to this?
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live life for today, not tomarrow, or yesterday
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#467281 - 04/14/12 10:08 AM
Re: MRI shows MS
[Re: mommyperks]
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Very_Addicted_to_AS_Kickin
Registered: 01/21/04
Posts: 8654
Loc: Brittany, France (since Nov 08...
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MS Associations and also check out www.lowdosenaltrexone.orgRotten Dx to be given - is this medication related? Positive vibes to you -
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MollyC1i - Riding OutAS
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#467293 - 04/14/12 11:52 AM
Re: MRI shows MS
[Re: mommyperks]
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Decorated_AS_Kicker
Registered: 10/09/08
Posts: 728
Loc: Oklahoma
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Bummer, bummer, bummer. Check out the following: MS World - Good community MS Association of America - Good society National MS Society - The marketing center for big pharma --Greg
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AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Now getting good results with no-starch diet.
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#467300 - 04/14/12 01:00 PM
Re: MRI shows MS
[Re: mommyperks]
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Third_Degree_AS_Kicker
Registered: 12/01/10
Posts: 280
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I'm so sorry- life is just not fair sometimes. I don't know of any websites but can help with any therapy questions you may have. I am an Occupational Therapist.
Glad to hear you are in good hands in the hospital and hope each day gets a little easier.
Shari
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Meds: injectable MTX, Simponi, Prednisone
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#467304 - 04/14/12 01:42 PM
Re: MRI shows MS
[Re: mommyperks]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6217
Loc: Louisiana
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mommyperks...I'm so sorry you're going through so much, I hope your doctors are able to get you on a good treatment plan and get things under control soon, big hugs... 
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Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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#467311 - 04/14/12 02:50 PM
Re: MRI shows MS
[Re: mommyperks]
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Superior_AS_Kicker
Registered: 07/05/10
Posts: 973
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I am so sorry to hear this, I will pray for you and I hope you get better. I hope your symptoms get better. How is your pain? How is your numbness? Are you walking ok ?Did you have numbness in your legs for weeks or months before all this started or was it sudden? I know this must be really hard being a mother. I am a mother too and it takes all our time. Ask for help and don't be ashamed to ask for help, that is what family and friends are for. I hope the best for you.We are here if you need us.
Take care.
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NSD relieves a lot of my si joint pain. "Fat, Sick and Nearly Dead" A documentary about a man that overcame his autoimmune disease with juicing 100% fruits and veggies. You can watch it for free on www.hulu.comwww.gerson.org
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#467317 - 04/14/12 03:45 PM
Re: MRI shows MS
[Re: mommyperks]
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New_Member
Registered: 11/07/11
Posts: 18
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Thanks everyone, the numbness started 3 weeks ago. I am walking like a drunk, lurching around which has hurt my back. I have been on Humira but they ordered me to stop. I would have done the injection yesterday.Pain is not to bad though. YET 
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live life for today, not tomarrow, or yesterday
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#467375 - 04/14/12 10:55 PM
Re: MRI shows MS
[Re: mommyperks]
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Superior_AS_Kicker
Registered: 07/05/10
Posts: 973
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I just wanted to pass on an MS diet that had very good results in France. The French doctor's name is Dr. Jean Seignalet. I don't have a link but you can find different things about his diet and patient success by googling. Some cases are a 100%.
His diet is as follows:
1. Exclude animal milks 2. Exclude modern grains, he said a few are acceptable such as rice & quinoa 3. Avoid products cooked over 110 C and processed foods 4. Use virgin oil 5. Consume organic produce
I know it sounds extreme, but I couldn't help give you the info, do with it what you will. Hope this all goes away for you soon,take care.
_________________________
NSD relieves a lot of my si joint pain. "Fat, Sick and Nearly Dead" A documentary about a man that overcame his autoimmune disease with juicing 100% fruits and veggies. You can watch it for free on www.hulu.comwww.gerson.org
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