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#425976 - 12/24/10 07:37 AM Do you get chest pain with RA ?
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1183
My chest pain feels like its in the bones or cartiladge somedays.(I had it checked out one night at the walk in clinic)

I had an xray to rule out any infection in my lungs. I was just wondering if any of you get pain as bad as your joint pain but in your chest and then it feels like it goes through to the back in the same spot as well? Usually its on a bad day where everything hurts.

thanks.
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

Top
#426023 - 12/24/10 12:33 PM Re: Do you get chest pain with RA ? [Re: ValsMum]
SJLC Offline
Iron_AS_Kicker

Registered: 02/16/10
Posts: 1046
Loc: CA, USA
You've probably got costochondritis, which plenty of people here have experienced -- both RA and AS can cause it.

http://www.empowher.com/media/reference/costochondritis

The joints where ribs attach to the spine in the back can also get inflamed. That's why I used to hate sneezing before I got my AS more under control.

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#426025 - 12/24/10 12:48 PM Re: Do you get chest pain with RA ? [Re: SJLC]
WendyR Offline


Registered: 12/23/08
Posts: 5231
Loc: BC, Canada
Hi ValsMum,

I have RA and get pain in my sternum and particularly in my sternoclavicular joints. Just touching my clavicle can cause me to wince.
_________________________
Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil

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#426026 - 12/24/10 01:02 PM Re: Do you get chest pain with RA ? [Re: WendyR]
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1183
Thank you SJLC and Wendy. SJLC, thank you for the link, I'm sure that is what I have, especially since you and others around here have it too.

It's always creepy when you get chest pain.While I'm being nosey, Do any of you get night sweats or have iron deficient anemia, it's a little different than Anemia of Chronic Disease?


Thanks,
Sheri
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

Top
#426033 - 12/24/10 02:03 PM Re: Do you get chest pain with RA ? [Re: ValsMum]
EricaK Offline
Royal_AS_kicker

Registered: 06/23/10
Posts: 3831
Loc: Colorado, USA
Yep, I've had chest pain on and off since I was about 8 years old. It comes and goes, but last year just before the starting Cymbalta & LDN it was at it's worst. I can wear a bra sometimes now, so that's a bit improvement! I hope you feel better soon. smile
_________________________
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!


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#426054 - 12/24/10 02:56 PM Re: Do you get chest pain with RA ? [Re: ValsMum]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21331
Loc: Upstate NY
ribs attach in the front and back and when one side is hurting, the other side often joins in. last fall, the ribs in the back, where they attach at the spine, and then where they were rubbing up against the shoulder blades, very bad, and for a time, where they attach to the sternum exquisitely painful.

right now, that sternoclavicle joint that wendy is talking about, on the left side is killing me.

other times, ok, all the time, the ribs are tender to the touch, varies by how much. so bra wearing is just out. and if i have to go in for an ultrasound where they press on the ribs, i take a muscle relaxant before i go, helps some with the pain; an antiinflammatory would help more. the week i was on prednisone, was the only week since i can remember that my ribs weren't tender.

so that's my "chest pain", definitely the ribs!
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#426212 - 12/27/10 02:13 AM Re: Do you get chest pain with RA ? [Re: ValsMum]
Michelle70605 Offline
Addicted_to_AS_Kickin

