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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
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Thanks for keeping us updated. I hope you keep getting better, and can get off the prednisone.

Good Luck


Steve Orchard, Running from AS & MS
Megan #302521 07/15/08 07:30 PM
Joined: Apr 2002
Posts: 3,607
Megan Offline OP
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Not sure if I should really be posting an update - the past weekend was pretty stressful, and now I'm sure stress plays a part in my flares, because I feel awful. I managed to get through the wedding, and got some decent pictures, but being on my feet all the time, not sleeping at all (very hard hotel bed), and taking more meds than I thought my liver could handle, kind of adds up.
I also seem to have picked up a virus, and coughing doesn't exactly help out my rib/chest pain.
So, it's tough to tell where I stand. Give me a couple more weeks....

Joined: Mar 2002
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Hi Megan,

Best wishes and prayers on improvement in the coming weeks!

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Jun 2006
Posts: 1,873
Lieutenant_AS_Kicker
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Lieutenant_AS_Kicker
Joined: Jun 2006
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Hey girl;

Wow the boob tumor thing is a very cool bonus! (I fight them myself . . . I feel your boob-pain.)

How are you doing on the painkiller issue? Wish I could email you some drugs, but alas, I'm rather short on them myself and Alberta is SUCH a long way away . . .

Keep us posted, okay? *hugs*
Bridge and Lentil




"Laughter is the shortest distance between two people." -Victor Borge
Joined: Apr 2002
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Megan Offline OP
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Alas, no doctor, so no suitable pain meds for me. Still have some leftover T3s and prednisone that I'm working on from last year.

Thanks Tim, Bridge (Lentil too!) for your replies. I might not post too often, but I do drop in to read. Much appreciated!

Megan #302525 08/08/08 06:09 PM
Joined: Apr 2002
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Megan Offline OP
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well. hmm.
I guess I'm coming up on 7 weeks since I left the mine. Not feeling any better than before the radon experience.

I was really hoping this would be a great alternative, but I guess it doesn't work for all of us? Or perhaps I'm just a delayed responder? Who knows.

I've lost coverage for Enbrel, even though Alberta just agreed to cover enbrel and humira for AS. It's a long story, but apparently everyone in Alberta is allowed enbrel, but me. Nice. And my rheumy just blew me off for my regular appointment, so I'm really, REALLY up the creek. The only thing that seems to help me is loads of prednisone, so until I find an alternative to it, I guess my bone density will be taking a beating. Anyway, if I take enough prednisone and t3s, I can still manage to walk a bit and take care of myself, so I suppose I should be counting my blessings. It's getting hard to stay positive though - everything seems to be an uphill battle lately.

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