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#452110 - 09/15/11 01:18 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: Carol61]
deniD Offline
First_Degree_AS_Kicker

Registered: 06/11/11
Posts: 156
Loc: uk
Thank you all xxx LOVE MY NEW FRIENDS smile LOL x Paon only about a 1/2 this morning the antinflamms must of kicked in :0 not going to do anythign stupid today to end up back to square 1 smile you lot are so helpful honestly lve never met as amny people as me with the same crap going on! I went to a fibro group cos doc said fibro years ago and noone had the same symptoms as me other than the horrible exhaustion and the odd muscle spasm they looked at me like l was nuts about the chest stuff... l stopped wearing an underwired bra years ago the pain from them was really bad l wear a sports bra or similar but no wires frown l must apologise about all my typos l can spell lol but was shattered and wasnt taking much care so sorry for any stupid typos. I hope your all having a painfree day if one exsists! Molly re mri will have to wait and see what this new rheumy recommends you know what there like in the UK for ordering costly tests esp! Mind if l have to have one lm not looking forward to that at all went and sat with my daughter while she had one she was only 10 l was shaking and sweating and couldnt wait to get out of the rom that noise is horrible lol my daughter took it all in her stride had to keep reminding myself it wasnt me in the machine lol.

Oh l managed to get on the website it was good. I even joined nass too things you do eh? lol

Going to have a look at your new links once again thank you all so much have a good day xxx

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#452111 - 09/15/11 01:57 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: Carol61]
deniD Offline
First_Degree_AS_Kicker

Registered: 06/11/11
Posts: 156
Loc: uk
Carol thanks for that x really intersting lve bookmarked all this helpful info thanks x

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#452112 - 09/15/11 02:23 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: Carol61]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 9833
Loc: Brittany, France (since Nov 08...
Yes - That's them Carol, wwell done - no need to log into Medscape. The updates are interesting, glad to see that they are not particularly recommending DMARDS for AS. Memo: I must print those updates and give to my erstwhile GP - he is in desperate need of education! yes
_________________________
MollyC1i - Riding OutAS

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#452113 - 09/15/11 02:35 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: deniD]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 9833
Loc: Brittany, France (since Nov 08...
deniD - You need to mention MRI Saggital STIR. A 'standard' MRI won't hack it eithehr! As for X-Rays, they are useless to show up inflammation...and alala the rest. Inflammation plus all the rest, is what you are looking for. Need at least one of your thoracic spine and one of SIs. Say the words and bring ASAS/EULAR with you. Don't rely on the rheumy being up-to-date on AS stuff, will onnly be 'prob' up-to-date IF sub-specialising IN AS. Remember, a whole number of X-Rays are accumulative AND aint good for you either.

In fact, IF you hahve the name of the consultant you are going to see at the hospital, send them ASAS/EULAR in the post together iwth a covering letter. They won't have time to puruse the monograph and updates at the appt. You got to be bold in handling the situation otherwise will just drag along getting nowhere fast.

Hope you have a better day today. And do go check out those stretches. Crucial to an AS patient is the stretches and physio - as you will see outlined in the monograph.

Take care -
_________________________
MollyC1i - Riding OutAS

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#452116 - 09/15/11 04:03 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: MollyC1i]
Carol61 Offline
Active_Member

Registered: 05/23/11
Posts: 70
Loc: Bundaberg, Australia
I read in one of the recent posts, that AS actually causes Osteoarthritis. Is this true. I have been having a LOT of pain in my ankles the last couple of months and have finally had an xray to find I have Osteo in my ankles and spurs I havent seen a Rhemy yet (the wait is very long here).
I had thypoid and salmonella last year and since then have had constant pain in all areas.
I have had a very uncomfortable feeling in the sternum recently, about the last month (but I cant say it is pain as yet)but as I said very uncomfortable.

It is very hard to get my head around how this disease works.

Cheers Carol
_________________________
Dx 2006 Sleep apnoea
Depression- Major
2010 Cervical Spondylosis
Typhoid Fever & Salmonella
2011 Sponylosis- Lumbosacral
Scoliosis
Chronic Fatigue Syndrome
Osteoarthritis
Plantar Fasiitis (Bilateral)
Polyarthralgia
Carpul tunnel
Rheumatoid Arthritis
Sciatica
Fibromyalgia

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#452117 - 09/15/11 04:47 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: Carol61]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 9833
Loc: Brittany, France (since Nov 08...
Findings are that peripheral arthritis is observed more in women than in men. See the ASAS/EULAR monograph.

