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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236
I recently had this physical panic attack for a couple of days due to hormones. Ativan was a great help. I'm good at calming myself down, so I know it wasn't my mental state, it was a physiological something going on.


Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
Joined: Jan 2008
Posts: 21,346
Likes: 2
Sue22 Offline OP
Very_Addicted_to_AS_Kickin
OP Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 2
hi micki,

just went and read up on that drug. due to the way it says to take it and potential issues with taking it too long or stopping ti too abruptly. if i were to take something like that, i'd want to do it rarely.

so may i ask you how you took it. how much, how often, for how long, etc?

thanks,



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
Offline
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236
I've been on it almost non-stop for 2 years. I've had an oral steroid taper and several injections, but I can't remember getting that panicky feeling before. I suspect I did, though. My most recent burst of pred was an injection. Today I started on 20mg of pred. I was on 40mg daily a couple of years ago for several months and developed myopathy that resolved when I weaned off it.


Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
Joined: Jan 2008
Posts: 21,346
Likes: 2
Sue22 Offline OP
Very_Addicted_to_AS_Kickin
OP Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 2
thanks micki,

now that things are feeling better in my upper back, but sitting the last two nights was really making my neck muscles go into spasm and making this icky feeling come on, the pain really feels to be radiating from my neck, C-spine. wonder if the bad disc they found in my neck during an MRI last year is pressing on some kind of nerve or something. need to go to the doctors and ask what can be done for this. really not as much pain as icky feeling, neck spasms, temperature not being regulated properly, headache, digestive system not digesting its food, etc.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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