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#508484 - 01/07/15 10:49 PM Re: No/Low Starch Diet Success Stories [Re: Dotyisle]
zark Offline
Colonel_AS_Kicker

Registered: 04/12/02
Posts: 2482
Loc: NSW, Oz
>> From day one I 've been trying a diet low in starch but I would like to know
>> how resolveis your foot problems and if the diet helps you

In my case the most important thing is to avoid mixtures of sugar and fat (eg. hot chocolate, caramel, etc) as these caused inflammation in my hands, feet and eyes. The reaction is worst when the food is hot, so hot chocolate or any hot sweet milky drink was the worst.

All the best
z
_________________________
what I can eat on the diet (click here) -- my blog -- contact me (PM is broken)
"Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)

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#508485 - 01/08/15 04:17 AM Re: No/Low Starch Diet Success Stories [Re: zark]
jou Offline
Active_Member

Registered: 01/06/15
Posts: 54
thank you very much

The other day I ate sweets with sugar....in the night, the next day T was with more pain and inflamation in my foot. In February, I have my rheumatologist review and I have concern for the biological treatment and its side effects. I hope that diet help me a lot . Two days ago I asked Carol Sinclair 's book , I hope gradually learn from you and the book.

Many thanks to all the people who help with the effects of spondylitis

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#510771 - 05/06/15 02:00 AM Re: No/Low Starch Diet Success Stories [Re: sundar]
chetan Offline
Lurker

Registered: 05/04/15
Posts: 1
dear sundar can you please send me the details of food items taken as LSD in breakfast/lunch and dinner. Shall be greatful to you I am pure Vegeterian

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#513554 - 12/20/15 02:59 AM Re: SUCCESS [Re: Dotyisle]
ASkickerr Offline
New_Member

Registered: 12/18/15
Posts: 4
Hi all, just here to finally introduce myself, as I was lurking as a Guest for sometime now. I was diagnosed with AS a few months ago, however I've been experiencing back pain for almost a decade. I crashed my motorcycle ten years ago, and since then I've always thought my back pain was because I never fully recovered. The pain was mild at first for years, however it slowly worsen over a span of 8 years. I saw many physiotherapists, acupuncturists, massage therapists, naturopaths and chiropractors who only were able to offer temporary relief. Two years ago "flash" flu hit me out of nowhere for one day. My lymph nodes were very swollen and I had several other unknown bumps on my forehead. The symptoms went away quickly and my doctors could not tell me what happen but I now have high a suspicion that it was a klebsiella infection. My back pain progressively worsen from a 3 or 4 to 6 and 7. I live a very active lifestyle. I'm a sports junkie, especially hockey and jiu jitsu. The pain was to the point where I had to take months off from jiu jitsu. My xrays indicated early signs of degenerative disc disease and narrowing. I was worried, confused and stressed because nobody can confidently explain why this was happening to my body. Finally I was referred to see a rheumatologist, who diagnosed me with AS. I was glad to finally have answers and some understanding of my body. Doctor told me I would have to probably take medicine and routinely stretch and manage my pain for the rest of my life. And I was fine with that. I then found my way here! I read about Professor Ebringer's research and how he successfully treated his patients with a No Starch Diet. I went out for Iodine and tested many foods at home. Cutting my starch intake by dropping obvious starchy foods like pasta, rice, potatoes, basically wheat and grain was not an issue. I'm pretty simple and disciplined. I can eat steamed broccoli and roasted chicken for weeks, then switch it to steak, then back. Swap in carrots and beets, then possibly cauliflower. lol. I'm low maintenance! I was a little sadden tired that I can never eat Pho(Vietnamese noodles) again. I am a person of Vietnamese descent after all. But that was easily worked out by substituting the noodles with a whole bunch of bean sprouts and meat. laugh Anyway, I've been on a little to zero starch diet for almost a month now and I feel incredible. I'm physically improving everyday and I'm high in spirits everyday. I'm thankful for finding my way here and I'm grateful for this forum and all of its members.
_________________________
"You miss 100 percent of the shots you don't take"

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#513578 - 12/23/15 01:42 PM Re: SUCCESS [Re: ASkickerr]
mooman Offline
Second_Degree_AS_Kicker

Registered: 03/13/09
Posts: 206
Excellent stuff, for noodle or pasta alternative if you miss it and since your taking broccoli you can try courgettes and a spiralizer to make a decent dish

http://www.telegraph.co.uk/food-and-drink/equipment/the-best-spiralizers-tried-and-tested/

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#513740 - 01/19/16 05:00 AM Re: SUCCESS [Re: Dotyisle]
keit_nufc1 Offline
Second_Degree_AS_Kicker

Registered: 12/12/09
Posts: 221
Loc: Australia
Hi guys

Sorry for not posting. That is the problem with NSD success...after a while you take it for granted.

