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#414351 - 09/29/10 09:44 AM Re: 28 September 2010 [Re: Sue22]
EricaK Offline
Royal_AS_kicker

Registered: 06/23/10
Posts: 3854
Loc: Colorado, USA
Originally Posted By: Sue22
mobic is giving me low level edema


Be careful! That's how my allergy to NSAIDS started. Low level edema turned into full on anaphylaxis, complete with severe facial swelling and near impossibility breathing... heart distress. Grrr...

(I have to say it) Go TEAM! clap
_________________________
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!


Top
#414352 - 09/29/10 09:45 AM Re: 28 September 2010 [Re: Orch]
EricaK Offline
Royal_AS_kicker

Registered: 06/23/10
Posts: 3854
Loc: Colorado, USA
Originally Posted By: Orch
I didn't feel well this morning, but a run fixed that.


Exercise rocks! cheerleader

Go TEAM! clap
_________________________
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!


Top
#414354 - 09/29/10 09:46 AM Re: 28 September 2010 [Re: Orch]
EricaK Offline
Royal_AS_kicker

Registered: 06/23/10
Posts: 3854
Loc: Colorado, USA
Originally Posted By: Orch
The cherries do look good.


Cherries? I though those were apples! cheerleader

Go TEAM! clap
_________________________
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!


Top
#414410 - 09/29/10 06:47 PM Re: 28 September 2010 [Re: EricaK]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21342
Loc: Upstate NY
thanks for the warning erica, i certainly don't want to not be able to use my flector patch or KIP gel.

interesting. i was reading that only like 5% (or was it even less) of people have edema to nsaids. just the lucky ones i guess. was on vioxx and had edema for 3 years before i put it together based on comments from the GP. 3 years and none of my doctors could put it all together why i was getting so so awfully bad.

hope it doesn't develop past the edema into what you had go wrong!

thanks for the heads up!
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#414411 - 09/29/10 06:51 PM Re: 28 September 2010 [Re: Orch]
Sue22 Offline
Very_Addicted_to_AS_Kickin

Registered: 01/13/08
Posts: 21342
Loc: Upstate NY
haven't been calculating the time or distance but did a lot of walking around campus today. all between various buildings. walked to class and back. a seminar and back. tea with a friend/colleague and back. to the computer store on campus for a video connector, still can't use my computer in the classroom, and its only a month into school! out to the distance parking lot to pull my car up near the building. to the new "global village" on campus for a chicken taco (very fresh and good) and back. think it was 2-3 miles total. things are so spread out here. though overcast, nice temperature, so nice day for walking outside. and the sunset, the clouds very cool and dramatic!
_________________________

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)

Top
#414424 - 09/29/10 08:33 PM 29 September 2010 [Re: EricaK]
EricaK Offline
Royal_AS_kicker

Registered: 06/23/10
Posts: 3854
Loc: Colorado, USA
woohoo for nice weather! cheerleader

today:

Tai Chi - 25 minutes
walking - 2 miles / 45 minutes


feet and sacrum are complaining and I don't care, because walking by the ocean at sunset with my husband is totally worth it! Sigh smile

Go TEAM! clap
_________________________
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!


Top
#414425 - 09/29/10 08:38 PM Re: 28 September 2010 [Re: Sue22]
EricaK Offline
Royal_AS_kicker

Registered: 06/23/10
Posts: 3854
Loc: Colorado, USA
Originally Posted By: Sue22
nice day for walking outside. and the sunset, the clouds very cool and dramatic!
cheerleader

Nice weather is sooooo sweet this time of year. yes

Go TEAM! clap
_________________________
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!


Top
#414426 - 09/29/10 08:44 PM Re: 28 September 2010 [Re: Sue22]
EricaK Offline
Royal_AS_kicker

Registered: 06/23/10
Posts: 3854
Loc: Colorado, USA
Originally Posted By: Sue22

hope it doesn't develop past the edema into what you had go wrong!

thanks for the heads up!


De nada. I truly LOVED the pain relief from Mobic, so I think I just let it go too long because I was in denial. It happened really fast though. One day I just felt a little weird, and all of a sudden I couldn't breathe or lie down because the pressure in my head was so awful. Then the lip and eye swelling started like Will Smith in Hitch. Ok, not quite that bad, but it was unsettling. eek2

Go TEAM! clap
_________________________
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!


Top
#414429 - 09/29/10 09:28 PM Re: 28 September 2010 [Re: EricaK]
ladybuggie Offline
Addicted_to_AS_Kickin

Registered: 09/05/01
Posts: 7427
Loc: United States
Wednesday stats:
Krav CB: 60 min.
Got my body served back to me with a side order of fries! sick1 I didnt go monday or tuesday. Was busy registering my wee ones for Sunday school..or rather CCD on Mondays really. And I'll be going on Monday nights for adult refresher classes. Arthurs off so he'll join me too! heart

Weather has been awesome. Warmer days today and tomorrow but boy was the weather sweet. Bubba should be able to start joining me for walks. I think I'll take Art with me on Mondays or go during the day. Weather is too sweet to pass up! heart Just wish my thumb and hands were cooperating. They are a royal mess. Hoping to get into rheumy soon. Just had so much kid stuff to get done and kid projects! rainbow

Goooo team!! cheerleader clap
_________________________

Top
#414431 - 09/29/10 09:30 PM Re: 28 September 2010 [Re: LATH]
ladybuggie Offline
Addicted_to_AS_Kickin

Registered: 09/05/01
Posts: 7427
Loc: United States
Lath your yard looks absolutely amazing!! Hats off to all your hard work! Certainly has paid off!! clap clap
_________________________

Top
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