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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Today I biked to my mother-in-law's house and back which was 5.1 miles. And on the way home I went to the pool and swam 1,100 yds in 38 minutes. Now I'm POOPED! Go TEAM!
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
walked 1.5 miles, 30 minutes
an overcast day, but at least very little rain to hamper my walking.
and continues to be cooler, which is fine for walking.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
I'm really happy! Today my doctor agreed to let me go off of oxycodone and try something different! That stuff makes me feel so gross - as you all know I've whined and moaned about this repeatedly. So, she's trying me on tramadol for breakthrough pain, and morphine for flares. Now that I have my migraines under control, and since the desert climate is being so good for me, hopefully the flares will be farther and fewer between. Okay. Now for the exercise portion of my day. I swam 1,000 yds in 31 minutes. Go TEAM! BTW, this week is Suicide Prevention Week, and Saturday at 8pm - for World Suicide Prevention Day if you feel inclined, you can light a candle in memorial of my daughter. Peace to you all.
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
the change in pain meds sounds promising would be honored to light a candle in your daughter's honor walked 1 mile, 20 minutes
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
would be honored to light a candle in your daughter's honor
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
Ran 19.11 miles this morning in 3 hour 33 minutes. The last 5 miles were rough, and slow.
Steve Orchard, Running from AS & MS
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Joined: Feb 2006
Posts: 211
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Feb 2006
Posts: 211 |
OK guys I did 2000metres in 55minutes this evening. It was sooooo nice to get back to the pool. Will try to light a candle tonight but am going camping in the forest and naked flames are strictly forbidden at this time of year. So I will do it the next evening when I am back at home.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
hi erica,
if you see this before tonight, what scents were your daughter's favorites. i have tons of yankee samplers. would she have liked foral, fruity, nutty, herbal, spicy, etc?
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had a weird "headcold" the last few days, so yesterday i saved my energy to recuperate. no nasal congestion, but lots of internal congestion which gave me a killer migraine. earache, sinus pressure so face hurt, throat involved. think laying down to sleep allowed congestion to cause the headaches as the mornings when i woke were the worst. but slept the whole night in the recliner last night sitting up and everything so much better this morning. hubby has it too and is slowly getting better. think the LDN allows me to fight things a bit faster. so today will take a slow little walk, still not 100% but getting there.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
So... today was my first trial of tramadol. OMGoodness, it's MUCH better than oxycodone. No dizzyness.It did handle the pain quite well. I am very clear headed. No sign of serotonin syndrome... but I'm WIDE AWAKE 8 hrs after taking 50mg. Not a nod in sight. I feel like a drank a pot of coffee each hour. Hmmmm... I dunno. I guess I'll try the morphine next week. I was really hoping for a med that isn't so regulated, because it's irritating to have to go to the doctor every 6 weeks when there is NOTHING wrong with me other than arthritis. I swam 1,000 yds in 30ish minutes today. Go TEAM!
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
continues to be cooler, which is fine for walking.
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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