Brief summary...

I started Low Starch Diet 6 years ago. After a few weeks I saw little improvement so I began the full NSD. I had good success but my SI joints and sporadic iritis suggested it wasn't working 100%.

My next biggest breakthrough came when I gave up beer! It was a blow but it quickened my progress.

After 1-2 years I had spotted success e.g. intermittent flares but lessening in intensity. My SI joints were still troublesome so I adopted Paleo Auto-Immune Protocol. It was super strict and very hard to follow but critical in my ultimate success.

6 years on I am pretty much totally recovered. I can now eat a LSD with chocolate, cider and nuts.

This is me being interviewed by a celebrity chef in Australia (Pete Evans).

There is no great secret to NSD success. It all comes down to persistence and patience.

In the words of my favourite rock band the ultra-socialist Redskins "keep on keepin' on it!"

https://www.youtube.com/watch?v=Q0o9zL8rYys

I have also posted this in the main forum.

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#513846 - 02/01/16 12:25 PM Re: SUCCESS [Re: keit_nufc1]
TreatMeGently Offline
New_Member

Registered: 12/08/15
Posts: 9
Loc: United Kingdom
Hi keit_nufc1

Echos my experience exactly - first I went just wheat and Corn free 23 years ago and supplemented with Magnesium, Manganese, Zinc and Selenium. But the thing I noticed the most was Beer or Guinness would cripple me for a week - sore hips, ribs, should blades. I later gave up Rye and now Oats too.

It was one of the reasons I didn't at first engage with the LSD and this website - as there were too many people saying beer was OK.

Then the more I learned from the internet about the disease and especially gluten too was that everyone gets intestinal permeability via gliadin (even non celiacs) - so Klebsiella or not, other stuff can flow in to challenge the immune system.

My system still allows me rice and potatoes if do not overdo it.
_________________________

I was a patient of Dr. John Mansfield in the 1980's looking at dietary triggers.

As well as diet changes, I take Mag2-1Cal, Manganese, Zinc, Selenium I am > 75% better most of the time

We need more understanding of gut bacteria and intestinal permeability - with gluten being part of the jigsaw.

http://www.ncbi.nlm.nih.gov/pubmed/22313950

https://www.youtube.com/watch?v=VvfTV57iPUY

I'm here to share - diet and recipes.

http://link.springer.com/article/10.1007%2FBF03011637

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#513847 - 02/01/16 12:37 PM Re: SUCCESS [Re: keit_nufc1]
TreatMeGently Offline
New_Member

Registered: 12/08/15
Posts: 9
Loc: United Kingdom
Hi Keith

Sorry another reply... but just saw you video. Fantastic!

I also use natural antibiotic - I found that pressed unsweetened pomegranate (a small shot from Pret a Manger) can settle my gut down and nip a flare before it starts.

Not Paleo - but have been recently using Banting recipes Crackers and Bread (made with Flax and Almond and seeds). I'm feeling great.
_________________________

I was a patient of Dr. John Mansfield in the 1980's looking at dietary triggers.

As well as diet changes, I take Mag2-1Cal, Manganese, Zinc, Selenium I am > 75% better most of the time

We need more understanding of gut bacteria and intestinal permeability - with gluten being part of the jigsaw.

http://www.ncbi.nlm.nih.gov/pubmed/22313950

https://www.youtube.com/watch?v=VvfTV57iPUY

I'm here to share - diet and recipes.

http://link.springer.com/article/10.1007%2FBF03011637

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#514162 - 03/01/16 07:47 PM Re: No/Low Starch Diet Success Stories [Re: Dotyisle]
Havsurf Offline
New_Member

Registered: 01/18/16
Posts: 5
Loc: California, USA
Hello All, I'm a new member and new to AS. I would like to share my story of my AS and NSD. It's a short in time story compare to most of the posts I have read.

