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#312618 - 02/17/09 07:21 PM
Re: Oral Biologic Update!!
[Re: swim2lakes]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6213
Loc: Louisiana
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Hi Swim2...the nausea is improving but I have to make sure and eat a little something before taking it...  I promise that as soon as I get my lab results I'll post them, I'm really looking forward to that! 
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Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#312619 - 02/17/09 07:27 PM
Re: Oral Biologic Update!!
[Re: Lon]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6213
Loc: Louisiana
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Oh Lon, I know it must be hard to be so far away from your family, I can't imagine, I'm very fortunate in that regard...that's why I can't leave, even after all the devestation that Mother Nature has thrown our way, unless everyone goes with me, I'm not going!  I do admire you for all that you and Lin have had to give up in order to serve others, you're wonderful! 
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Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#312620 - 02/20/09 08:36 PM
Re: Oral Biologic Update!!
[Re: Michelle70605]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6213
Loc: Louisiana
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Well...a small bump in the road....it's been a week and a half since my dose was increased and I've been so sick the last week that I lost 8 pounds, I can barely keep anything on my stomach...clear liquids only and I was so sick Wednesday morning that I considered going to the ER, I can't believe that I'm about to say this but.....I hope it's the flu... 
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Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#312621 - 02/20/09 10:23 PM
Re: I've Started A New Oral Biologic!!
[Re: Michelle70605]
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Addicted_to_AS_Kickin
Registered: 11/13/02
Posts: 5843
Loc: USA
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I am glad you are having "some" good results. I wish your pain was better. I have been thinking of you. My husband was put on Methotrexate a couple of years ago and it did nothing for him except clear up his eczema. It hasn't come back at all and he has been off of the MTX for 18 months at least. I hope it really kicks in for you soon. Blessings. Possi 
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 "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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#312624 - 02/21/09 06:44 AM
Re: I've Started A New Oral Biologic!!
[Re: Possi]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6213
Loc: Louisiana
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Thanks Possi...how are you feeling? I hope things are looking up.... 
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Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#312625 - 02/21/09 06:47 AM
Re: Oral Biologic Update!!
[Re: Sue22]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6213
Loc: Louisiana
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I really hope that I can keep this dose down, the higher dose is to see if the drug is effective against inflammatory diseases, it would be to all of our benefit if it works.... 
_________________________
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#312626 - 02/21/09 06:56 AM
Re: Oral Biologic Update!!
[Re: mig]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6213
Loc: Louisiana
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Oh Mig, I hope that my body adjusts pretty soon....but again, I'm not certain that the medicine is causing this problem, I don't want to give it a bad rap, it could be a virus.....the dogs are great, I've been having a blast watching them do the "spring is coming dance"....my Azaleas are in bloom and it's been spring-like the last couple of weeks, that always makes them silly....  Oh, this nausea and I'm supposed to be riding in the Krewe of Merchants Parade tomorrow, I hope I can make it, I may have to carry my bucket onto the float with me....  The girls attended the Mardi Gras Ball of a young new krewe last weekend....Erica & Adam presented the Duke & Duchess on stage at the ball, they're thinking about joining up, they'll be with the Krewe of Chaos... 
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Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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#312627 - 03/04/09 07:41 AM
Oral Biologic Update!!
[Re: Michelle70605]
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Addicted_to_AS_Kickin
Registered: 11/14/07
Posts: 6213
Loc: Louisiana
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Week 20 Update!  I woke up yesterday with no back pain!! Woo-Hoo!!  I stayed that way until late afternoon, I'm serious, no pain!!!  I got so much done, it was great!!  I have no idea why I had no pain, but I'm not complaining!!  The nausea has completely subsided and I really DON'T think that it was related to the Apremilast and if it was, it only lasted a week...no biggie...this phase of the clinical trial ends in 4 weeks, I've been invited into the next phase, which is long-term and I've decided that I'm going to do it....
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Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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