Registered: 11/14/07
Posts: 6267
Loc: Louisiana
Hi ValsMum, your symptoms sound like costochondritis to me...to me, it feels like someone has stabbed me in the chest with a butcher knife...I'm so sorry you're having to deal with this, I know it's painful... frown I had my first costochondritis attack the summer I turned 12, it was about 12 hours after I finished a big swim meet, I woke up in the middle of the night with chest pain, my Mom took me to the ER because it hurt too bad to breathe normally, the Doc called it Tietze's Syndrome, he told me that my costal cartilage was inflammed, from the strenuous physical activities of the swim meet but I suspect that this was my AS, the year before that, at age 11, I was Dxed with bursitis and then Sacroiilitis, then Thoracic Outlet Syndrome(TOS) and Interstitial Cystitis 11 years ago...when I look back over my life, it seems the AS was there all along, I would describe my childhood symptoms as acute rather than chronic, it mainly affected the major joints, I had a propensity for pneumonia, I had severe fatigue during flares, I had frequent hospital stays, after being life-flighted in due to massive internal hemorrhaging, I spent a year in the terminally ill ward at a children's hospital but my Dad brought in a phenomonal young urologist that he'd read about and had him run some tests and give a second opinion...it turned out to be a tumor that was wrapped around my kidneys and bladder and had it not been removed, it would've eventually killed me, after 27 hours of surgery and surrendering 1/3 of my bladder, I was saved!!! angel3d Everything was fine with my pain levels and fatigue in between flares...I just thought the pain was from being so rough as a kid(horses, dirtbikes, skateboards..etc.) and I thought nothing of it, I had no idea at all that anything was wrong with me... but a few months after Katrina & Rita, my back was hurting way worse than normal, so I went to an Ortho, he took x-rays of my back and said, "Well girl, no wonder your back hurts, your lumbar spine has fused itself together!!", that's how and when I was diagnosed, the fusion showed up on an x-ray, I was 42 years old at the time...back then, I would average 2-4 flares a year, they would last around 1-3 weeks...but then a few months after Katrina & Rita, my back was hurting way worse than normal, so I went to an Ortho, he took x-rays of my back and said, "Well girl, no wonder your back hurts, your lumbar spine has fused itself together!!", over the next few years, my symptoms became chronic and much more severe, the pain levels get high enough that at times it drives my blood pressure up, so I have to stay on high blood pressure medication and my pain meds, to keep it down and the fatigue has now become debilitating, where as before, I wasn't fatigued when not flaring...but these last few years, I've been in a constant flare, with small breaks here and there... the biologics and Methotrexate do help with my symptoms to some degree but I'm not getting the fantastic results that I used to get from the Enbrel, perhaps because I've been on it so long (I participated in the clinical trials in the mid-90s, so I've decided to go NSD, starting Jan. 2, 2011...I've decided to wait until after the holidays.... :santa2: Again, I'm so very sorry that you're having to deal with this, it stinks and I hope you get relief soon friend, until then, big hugs, hugss
_________________________
Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF

Top
#426232 - 12/27/10 10:58 AM Re: Do you get chest pain with RA ? [Re: ValsMum]
Lon Offline
Very_Addicted_to_AS_Kickin

Registered: 09/11/01
Posts: 8397
Loc: Gillette, Wyoming
Hi,
Yes, to all the posts. But I do not feel better taking it easy. Atleast when I exercise I have a sensae of feelign better. I have a disk that seems to slip and then I get jaw pain and a excruciating pain when I breath.
Lin thinks it is my heart...

I learn alot by reading all ytour posts. It helps knowing that it is actual pain and not jsut my crazy thinking.
_________________________
I keep the New Covenant,
when I fail....I am pulled
back into place by HIM.

Top
#426331 - 12/28/10 03:41 PM Re: Do you get chest pain with RA ? [Re: Lon]
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1183
Thanks Michelle and Lon,

Wow Michelle you had it rough, not that you don't now but pain as a child and in a ward for so long, wow.

My pain is a year old or so, but it's ever so constant everyday all the time. Once in awhile I'll get a cortisone shot in my knee and it makes the pain in my back feels better too.

Tell me Michelle,
How much of your spine is fused? Is it an inch or 4 inches ?
This is all new to me.
They have xrayed me 2 times because my lower back hurts so much.
Thank you,
Sheri


Edited by ValsMum (12/28/10 03:41 PM)
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

Top
#426334 - 12/28/10 04:44 PM Re: Do you get chest pain with RA ? [Re: ValsMum]
Michelle70605 Offline
Addicted_to_AS_Kickin

Registered: 11/14/07
Posts: 6267
Loc: Louisiana
Hi Sheri...well, I really didn't suffer that much until these last 15 years,or so, I'm not certain that the problem I had that landed me the 'terminally ill' prognosis at age 7 was related to auto-immune at all, though I suspect that it was, I was rushed in with hemorraging, hospitalized and misdiagnosed as having TB of the kidney and my parents were told it was terminal but the urologist that Dad brought in months later, discovered a tumor that was strangling my kidneys and bladder, once removed, along with a thrird of my bladder that it had choked off, causing necrosis, I had no more problems until the bursitis Dx at 11, then as the years went by it just went on and on but I really had an active and relatively normal childhood, I was active in sports, I think my saving grace from fusion at a younger age, was that I was on a swim team and I swam daily so, as the phrase goes, "Move It or Fuse It!"...my disease activity would come and go in the form of small flares and I had problems during one of my pregnancies and I've always had trouble with my kidneys, a simple UTI turns into full blown Pyleonephritis overnight and I had many bouts of pneumonia when I was younger...it's only after many decades of minor stuff that I found myself here...I have complete lumbar fusion, both SI joints are fused, partial thoracic fusion and partial thoracic fusion, with visible bridging that was as of last year, I see my rheumatologist on Jan. 6th and I'll get the full body review then...I've had a bad couple of years in regards to my disease activity, so I expect that more damage is there, I'm hoping to my rheumy will kick up my Enbrel to twice a week again...as the once a week isn't helping much...I've had to start and stop treatment several times over the last couple of years due to infection...so it would be great if I can get back to where I need to be. I'm so sorry that you're having such a rough year, constant pain can really cause problems, I'm glad that you've found us though, you've definitely come to the right place and I'm so glad that you did... smile
_________________________
Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF

Top
#426642 - 12/31/10 08:47 AM Re: Do you get chest pain with RA ? [Re: Michelle70605]
hollyz143 Offline
Sergeant_AS_Kicker

Registered: 10/11/10
Posts: 558
Loc: Texas
I used to get horrific chest pains. Not often, but when they hit, it was worse than anything (looking back, I can say it was worse than having my boys -- naturally/no drugs). I wonder now if it was another early sign of AS that I missed.

