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#393733 - 05/18/10 04:46 PM
Re: After 8 months mtx doesn't seem to be working
[Re: WendyR]
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Addicted_to_AS_Kickin
Registered: 09/11/01
Posts: 7348
Loc: Gillette, Wyoming
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wendy, I am watching this close, as what Donette is saying. I just can't believe she said there was nothing she could do..... She admitted that she saw x-rays where it looked as though the person would be bed ridden, yet they could run. And mine show DISH, RA, etc. but nothing she could do..
Wendy, I hope that you are feeling better. How is work? I am coming down off extra cymbalta, I think that will help me a bit. Your friend, Lon Just remember about the head aches, I worry about you...
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#393771 - 05/18/10 09:41 PM
Re: After 8 months mtx doesn't seem to be working
[Re: WendyR]
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Very_Addicted_to_AS_Kickin
Registered: 01/13/08
Posts: 19040
Loc: Upstate NY
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i sure hand it to you, a lot more patient than i would be! i'm so impatient for you to be better!
_________________________
   sue USpA LDN/zanaflex/flector vits C, D. probiotics. fish oil. CoQ, Mg, Ca pred taper for flares occasional naproxen / Aleve chiro walk no dairy (casein sensitivity), limited eggs future: humira, soon I hope
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#394143 - 05/20/10 02:12 AM
Re: After 8 months mtx doesn't seem to be working
[Re: Lon]
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Royal_AS_kicker
Registered: 01/31/09
Posts: 3780
Loc: NE Oklahoma
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I am coming down off extra cymbalta, I think that will help me a bit. Your friend, Lon
Be careful while you taper off this med if you've taken it for very long. It can give you a lot of weird feelings. Have the doc give you the lowest mg strength when you start tapering off, makes it a lot easier since you can't open the capsules to split the dose.
_________________________
DX: psoriatic arthritis, osteoporosis, DDD, psoriasis Meds: MTX since Oct 2009, 15mg/week--Started Humira March 2013 Epidural steroid injections x4; Lumbar radiofreq ablation SIJ steroid injection and bilateral radiofreq ablation x4
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#396605 - 06/03/10 01:31 PM
Re: After 8 months mtx doesn't seem to be working
[Re: rumble]
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Addicted_to_AS_Kickin
Registered: 09/11/01
Posts: 7348
Loc: Gillette, Wyoming
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Rumble, I think I will stay at 60... Yea, the combination of more of this, muscle relaxers and pain patch, I was quite miserable... Thanks for the warning, but I was just reducing the volume....
I do appreciate the info.
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#396736 - 06/04/10 02:15 AM
Re: After 8 months mtx doesn't seem to be working
[Re: Lon]
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Royal_AS_kicker
Registered: 01/31/09
Posts: 3780
Loc: NE Oklahoma
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Okay...maybe I misunderstood you. Probably shouldn't try to comprehend stuff after midnight. Glad your cymbalta works for you.
I liked the effect it had on the chronic pain, but it only worked for 2-3 months, then it quit. Now I'm on gabapentin and it seems to be working....well, maybe it's the higher dose of MTX, or the warmer weather, or the Vitamin D, or the phase of the moon or the extra M&Ms each night at dinner. Hugs to you.
_________________________
DX: psoriatic arthritis, osteoporosis, DDD, psoriasis Meds: MTX since Oct 2009, 15mg/week--Started Humira March 2013 Epidural steroid injections x4; Lumbar radiofreq ablation SIJ steroid injection and bilateral radiofreq ablation x4
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#396830 - 06/04/10 01:39 PM
Re: After 8 months mtx doesn't seem to be working
[Re: WendyR]
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Addicted_to_AS_Kickin
Registered: 09/11/01
Posts: 7348
Loc: Gillette, Wyoming
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Wendy, I join Rumble is saying, I hope this passes. But as we have seen, you know your body and it may be itme to question??? Sometimes I can walk 4 miles, then again I can hardly make it out the office door tot he truck.. So pace yourself, please. My legs get so stiff and heavy, it is like they are nto part of me. I can't temember when I felt good walking. After my hunting trips last winter I guess. Wendy, all of us express agape' to us because you are such a good friend. We will take you any way, but I am sure your hubby is still very much attracted to you when he sees you!!!
I have missed your posts. We all need a break. I hope to get some sun this afternoon, cone on over - tea time.
_________________________
Orandum est ut sit mens sana in corpore sano .... a prayer for a sound mind in a sound body
respice finem
Lon
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#396831 - 06/04/10 01:40 PM
Re: After 8 months mtx doesn't seem to be working
[Re: rumble]
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Addicted_to_AS_Kickin
Registered: 09/11/01
Posts: 7348
Loc: Gillette, Wyoming
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rumble, I use the clippers around my ears after 6 weeks, wait two and then go to the barber. Lin thinks I am crazy. but I do love to go to the mountains and this way I can save up a bit..
_________________________
Orandum est ut sit mens sana in corpore sano .... a prayer for a sound mind in a sound body
respice finem
Lon
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#396839 - 06/04/10 01:52 PM
Re: After 8 months mtx doesn't seem to be working
[Re: WendyR]
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Fifth_Degree_AS_Kicker
Registered: 11/21/09
Posts: 375
Loc: Ireland
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Plus, I think this high dose of mtx is making my hair fall out - it's getting very thin. So the pred is making me gain weight and the mtx is making my hair fall out - not a pretty picture.On the positive side, I'm able to walk daily again - probably close to 2 km per day - so I've stopped using my disabled tag, which feels good. My hair started to thin and fall out last summer - I would have been about 6 months on mtx at that point -I stopped taking it in April this year, and my hair has immediately started to thicken up again. I also put on weight and the two combined can be very depressing, I know. Good to see that you are holding on to the positives. Hugs
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