Kickas.org Forums Ankylosing Spondylitis General Discussion Friends and Family Support Group What is wrong with me?

Ron,
How did your brain scan go? Any result's yet?

Pea

Pea,
The Dr. said that he thinks my blood pressure has caused the white matter (deadcells). But they are doing more blood work and will have more exrays in the future- for comparision.
They may begin the memory tests..
Thanks for asking.

How is your hubby? and how are you feeling?

Thank's for the update my friend. Wow, I didn't know that blood pressure could do that. I guess you find out those thing's when they happen to you. I am so sorry that you have yet another thing to worry about. Praying for you Ron.

Thank's for asking about my husband and I. We are still waiting for our marriage counselor to get back from a family emergency. It should be another week. It is hard but we are trying to turn it over everyday to the Lord. I am having residual pain from the 4 Rhizotomy's in my rib's that I had two week's ago. It should be just a couple more week's before I find out if it worked at all. It is alway's a waiting game isn't it?
You hang in there and know that you are prayed for.
Pea

Pea, hugs on that rhizotomy pain. Understand completely. It's 3 weeks since bilateral rhiz on SI joint for me. Major ouch is down to dull ache. Next week she's doing lumbar spine. Stay strong on the marriage stuff. With work, you both can change and stay together. Hope you are both up to it. Big hugs for that.

Lon, hugs to you, too.

Beloved,
Had a great time in Philly, with daughter and family.
I do not have an update on my brain. He said there was no rush and no urgent emmergency. I am getting more forgetful. But keep on doing what I think is some important work!!
Like many of you I am in more pain than I could have imagined. But what choice do we have.
Lin wants me to try for disability....

Please let me know what is going on with you.

It hurts to get up and move, but it hurts worse to just sit there. Thanks for reading.
agape'
Lon

Glad you had a great time with your daughter. How cool that you got to visit. Long trip, too. Bet you are tired....but that 'good' kind of tired when you get to see family.

DH is doing okay. His PSA continues to drop, but he's had some problems with depression and thinks it's time to make a change of meds. He's got an ankle problem, too. I need to make him an appt soon. I've got nerve pain in one leg and one arm, prob a nerve entrapment, but rheumy told me to stop the Enbrel for now. And it was working.... <sigh> I've got an appt for the leg/arm pain next week. MRIs in the future, most likely. It never ends, does it?

Good to hear from you. You SHOULD try for disability. It will protect you, since you are largely self-employed as a minister, right?

Rumble,
why stop Enbrel.? is that the side affect?
I know more of us are depressed. I am not sure why, but I sure do not want to go back to the days without cymbalta.. Occasionally I get the painful dark pressure( thismorning) and I remember those years when it was so loneliy...

my head check is 12 / 21/ 11 but no emmergency.
agape'
Lon

Rheumy wants me to stop Enbrel until the source of the nerve pain is found. I figure it's a nerve pinch, thus not the fault of Enbrel, but Enbrel is linked to a cause of MS, so it's prudent to stop while the cause is investigated. Nerve pain truly sucks. Hugs to you, Lon. Hope your checkup goes well. Stay in the light.

rumble,
I must have been getting this crap in the mid 60's when i GOT SICK. Because they do not think all the brain spots are new. And when I took methotrexate, I got such a headache i WANTED TO DIE.
DR. KEPT TELLING ME TO STAY ON IT.
Thursday, I drove to the hospital, where my Dr. has a clinic, there two hours and then they called Lin, saying I could not drive home. more confusion, pain and massive head ache. I sure hope they can help you.

Keep me posted, I care.

Sorry you couldn't drive. Can you get to your church without driving? Is this confusion happening a whole lot? I wish they could help you quicker. It seems everything takes so long. Hugs to you, Lon. (Like that new line in your sig...'look to the end.' The prize, for sure.)