I went to the ER with it once and they dismissed me because my husband smelled like booze at the time. We were on our way home from a concert and since I was designated driver, I didn't drink at all. But he smelled really, really bad. They asked me several times what I had had to drink, or smoke. GRRRR. Finally said it was heartburn and sent me on my way.
_________________________
~ Holly

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#426731 - 12/31/10 04:40 PM Re: Do you get chest pain with RA ? [Re: hollyz143]
avonldy Offline
Major_AS_Kicker

Registered: 02/26/10
Posts: 2190
Loc: N. Sacramento Valley
I have been getting the chest pain right in the breastbone. One time I went in to my GP because it was hurting so much as well as my left shoulder. They immediately had me hooked up to the Electrocardiograph machine to rule out a heart attack. At my age, 70, every time I get the chest pain I worry about it. I figure if the breastbone is tender to the touch, it's inflammatory, not heart related. I usually just take a pain pill and put on an ice pack till it feels better. It can be scary, especially when it wakes you up in the middle of the night.
_________________________
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,

Top
#426734 - 12/31/10 04:48 PM Re: Do you get chest pain with RA ? [Re: avonldy]
Michelle70605 Offline
Addicted_to_AS_Kickin

Registered: 11/14/07
Posts: 6267
Loc: Louisiana
Hi Donna...that sounds like costochondritis to me, it's painful, I'm glad to hear that they've ruled out heart attack though...hugss Happy New Year, friend... grin
_________________________
Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF

Top
#428381 - 01/13/11 06:15 AM Re: Do you get chest pain with RA ? [Re: Michelle70605]
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1183
Thanks Donna, Holly and Michelle. I don't have family with RA so there is noone to ask and believe I have a million questions about RA.
Funny story Holly, I'm sure it wasn't funny that night though:)
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

Top
#428394 - 01/13/11 09:20 AM Re: Do you get chest pain with RA ? [Re: ValsMum]
WendyR Offline


Registered: 12/23/08
Posts: 5231
Loc: BC, Canada
Hi ValsMum,

As I have RA and have done quite a bit of research into it, I may be able to answer some of your questions or point you in the direction of articles or other information. Please feel free to ask.
_________________________
Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil

Top
#428486 - 01/13/11 09:30 PM Re: Do you get chest pain with RA ? [Re: avonldy]
Angelmom Offline
Very_Addicted_to_AS_Kickin

Registered: 11/12/03
Posts: 8190
Loc: Oklahoma..where the wind comes...
Girls,

I think Michelle is right...I have had many episodes with this and if you can look up on the internet like a human body on the inside we have muscles, tendons, and there is a sheath that covers our ribs and breastplate. It always feels like heart issues sharp pain, dull pain, extreme pain when you breath in out or cough or sneeze.

Donna is right, IF you have any kind of heart issues rule those out BUT sadly if it is costo pretty much the only thing that will help is pain meds and steroids, I have been in the hospital hooked up to IV steroids which work the quickest.

They may also tell you its plerusy which I feel its all related but if you do pain pills and steroids and feel better its not going to be your heart but it sure can feel like it.

Lisa
_________________________
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.


Top
#430739 - 01/31/11 09:12 PM Re: Do you get chest pain with RA ? [Re: Angelmom]
Brandon Offline
Third_Degree_AS_Kicker

Registered: 10/08/10
Posts: 253
Loc: Afton, TN, USA
This explains alot of pains I have had. I know there chest issues but mine weren't centered. Now I know why. I love this place more and more everyday.
_________________________
HLAB27+ A.S for 2 year. Humira, Enbrel, Simponi all tried now moving on to Remicade. Meth, sulfa, tramadol, etc...

Top
#430790 - 02/01/11 08:16 AM Re: Do you get chest pain with RA ? [Re: WendyR]
Lon Offline
Very_Addicted_to_AS_Kickin

Registered: 09/11/01
Posts: 8397
Loc: Gillette, Wyoming
Wendy,
Most of my blood work is within normal range, occasionally they are high, same way with the gout tests, but my very first diagnosis 50 years ago was RA. What do you think about test scores and us problematic people.