When I first develop AS symptoms I though it was from a nagging injury I suffered from racing my dirt bike. So I was in denial for a couple of months. After dealing with the pain coming and going in my buttocks and left hip for couple of months I decided to make a visit to my primary physician. I explain what happen and he prescribed me Naproxen, Hydrocodone and X-rays of my hips and pelvis. The prescriptions drugs worked on relieving the pain but as soon as I felt better I would stop taking them and the pain would come back lot more intense. Then I would be back on them again. I knew that this was not right. My X-rays came back negative for any fractures but I still had a soft tissue knot on my left buttock. My physician was puzzled about my injury and so was I. I had have many injures and a few surgeries in my time doing sports but this was different. I was not healing over time. So My physician order MRI of my hips and lower back. Also ordered blood tests to see what was going on. This took a few weeks to get done but my pain was increasing and extending to my lower back. I never had back problems growing up so I was getting a little worried what is going on with my body. While waiting for the all the tests results to come in my physician suggested to see a chiropractor maybe I need my lower back adjusted. I never been to a chiropractor before I figure it can't get any worse. The pain was getting pretty intense at times. Well I was wrong. The chiropractor crack up and down my spine and the pain was so intense I could barely walk. My neck was so stiff I could not turn my head. The chiropractor told me to take my pain medication and it will feel a lot better in a couple of days. WRONG! I was so stiff and in so much pain the pain medication could barley take the edge off the pain. I was like this for a week. I had to sleep with a heating pad just to get some pain relief. Finally my blood test results came back and MRI diagnosis. The MRI images showed I had a fractured left sacrum. The blood test showed very high inflammation (CRP - 76.8 & ESR - 102). And i tested positive for HLA-B27 gene. At the time I did not know what this meant. My physician sent me to a rheumatologist. She reviewed all of my test data and did a physical exam on me then told me I had AS. I did not believe her on this first visit. I thought for sure my fracture sacrum was the issue. She prescribe prednisone and naproxen medication and told me I would be on medication the rest of my life. She gave me a brochure on AS and sent me on my way, then do a follow up appointment in a month. I was so depressed after that visit. I could not believe it what I had. I'm 56 years old this AS usually starts when you are a teenager so what the brochure said. I put my body through a lot stuff over the years but it always recovered. But this time it was different. I went home and told my wife. I told her I didn't believe the Rheumatologist. I wanted a second opinion on this AS. My wife started to research this AS and found and ordered this book Conquer AS in six weeks by Micah Cranman. It was a little pricey but worth a shot. This is where I learned about the no starch diet and KickAS website. I read the book in one night and decided to start the NSD the next day. My wife was all in with this NSD. She was trying to change my un-healthy diet for years. I thought this healthy food stuff was a just marketing ploy to charge more for food. I live in California and there are so many diet fads here it's just crazy.
I was 100% commented to the NSD. I bought a bottle of iodine and started to test everything I put into mouth. My wife ordered a few NSD cook books and we started on our NSD. I also gave up on dairy and beer, which was hard.
After a few weeks of this NSD I wasn't feeling much better but I was loosing weight at very fast rate. I lost about 20 pounds in two weeks. I would feel better for a day or two then I would stop taking my medication and the pain would come back. I went to see my rheumatologist and told her about this NSD and leaky gut theory and she basically brushed it off as there is no scientific research to back up the claim it works. So no support from my rheumatologist. I was about to quit this NSD, then I wrote Micah an email explaining I haven't seen any real change yet. He told me to give it more time since I'm older it may take longer, my gut has to heal. I also started to read more posts on this KickAS website and found new hope. Plus my wonderful wife kept encouraging me to stick with it. There were people suffering lot more than I and longer. I started to take supplements suggested on this website and Micah's book. A couple weeks later I started to notice a difference in my body. The pain was decreasing my mind wasn't feeling depressed all the time. I started to believe this NSD and supplement routine was working. I changed my attitude and lookout toward this. Instead of feeling I have to do this, to I want to do this. This positive change helped me in many ways. I started to reduce my medication when the pain was decreasing. In the time frame of two weeks I was completely off my medication and the pain was pretty non-existent once this NSD started to work.
I started to exercise to build back my strength that I lost from doing no physical activities. I started doing yoga with my wife.
As my strength started to build I was back doing the activities I like to to do, dirt bike riding, snowboarding, surfing and hiking but not at the level I was at before AS. Still a vast improvement from where I was just few weeks ago. I had follow up blood testing results back yesterday and my test results were awesome. I'm almost back to normal levels. I am a believer in this NSD. It was amazing how fast I was pain free when the NSD and supplements started to work on me. I'm one more testimony that the NSD works on some people. I have a total different outlook on life compared to 5 months ago when I was diagnosis with AS. I realize my story is quite long, hopefully it will help someone see the light at the end of the tunnel.

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#515035 - 05/27/16 08:45 AM Re: No/Low Starch Diet Success Stories [Re: Dotyisle]
grizzlysoft Offline
New_Member

Registered: 02/06/12
Posts: 4
The rheumatologist will never support you in going NSD. When I've explained her that it really works, and she sow that(she even put on my papers: "AS in remission"), she told me she can't recommend going NSD to her patients. She is a doctor and she is prescribing medicine in the way she learned from the school.
It is so crazy. So many people could benefit from NSD, but nobody is interested in it. It makes no money ...
So much pain could be spared.
I have a friend suffering from AS, and he prefers medicines instead of not eating potatoes and bread. Crazy world.

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