|
Forums33
Topics44,170
Posts519,800
Members14,024
| |
Most Online1,931
Jan 16th, 2023
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
|
Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Wendy,
You are such a good example.
I love the stuff, but I can't stand the taper!!!
All the best to you?
No summer here yet. My holes for the tomatoes still have water in them...
I keep the New Covenant,
when I fail....I am pulled
back into place by HIM.
|
|
|
|
|
Joined: Dec 2008
Posts: 5,231
|
|
OP
Joined: Dec 2008
Posts: 5,231 |
Thanks Lon!!! No summer here yet either - just damp, cold and windy!
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
|
|
|
|
|
Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
|
|
Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Congrats, Wendy. Hope the MTX will continue to help you.
Still pretty cool here, but no rain or tornadoes. Sun is out. 70s today and 80s the rest of the weekend.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
|
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
|
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Oh congrats, Wendy!!! That's good news!! 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
|
|
|
|
|
Joined: Jan 2009
Posts: 313
Fourth_Degree_AS_Kicker
|
|
Fourth_Degree_AS_Kicker
Joined: Jan 2009
Posts: 313 |
I'm unable to get off the prednisone. Every time I ween down, I get dizzy, disoriented, and the pain begins behind my eyes and in my neck.
I tried MTX, but I think I came off it too soon (month and 1/2). It made my hair so brittle and damaged...but now I'm thinking I'll have to return to it.
I think I'm going to try LDN before I revert back to MTX. I'll be interested to see how you do on it. Rheumy says it's not typical for spondys to use MTX, but worth trying.
|
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
|
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Lindy... it seems like forever since we last chatted...how are you???  Sorry to hear about your MTX/Pred issue...it's a rat race, isn't it?! It's good to see you... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
|
Joined: Jan 2009
Posts: 313
Fourth_Degree_AS_Kicker
|
|
Fourth_Degree_AS_Kicker
Joined: Jan 2009
Posts: 313 |
Doing good - finally winding down for summer and have a little time to post.  I'm going strict with paleo diet to see if this will help me off the prednisone. So far, not so good. Also adding sprinting and Crossfit. Willing to do everything I'm reading as far as recommendations these days. We spondys are disciplined.
|
|
|
|
|
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
|
|
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
I'm glad to hear you are doing well...and good for you on the Paleo diet.. I'm rooting for you...and yes, we are discipilined!!!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
|
|
|
|
|
Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
|
|
Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
Hey Wendy,
I'm at 3.5mg - 4mg pred., I'm excited, but boy does the tapering hurt,on the days I take less, I just can't wait for the day to be over, I'm mostly achey all over.
Hopefully in 6-8 weeks I'll be off the stuff.:)
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
|
|
|
|
0 members (),
47
guests, and
79
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|
