Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Amyloidosis

I also like the hair cut..I couldn't do short hair you have to have the cute face/bone structure for that. love it.
NOw, back on topic! I get so angry with how long you have to wait to be helped! What do doctors think that you can sit around in pain in the meantime? I just don't understand 6 weeks here, neuro is 4-5 months? C'mon, if you have problems in between what do you do!
I want to hit the lotto so that i can have one of those concierge doctors at my beckon call to run tests, prescriptions, etc.. We have a guest room here, nonetheless.
Megan, I want this figured out for you, and it makes me mad the wait time!!!

AS and waiting seem to go together Im afraid. Doctors are not in pain so why should they rush . Makes you really angrrrrrrrrrrrrry and WANT TO SHOUT but that dont do no good just makes you flare and feel worse. Im afraid you just have to hang in there.
Kevin

I know Kev, it just makes me mad for anyone that has so long to wait between appointments. Megan, I hope you get to the bottom of this.

I wish I was alone on this waiting thing, but I think it's sort of par for the course. Argh.
Thanks for the hair compliment!

Hi Sweetheart!

We drove 10 hours yesterday to Lufkin Texas for Bill's new job. Me and the kids will be driving by ourselves back to Oklahoma tomorrow so Im very nervous!

I will have lots of time on my hands if you want to talk..lol

Just want you to know that you are never far from my thoughts and always in my prayers you know that.

Do you have any idea when we might find something else out?
Next week it will be back to semi-normal Bill will be working again after a 4 week vacation. I can't tell you what it has done for me to have him home with me and the kids but living without a paycheck...well ya know..lol

Me and the kids will be sad next week but hey that is life.

Mucho big loves and hugs from me and the family.

Bill and Tori wanted me to tell you that many prayers are being said for you right now.

Lisa

Thanks Lisa, tell them I said hello and that their thoughts are very much appreciated right now.

10 hours!??!?! oh my.... that's insane. You're doing that all in one day? Your poor SI joints and jaw (I know you have jaw troubles, and for me, driving just makes it so much more so I can only imagine)! Sure hope the remicade is helping out with this. Prayers to YOU, girl!

Thanks for the hugs, I'm returning them right now (((hugs))) and a MWAH kisses to all you guys.

Hi Sweetie,

Just sent you a PM.

Yes as much pain as I am in it can't compare to what you are going thru and Im just so sorry for that. sweet, precious girls like you shouldn't have to go thru anything like this.

just got off the phone with my Dad (best Daddy in the whole world) and he was like if you cant make it you and the kids get a room and I will pay for the extra day rental (we wented a van woohoo for my bum legs) and the hotel.

I think we will be ok as long as my GPS works..lol darn Bill and his love of new fangled gadgets..lol

The kids are hollering they are hungry so I better go before they leave me..lol

I WILL check on you and catch up with you tonight!

Hugs and Loves,

Lisa