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Joined: Jul 2011
Posts: 128
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jul 2011
Posts: 128 |
I have blood tests on Monday including CRP. Is it worth eating starch now so I will be flaring by then? I know my CRP was normal last time I had it checked when I was as inflamed as hell, but I guess it would increase the chances of getting a result?
I am seeing a musculoskeletal specialist after that, with the suggestion I have fibro. Which I know I don't.
Symptomatic since 1996
Gluten free since 2008
Paleo since 2010
NSD since 2011
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Joined: Aug 2011
Posts: 265
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Aug 2011
Posts: 265 |
If you are going in to test for the HLA-B27, that will show up regardless of eating starch. To avoid being in pain, I would not eat starch. Keep in mind that if they are doing that test and you do not have the HLA-B27, you CAN still have AS.
I don't have any good advice for eating or not eating starch if they are doing other tests such as CRP. I have heard that sometimes CRP or ESR does not always correlate with painful inflammation. For example I read somewhere on this forum that you can still have a high CRP or ESR and not have pain at the time. Now don't quote me on that, but do a search on those two acronyms and you should find the correct quote on that issue.
I know when I got my first blood test, my ESR was on the pretty normal end but I was flaring. I don't think I ever got the CRP tested though.
Lauren S.
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
I'm one of those whose CRP remains level, even during bad flares. Are you wanting a high CRP to help get a defined diagnosis?
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: Jul 2011
Posts: 128
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jul 2011
Posts: 128 |
Yep it is CRP and ESR (and the other usuals like Rheumatoid and ANA etc). I know they are unreliable, and in fact had a neg CRP 4 years ago when I was still eating gluten and was inflamed as hell.
The situation is that the doctor is leaning towards a diagnosis of fibro, so if I did get a dodgy CRP or ESR that would help my cause (trying to get SI xray and HLA-B27).
I decided to do it. I know it'll probably come back neg anyway but at least I'll know I tried my best.
Last edited by Horsewoman; 01/11/12 05:54 PM.
Symptomatic since 1996
Gluten free since 2008
Paleo since 2010
NSD since 2011
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
Do what you feel is best. Best of luck on getting a good diagnosis!
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: Jul 2011
Posts: 128
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jul 2011
Posts: 128 |
Thanks  . I just need to know I did everything I could.
Symptomatic since 1996
Gluten free since 2008
Paleo since 2010
NSD since 2011
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