I also have OA in my ankles and in feet and toes. Big bore. So know what you are going through. (Just been out in our wee town, feet were playing up). The anti-TNF drugs are not found to be of help in treating OA. Anti-inflammatories and pain meds should help. Though be aware that NSAIDs can and do cause damage to the gut wall - not to everyone, but enough of 'everyone' for there to be warnings out there to ensure to take a gut guard. I can't take NSAIDs at all - and any number of KAers can't either.

AS is a vile condition. Dragonslayer (John) posted some time ago an interesting list of the possible add-ons that may accompany AS, numbered some 250!! Last time I counted mine I had reached 42... But it aint a competition <LOL> (Should find the list with a search).

Have a good day - and hope your rheumy can help with the peripheral arthritis.
_________________________
MollyC1i - Riding OutAS

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#452118 - 09/15/11 04:53 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: MollyC1i]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 9833
Loc: Brittany, France (since Nov 08...
Carol - a few leads for you

Osteoarthritis (Degenerative Arthritis) Causes, Diagnosis, ...
20 hours ago ... Osteoarthritis (OA or degenerative arthritis) is a joint disease caused by ... gout, rheumatoid arthritis, psoriasis, and ankylosing spondylitis. ...
www.medicinenet.com/osteoarthritis/article.htm - Similarto

Osteoarthritis (Degenerative Arthritis) Causes, Diagnosis, ...
Arthritis - Wikipedia, the free encyclopedia
The most common form, osteoarthritis (degenerative joint disease) is a result of trauma to the joint ... pseudo-gout Juvenile idiopathic arthritis Still's disease Ankylosing spondylitis ... Arthritis is the most common cause of disability in the USA. ...
en.wikipedia.org/wiki/Arthritis - Similarto Arthritis - Wikipedia, the free encyclopedia

Axial Arthritis Musculoskeletal Radiology UW Radiology
Over 90 % of caucasian patients with ankylosing spondylitis are HLA-B27 positive. ... Besides causing local joint pain, facet osteoarthritis may cause nerve root ...
www.rad.washington.edu/academics/academic-sections/msk/teaching...
_________________________
MollyC1i - Riding OutAS

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#452124 - 09/15/11 07:42 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: MollyC1i]
deniD Offline
First_Degree_AS_Kicker

Registered: 06/11/11
Posts: 156
Loc: uk
Hi all x thanks again x Yep l read too osteo tends to be found in those with AS too. Im keeping my fingers crossed the doc l see at hospital is the one WHOSE INTEREST IS AS!!! I had a look onlone at whose who and thought l hope l get her lol hasnt been too bad of a day but really pushed myself today have just sat down chest is flaring up time for some ant inflams, still havnt heard back of xrays grrr someone told me its 2/3 weeks!!! so 2 weeks was up yesterday,,, should be anytime hopefully. Then go from there. Thanks all for sharing be back later hope your all good as can be xxx

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#452128 - 09/15/11 08:52 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: deniD]
MollyC1i Offline
Very_Addicted_to_AS_Kickin

Registered: 01/21/04
Posts: 9833
Loc: Brittany, France (since Nov 08...
deniD - Here's a tip. You can ASK for HER at the reception desk. You do NOT have to take the next one free. So, when you book in at the desk, tell em that you are to see Dr ...xyz... ONLY. And then when called, ensure that IS the doctor you will BE seeing. Just ask the question. Is Dr XYZ the doctor whom I am now seeing, IF not, say you will WAIT until the Doctor YOU WANT to see is FREE.

Your RIGHTS.

And YES, you can do just that. And NO, they won't think anything strange or odd in your request. MANY patients do just that - including myself, having been caught a few times in the past. Not again though!
_________________________
MollyC1i - Riding OutAS

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#452139 - 09/15/11 10:22 AM Re: HOW DO YOU DEAL WITH THE STERNUM AREA PAIN :( [Re: MollyC1i]
deniD Offline
First_Degree_AS_Kicker

Registered: 06/11/11
Posts: 156
Loc: uk
I will have to wait till the appointment arrives and see who they have gave me too then l will do what you said, I thought they would look at your passed on info then decide who best you see? I wish you lived near me pmsl ld take you with me hahahahaha smile xx

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