Chest pain = get checked for asthma also, having my inhalers has get me going.

agape'
Lon
_________________________
I keep the New Covenant,
when I fail....I am pulled
back into place by HIM.

Top
#430875 - 02/01/11 10:59 PM Re: Do you get chest pain with RA ? [Re: Lon]
WendyR Offline


Registered: 12/23/08
Posts: 5231
Loc: BC, Canada
Hi Lon - I think it makes diagnosis that much harder. Although I found it scary having such a high CRP reading, I also knew that it was helpful in terms of making rheumatologists take my illness seriously.

Even so, it took a while to get my diagnosis because my RA did not start in a classic way. It started very rapidly with high CRP and ESR readings quite soon. I had no hand involvement for quite while and I did not have a positive rheumatoid factor. My first joint pains were in my shoulders and then that spread to my sternoclavicular joints, sternum and ribs. At that point, it seemed more likely to be a spondy.

Eventually, it was the lack of spinal involvement and the symmetry of the joint involvement that strongly suggested RA and then gradually other symptoms, like my wrist and finger joint pain that eventually developed, seemed to confirm the diagnosis.

It seems to me that time usually produces a diagnosis as these autoimmune diseases develop and symptoms become more obvious. That was certainly my case and it made me realize how important it was not to make assumptions and try to make symptoms fit a desired diagnosis. Patience seems to produce answers in the end.

I don't know if that answers your question, Lon? Glad you're getting checked for asthma. My son suffers from it.
_________________________
Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil

Top
#436365 - 03/21/11 01:59 PM Re: Do you get chest pain with RA ? [Re: WendyR]
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1183
I had some more questions about chest pain and RA.
How do you know the difference between arthritis/inflammation in chest and pluersy or fluid around heart or lungs? The chest pain always creeps me out, but I'm sick of going to the dr, so I usually ask all my questions at my regular visits with my rheumatologist, but then I forget half time.
What kinds of test to they give for chest inflammation/pain? MRI?
Thanks ..again.
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

Top
#436472 - 03/22/11 02:09 PM Re: Do you get chest pain with RA ? [Re: ValsMum]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21331
Loc: Upstate NY
hi sheri,

not sure there is a way for us to easily tell, but i know my doctor (GP) can tell by listening to my breathing through a stethoscope. pleurisy will have a different sound to it when we breath; doctor said he'd be able to hear the inflamed tissues rubbing up against one another (i think i have that right).

though maybe i shouldn't assume anything, after the first few times of the doctor ruling out pleurisy and concluding it was rib inflammation, now when i get the same pain in the same location, and placing ice there helps, i assume its rib / sternum pain (usually for me its where the ribs attach to the sternum that is the worst, though also for some reason my lower left floating ribs as well (http://en.wikipedia.org/wiki/Floating_rib)).

one thing that showed inflammation where the ribs attached to the sternum was a nuclear bone scan. i was having a horrible flare there, it was so bad that when i took my walk, i couldn't swing my arms because that would make it so much worse. was going in for the NBS, not for that, but because it had finally been approved by my rheumy after a bad SI and upper back flare. and i was amazed how vividly the inflammation at the sternum showed up. so much so that the radiologist had me turn in several directions and took more scans of that area than they would normally do. told me they "had never seen that before!" hee hee!

so doubt they'd do a nuclear bone scan for the chest pain, its usually done for the SI joint (i think) but it was something that showed the inflammation quite dramatically.

it was also the first time i had a nice visual to go along with my pain. really made me see for the first time the correlation between inflammation and pain.



Edited by Sue22 (03/22/11 02:13 PM)
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#436509 - 03/22/11 10:46 PM Re: Do you get chest pain with RA ? [Re: Sue22]
ValsMum Offline
Steel_AS_Kicker

Registered: 07/05/10
Posts: 1183
Thanks Sue,
I never heard of a nuclear bone scan. I have seen or read about a machine that shows inflammation or heat I think, it sounds similar. I would really like to have that done to my chest and lower back. I'll ask my dr about it. Thanks again Sue!
_________________________
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

Top
#436514 - 03/22/11 11:02 PM Re: Do you get chest pain with RA ? [Re: ValsMum]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21331
Loc: Upstate NY
i think its a common test to have done for AS, a good way to look at the SI joint and spine especially. not sure its done as much for other inflammatory arthritises, maybe wendy knows more about this for RA? maybe its very good for showing enthesitis, inflammation at the bone? hadn't really thought much beyond that.

i only know about it from people on here recommending it. its a pretty cool test, about the only results i can easily, visually interpret myself. i can't make head or tail of xrays, MRIs, but NBSs light up "like christmas trees" where there is inflammation, bright white spots on a black background.

not to be confused with a dexa scans for bone density which is different.


Edited by Sue22 (03/22/11 11:08 PM)
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
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