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Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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maybe try taking at night right before bed? that's when i take it and it seems to kind of reset my system each night. that plus the LDN doing their magic overnight, ok, that competing with the laying in one position trying to undo the good of those two drugs! smile

anyway, what i've found is that i get incredibly sleepy because my BP drops really low (as low as 80/55) about 45-60 minutes after i take it. then really zonked out for about an hour, hour and a half, and incredibly dry mouth during this time (drinking a whole glass of water when i take the drug and then an hour later when it starts to kick in helps or being asleep when it kicks in). then i feel the muscle relaxant affects for up to about 5 hours total. they say it lasts in the blood stream about 6 hours. so my body seems to perform as the literature describes.

also, i only take 2 mg. if i took more, not sure what would happen: maybe i'd accidently stretch my head right off my neck! LOL! no, rather i'm afraid my BP would drop so low i'd stop living. i'd like to avoid that if at all possible.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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I worked from home today. It was nice, but I was oh so busy...still am.

I wanted to ride my bike but I needed to walk too (it's a team thing from work)...so I did both. I rode out about 3 miles (not far for riding...hardly even count) and then walked back. So for today:

Monday: walk 3 miles (60 minutes) and 30 minute stretching


John
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kevin_A
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kevin_A
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Tuesday pouring with rain all day so only short walks for Scoob and me probably about a mile total.
Today looks the same very wet so wont be going far.

Kevin

Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
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Originally Posted By: LATH
I wanted to ride my bike but I needed to walk too (it's a team thing from work)...so I did both.


Way to be accountable! That's teamwork! cheerleader

Go TEAM! clap


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
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Originally Posted By: kevin_A
Tuesday pouring with rain all day so only short walks for Scoob and me


Somehow I think Scooby thinks walking in the rain is fun! You're a good dog daddy. yes Woohoo! cheerleader

Go TEAM! clap


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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I spend 35 minutes on the elliptical cross trainer, then 10 minutes lifting weights.


Steve Orchard, Running from AS & MS
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Posts: 3,865
EricaK Offline OP
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Originally Posted By: Orch
the elliptical cross trainer
cheerleader

I love the eliptical! roll


Go TEAM! clap


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
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Okay, I only did 15 minutes of streching today, but I made it on a 2.5 hr road trip w/out much pain! Yay! I love this life! cheerleader

(this is a very different sentiment than the one I had when I got here) I love you guys. hrtballon

Go TEAM! clap

PS-aside to Sue. No more zanaflex for me. My heart does nor like it. no Any other ideas?


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jan 2008
Posts: 21,346
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Very_Addicted_to_AS_Kickin
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Originally Posted By: EricaK
PS-aside to Sue. No more zanaflex for me. My heart does nor like it. no Any other ideas?


very sorry to hear that no
what do you mean by that? slowing it down? my bp drops very low: as low as 80/55 but its been doing that for about 10 years now and seems to be ok, i just have to be prepared for it. or do you mean racing? that would be kind of the opposite of what is common for a muscle relaxant to do. could you take less? or maybe try skelaxan, i've heard good things about that drug as well. again, sorry!

me: got back from chiro just after it got dark, didn't want to get hit by a car on our street. so did the cul-de-sac (good streetlight lighting and very few cars), a loop is a half mile. so did a short walk tonight, with flashlight in hand. find its good to walk right after the chiro, helps his work!

tonight: walking 1 mile, 20 minutes

hi everyone! busy with work as well! grading grading grading! roll
better than studying studying studying.......i think?



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
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Posts: 3,865
Originally Posted By: Sue22
slowing it down? ...or do you mean racing?

Thunking unevenly. Oh well, it's a quality problem. I feel SO MUCH BETTER than I did a few months ago, I have nothing to complain about!

Originally Posted By: Sue22
cul-de-sac (good streetlight lighting and very few cars), a loop is a half mile

That's a LONG cul-de-sac! Good job! cheerleader

Originally Posted By: Sue22
grading grading grading! roll
better than studying studying studying.......i think?


Since I spend my day doing the latter, I tend to agree, but then I've never done graded graded graded.Yay for teachers! cheerleader

Go, TEAM! clap


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

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