banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Kickas Links
·HOME
·Forums Main Index
·Register!
MEDICAL CENTRE
·Medicine Contract
·AS Patient Guidebook
·Pain Map
·Disease Modification
·Ask your doctor
·AS and RA Papers
·AS Acronyms
DIET CENTRE
·London AS Diet
·Molecular Mimicry
·AS Dietary Primer
·AS Food Guide
SUPPORT CENTRE
·In Memorium
·KickAS Stories
·KickAS Banners
·Donations
Forum Stats
9924 Members
28 Forums
40200 Topics
487819 Posts

Max Online: 312 @ 11/11/12 01:26 PM
Newest Members
photog, elainemedeiros, Gb57, Jar, PaoloSoares
9924 Registered Users
KickAs Team
Chief Administrator:
Melinda (mig)
Administrator/owner:
John (Dragonslayer)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
- Tim (Dotyisle)
- Chelsea (Kiwi)
- Megan (Megan)
- Wendy (WendyR)
- John (Cheerful)
- Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
Page 2 of 2 < 1 2
Topic Options
#464503 - 03/07/12 09:41 PM Re: Newbie to AS - Hi all [Re: elmerfudd]
Pea Offline
Gold_AS_Kicker

Registered: 02/24/11
Posts: 1539
Loc: Pacific Northwest
Me either Elmer. I don't know what a spider is either!
_________________________
Pea
Diagnosed with A.S. 26 year's ago.
Diagnosed with Fibro 9 year's ago.
Sulphasalazine, Folic Acid, Remicade

Top
#464504 - 03/07/12 09:43 PM Re: Newbie to AS - Hi all [Re: DragonSlayer]
Pea Offline
Gold_AS_Kicker

Registered: 02/24/11
Posts: 1539
Loc: Pacific Northwest
Dragonslayer,

Wow, thank you for that list. I love to eat and cook East Indian food. I have been doing without. I am going to print that out! Yea!!!!!
_________________________
Pea
Diagnosed with A.S. 26 year's ago.
Diagnosed with Fibro 9 year's ago.
Sulphasalazine, Folic Acid, Remicade

Top
#464546 - 03/09/12 06:42 AM Re: Newbie to AS - Hi all [Re: KiwiEmily]
drramakrishna Offline
New_Member

Registered: 03/05/12
Posts: 5
Loc: hyderabad,india
thanks john....yesterday i went to rheumat again....advised some spinal exercises and swimming everyday...2months back i suffered from neck pain with 12th nerve palsy for which ct scan and mri,pet scan are taken..dey found some idiopathic inflammatory lesion at cranio vertebral junction..for this my physician started anti tubercular therapy as it is most common infection in my country...he said it might transmitted during my tb ward postings...
as im on anti tb therapy i cant use biologicals now..:(

Top
#464550 - 03/09/12 07:13 AM Re: Newbie to AS - Hi all [Re: DragonSlayer]
drramakrishna Offline
New_Member

Registered: 03/05/12
Posts: 5
Loc: hyderabad,india
thanx john...even i wll try to go for NSD...its very difficult for ppl like us where the food contains more of starch...mean while i wll also start with more milk,and morning sunlight with suryanamaskar....hope for de best..:)

Top
#464753 - 03/12/12 09:17 PM Re: Newbie to AS - Hi all [Re: Michelle70605]
marta Offline
New_Member

Registered: 03/10/12
Posts: 18
Loc: Hawaii
Hi to all! I'm new to KickAS (just registered Friday) but not new to AS. I've peeked at many of your posts trying to learn what I can, but I still have some questions. Oh, I bought Carol Sinclair's book too - great reading and am hopeful it will turn my life around.

Michelle, I see you have a lot of the same symptoms as me - I've never known another person with thoracic outlet syndrome. Did you have surgery for it too?

In my teens I had general overall leg aches and, as I approached my 22nd birthday, my heel bones became inflamed and I developed bursal sacs between the heel and tendon. I had surgery for that. Was not yet diagnoised with AS at that time, and now years later I know the surgery was not necessary.

Then came surgery for thoracic outlet syndrome-both sides. By then I also had mild psoriasis and unbearable knee pain with occasional hip pain. I spent the next several years on crutches, off and on.

About 10 years ago, my eye doctor was treating me for Episcleritis, and as he is a well-read man, suggested that I probably had AS. He referred me to a rheumatologist specialising in AS who did all the the tests and xrays. He found that I am HLAB27 positive with the classic changes in the sacroiliac joint. For the first time in my life nobody was telling me that my pain was "all in my mind" or that I was "depressed". I can't begin to tell you what a relief it was to finally know what was causing all my various pains and bone problems -- and to know that I wasn't a hypochoidriac!

I'm almost finished reading Carol Sinclair's book and was wondering if anyone with symptoms similar to me has had good success in staying psoriasis-symptom-free with this low/no starch diet.

I'm currently taking Methotrexate, Folic Acid and Mobic (Meloxicam). I would love to stop taking Methotrexate & Mobic but am afraid to because I don't want to have Psoriasis and bad pain again. After only 2 doses of Methotrexate the psoriasis completely cleared up. My level of pain varies from month to month and it also varies in location. Do you think I can be symptom free on this diet?

Also, Methotrexate is supposed to slow down progression of AS so that's another concern if I stop taking it. On the other hand, I am afraid to take this drug for the rest of my life because of possible bad side effects.

I sort of have a plan and would like to know if this sounds about right: 1) taper off Methotrexate over a period of 6 months or so. 2)at the same time, go starch-free on the diet.
I don't know if this is the right way to do it. My theumatologist is not on board with the diet so I am on my own.

Sorry this post is so long - just wanted to give you a little background so you'd understand what I'm after. I'll keep it short next time.

It's so good to know there's somebody out there that 'gets' me and how I feel. Many thanks to those who contribute all the good advice and kind words.

Any thoughts would be welcome.

Warm aloha to all -
Marta
_________________________
Marta

Diagnosed 2002
PsA
Enthesitis
Episcleritis
Methotrexate-Mobic-Folic Acid

Top
Page 2 of 2 < 1 2



Who's Online
2 registered (Charles, ThatGuy), 21 Guests and 2 Spiders online.
Key: Admin, Global Mod, Mod
Recent Posts
Prayers Requested
by Possi
05/20/13 04:19 PM
feel like I am going to pass out often.
by elmerfudd
05/20/13 04:04 PM
Appointment at last!
by Sonia38
05/20/13 12:44 PM
Salt Triggering Autoimmune?
by brianzajac
05/20/13 12:43 PM
potato extract in Healthy Trinity
by bcho1971
05/20/13 10:49 AM
Flare lengths???
by kmu
05/20/13 10:43 AM
Happy Birthday 'Angelmom'
by sherri
05/20/13 10:10 AM
(Views)Popular Topics
"FITNESS" TEAM! - All Physical Activity & Sports 8664508
Has anyone had Pedicle subtraction Osteotomy ? 348493
hmmm 269292
What to do about healthcare? Can it be fixed? 211552
THE STARCH CONTENT OF FOODS - THE LIST 153855
A.S and beds, What do you find best? 148817
User names revisited 140202
Medicinal Marijuana 124072
No/Low Starch Diet Success Stories 123999
OMG!!!! 121994