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#443541 - 05/26/11 04:36 PM Re: Finally off prednisone [Re: WendyR]
Lon Offline
Very_Addicted_to_AS_Kickin

Registered: 09/11/01
Posts: 8397
Loc: Gillette, Wyoming
Wendy,
You are such a good example.

I love the stuff, but I can't stand the taper!!!

All the best to you?

No summer here yet. My holes for the tomatoes still have water in them...
_________________________
I keep the New Covenant,
when I fail....I am pulled
back into place by HIM.

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#443556 - 05/26/11 07:06 PM Re: Finally off prednisone [Re: Lon]
WendyR Offline


Registered: 12/23/08
Posts: 5231
Loc: BC, Canada
Thanks Lon!!! No summer here yet either - just damp, cold and windy!
_________________________
Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil

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#443610 - 05/27/11 02:02 PM Re: Finally off prednisone [Re: WendyR]
rumble Offline
Supreme_AS_Kicker

Registered: 01/31/09
Posts: 4496
Loc: NE Oklahoma
Congrats, Wendy. Hope the MTX will continue to help you.

Still pretty cool here, but no rain or tornadoes. Sun is out. 70s today and 80s the rest of the weekend.
_________________________
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9

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#443764 - 05/29/11 05:52 PM Re: Finally off prednisone [Re: WendyR]
Michelle70605 Offline
Addicted_to_AS_Kickin

Registered: 11/14/07
Posts: 6267
Loc: Louisiana
Oh congrats, Wendy!!! That's good news!! clap
_________________________
Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF

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#443766 - 05/29/11 06:20 PM Re: Finally off prednisone [Re: Michelle70605]
Lindyap Offline
Fourth_Degree_AS_Kicker

Registered: 01/11/09
Posts: 313
Loc: Georgia
I'm unable to get off the prednisone. Every time I ween down, I get dizzy, disoriented, and the pain begins behind my eyes and in my neck.

I tried MTX, but I think I came off it too soon (month and 1/2). It made my hair so brittle and damaged...but now I'm thinking I'll have to return to it.

I think I'm going to try LDN before I revert back to MTX. I'll be interested to see how you do on it. Rheumy says it's not typical for spondys to use MTX, but worth trying.

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#443772 - 05/29/11 09:12 PM Re: Finally off prednisone [Re: Lindyap]
Michelle70605 Offline
Addicted_to_AS_Kickin

Registered: 11/14/07
Posts: 6267
Loc: Louisiana
Hi Lindy... it seems like forever since we last chatted...how are you??? grin2 Sorry to hear about your MTX/Pred issue...it's a rat race, isn't it?! It's good to see you... smile
_________________________
Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF

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#443787 - 05/30/11 07:17 AM Re: Finally off prednisone [Re: Michelle70605]
Lindyap Offline
Fourth_Degree_AS_Kicker

Registered: 01/11/09
Posts: 313
Loc: Georgia
Doing good - finally winding down for summer and have a little time to post. smile

I'm going strict with paleo diet to see if this will help me off the prednisone. So far, not so good. Also adding sprinting and Crossfit. Willing to do everything I'm reading as far as recommendations these days. We spondys are disciplined.

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#443791 - 05/30/11 08:23 AM Re: Finally off prednisone [Re: Lindyap]
Michelle70605 Offline
Addicted_to_AS_Kickin

Registered: 11/14/07
Posts: 6267
Loc: Louisiana
I'm glad to hear you are doing well...and good for you on the Paleo diet.. smile I'm rooting for you...and yes, we are discipilined!!! grin2
_________________________
Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF

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#444013 - 06/02/11 06:47 AM Re: Finally off prednisone [Re: Michelle70605]
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1183
Hey Wendy,
I'm at 3.5mg - 4mg pred., I'm excited, but boy does the tapering hurt,on the days I take less, I just can't wait for the day to be over, I'm mostly achey all over.
Hopefully in 6-8 weeks I'll be off the stuff.:)
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

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