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Joined: Nov 2007
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Addicted_to_AS_Kickin
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I found the following article to be very interesting, not much that we didn't already know, but written well and I thought it may be of help to some...the website direct link is:
http://www.asresearch.co.uk/spondyloarthropathies.htm

A lot of people are told at different points in time new names for their condition. For example a person with ankylosing spondylitis may develop psoriasis. It is very difficult to define if this is ankylosing spondylitis with psoriasis or psoriatic spondylarthropathy . However, in terms of treatment it doesn't make a great deal of difference as treatment options remain the same. Many of the drugs and treatments are not specific to one condition but work on inflammation in general. This means they can be used no matter what the diagnosis.

The problem is that at presentation it can be very hard to define which member of the Spondyloarthropathy family a person has and often a person progress from one type of spondyloarthropathy to another type. For example a person may have undifferentiated spondyloarthropathy and develop ankylosing spondylitis. Therefore, the diagnosis can naturally change with time.

There is no chemical or antibody produced by people with spondyloarthropathy that can be measured and used as a diagnostic test. Instead the type of damage done to the bones and tissues of the body is used to distinguish one condition from another. However, looking at damage after it has happened means it can be many years before a full diagnosis can be made. A person who is ultimately going to get psoriatic spondyloarthropathy may go to their doctor with arthritis symptoms and be told they have undifferentiated spondyloarthropathy. The disease may then become worse and they develop symptoms that can be categorized as ankylosing spondylitis and then develop psoriasis which means their doctor will say it is psoriatic spondyloarthropathy. This has been the same disease all the time, but with 3 different names. A bit like a chain, there is overlap between the conditions and one can evolve into another. The diagnosis in the past was not wrong, but was how the disease looked at that point in time.
Of 51 Canadian war veterans with ankylosing spondylitis followed from 1947-1980 (ie 33 years) the disease progressed to severe spinal restriction in 21 (41% or 2 in 5) people. Those people who progressed to severe disease after 33 years had already got severe disease within the first 10 years of symptoms. Those who did not develop severe disease did not have severe X ray changes in the first 10 years. This means the severity of disease can be predicted in the early years.
A predictable pattern of disease emerges within the first 10 years of disease.


Undifferentiated spondyloarthropathy: This is the diagnosis given to a person who has symptoms that do not precisely fit into the other categories. So a person with knee swelling AND a family member affected with ankylosing spondylitis would fit into this category.

Last edited by Michelle70605; 11/28/10 12:12 AM.

Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
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Good summary, Michelle. Thanks for the link.


Wendy

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Methotrexate, Celebrex, Plaquenil
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Addicted_to_AS_Kickin
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Thank you ma'am...and you're more than welcome!! smile


Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Originally Posted By: Michelle70605

Undifferentiated spondyloarthropathy: This is the diagnosis given to a person who has symptoms that do not precisely fit into the other categories. So a person with knee swelling AND a family member affected with ankylosing spondylitis would fit into this category.


Makes sense. My rheumy said I'm USpA because I'm not in the process of active ankylosis in my joints, but I do have stiffening of the joints & chronic pain combined with HLAB27 & JRA as a kid.

Here's the approximate definition he gave to me.

Thanks for the post. smile


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Oct 2010
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Thank you so much for the link and the info, it definately helps a newbie like me understand it all a whole lot better smile

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Thanks for this Michelle its a very interesting read and very helpful.

Kevin

Joined: Nov 2007
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Addicted_to_AS_Kickin
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Hi Erica...no problem, really, I'm so glad it helped... smile I'm sorry that you have the stiffness and pain, I know that goes along with it but I'm not sure that HLA-B27+ patients are included in the undiff spondy group...I'm going to check that out, it would seem to me that being HLA-B27+ and having symptoms would put you in a different category altogether...

Last edited by Michelle70605; 11/28/10 03:21 PM.

Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Hi TARNIP...I saw a lot of questions regarding the different DXs, so I thought this may help clear some thinghs up, I'm so glad it helped!! hugss heart


Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Posts: 6,269
Thanks kev!!!... grin


Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
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Posts: 6,269
I just found this...

Patients with USpA generally have a good prognosis, but over time, some may develop AS or related disease depending on the individual. Some experts believe that those who test positive for the HLA-B27 genetic marker are more likely to develop full-blown AS after initially being diagnosed with undifferentiated spondyloarthopathy.

I found that here, on the first page:

http://www.spondylitis.org/about/undif.aspx

Last edited by Michelle70605; 11/28/10 03:45 PM.

Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
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