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#1 AS Web Support Group
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Re: Help
by CentralGAGal
@ 1 minute 33 seconds ago
I say this lightly because I'm in no way qualified to perform a Fibro DX BUT, I recently read that Fibro has become a "catch all" diagnosis when an unknown diagnosis is given. That clearly left me scratching my head but recent readings s
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I have not cut out starches completely. I have made drastic changes in my diet in the last 3-4 months. I have a hard time eliminating starches so I have turned to healthy sources of starch like quinoa, oats, lentils and black beans (all organic if po
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I am 34 and really trying to avoid medication. I was on Zoloft for about 6 months and had side effects that I wasn't willing to live with. Then I took Sulindac (NSAID) and it was making me cough all of the time. Ideally I am trying to control everyth
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#1 AS Web Support Group
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Re: Help
by Andyhill1991
@ Today at 04:16 AM
Hi Simon909, Although it is possible that your pain is caused by AS, it is also possible that it is caused by fibro. They can also occur together (around 25% of AS patients have fibro according to textbooks). It would be foolish to jump to a diagnos
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Hi, When you say changing your diet, have you cut out starches? If so then you will experience fatigue while your body adapts to burning fat. It could also be that you aren't eating enough calories if you are mainly eating salads/veg etc. Can you t
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#1 AS Web Support Group
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Wow! Thankyou so so much John,for taking the time to explain a bit more to me. That definitely gave me more clarity. Years ago, at the beginning of my AS diagnosis, I had all the morning stiffness, I actually rolled out of bed many times much to my
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#1 AS Web Support Group
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Aww, poor girl. When it rains...... Hugs, gentle ones. And only when you are sitting down. I'll bend down to hug you. Don't get up.
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NSD and diet-related;
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Thank you so much, Kristine. My husband flared this morning from black pepper (or something weird in the bacon, who knows) and I felt so bad. So as he's recovering tonight he wanted something sweet, and the safest thing I had was these dark bitter s
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NSD and diet-related;
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Soy lethicin in itself is not starchy (it's used as an emulsifier = stabilizer). It can however surely cause 'reactions' in food sensitive people. I think it affects me > chocolate without soy lethicin has me 'reacting' a bit less; but then sugar
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NSD and diet-related;
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Thanks for the feedback John. And yes, it definitely makes sense to go easy on the fruit initially. I'll buy my first batch of blueberries at the farmer's market tomorrow. Looking forward to it!
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NSD and diet-related;
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Pretty cool story. Thanks for sharing. In addition to addressing your "classic" spondy symptoms, what other symptoms did this protocol address? I suspect that a number of other issues were addressed as well, no?
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#1 AS Web Support Group
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Re: Help
by aussiegirl
@ Yesterday at 09:01 PM
Sorry I repeated a lot of what others said. I started my response before I saw any of the others it just took me so long to type with my broken hand. Please ignore my spelling it was taking too long to try to corrct my typing.
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#1 AS Web Support Group
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Re: Help
by aussiegirl
@ Yesterday at 08:59 PM
Welcome simon909 sorry you have had to join us. I don't have a lot of experience with fibro so I am not sure how much of the symptoms cross over with AS but I do know there are a lot here at KA that have a fibro dx as well as AS. I am sure they will
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#1 AS Web Support Group
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Re: Help
by Pezami
@ Yesterday at 08:50 PM
I agree with Shirley. If you have radiographic proof of sacroiliac joints being fused, then there is the gold standard for AS. people with and without the HBL A27 can have AS and people with and without the HBL A27 can be without AS. Doctors tend
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NSD and diet-related;
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For dairy tolerant folk, that is. Ben n Jerry's? Haagen dazs?
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NSD and diet-related;
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My husband is dying for something sweet, which I haven't tried yet. I found dark chocolate chips I could do something with, but it has soy lecithin in it and I'm scared to trigger yet another flare.
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#1 AS Web Support Group
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Welcome back, Fairy Sue! Ebringer, in his 2000 lecture series in San Antonio, has proposed criteria for "Pre-AS:" (5) Early "ankylosing spondylitis". It has been suggested by Agarwal from Pittsburgh, that "pre-ankylosing s
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For me, it's about doing some exercise but also making sure I get some rest to avoid getting totally exhausted. There's a point where I just have to give in to the fatigue or it will get worse and last for ages. What helped me most with the fatigue
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#1 AS Web Support Group
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Re: Help
by Shirley
@ Yesterday at 08:32 PM
Hi, have you had recent xrays of your sacroiliac joints and lower back? If you've had lower back pain for years, you might be like me and have fused sacroiliac joints, which should help with the AS diagnosis.
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#1 AS Web Support Group
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Re: Help
by DragonSlayer
@ Yesterday at 08:21 PM
WELCOME, simon909: Quote:I tested positive for HBLA27, but three rheumatologists contend I have fibromyalgia. Am I crazy to think the fibro is secondary to AS? You found THREE incompetent rheumatologists! You have AS which is primary, and I since
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#1 AS Web Support Group
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Thank you all very much. This is a real challenge I can tell you. The little bit of independence I was getting back has now gone again. And of course I had to break my right hand and I am right handed. Thanks for the hugs Molly and Possi. Right back
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#1 AS Web Support Group
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:o) I know you would. I know it is in your mind. Honestly, I let myself go to the islands in my mind too. I just have avoided the sun all of my life and it even interferes with my dreams. :o)
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I was recently diagnosed with AS although I feel like I have been experiencing the symptoms of it (to differing degrees) for years. I have discovered the power of changing my diet and adding in supplements like magnesium and fish oil. I feel like I h
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#1 AS Web Support Group
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Help
by simon909
@ Yesterday at 06:10 PM
I am new to the site and seek advice. I am a 57 year old female. I have had low back problems since late 20's. Been diagnosed with IBS, had hemicolectomy, have chronic costocondritis, bursitis, TMJ and tendonitis. Had Iritis once at age 29. I a
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#1 AS Web Support Group
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oh my gosh, Aussie! I can't imagine how you must be managing with this new injury on top of your knee. Either is enough to set most people back. Take care, I hope you mend soon.
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