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Active Topics | Active Posts | Unanswered Posts Past 24 hours | Past 48 hours | Past 7 days
Forum   Subject
NSD and diet-related;
Jump to new posts Re: DragonSlayer's Antibiotic protocol - who has tried by Exacta @ 48 minutes 14 seconds ago

Completed by last dosage of cipro yesterday. The cipro cycle was a bit of a ride. During the first 48-72 hours I had some feelings of weakness and lethargy. After this point, I began to have some distinct AS flare activity, which continued until th
#1 AS Web Support Group
Jump to new posts Re: Psoriatic Arthritis by jay_bharat @ Yesterday at 10:44 PM

Hi Sue, Sorry to note the issues. I am not clear from your post whether you are ruling out AS in place of psoriatic artritis. I was told that I am not having AS after 10 years of biologics. A shocking news considering the physical and ment
#1 AS Web Support Group
Jump to new posts Re: NSAIDs and fertility by Winter @ Yesterday at 07:43 PM

Hi Ag- I was on Enbrel during my pregnancy. My AS flared in sacroiliac joints during pregnancy so that is why I had to stay on Enbrel. The doctors told me I could feel a lot better during pregnancy or a lot worse so we trialed no medication at first
#1 AS Web Support Group
Jump to new posts Re: Psoriatic Arthritis by Winter @ Yesterday at 07:34 PM

Hi Sue- I doubt your rheumatologist will change your AS diagnosis. He may be adding the psoriasis diagnosis to open more doors to medications for you. My rheumatologist told me it is very common to have more than one autoimmune disease. You can take
Alternatives
Jump to new posts Re: Short Term High Dose Prednisone by Frederick @ Yesterday at 04:54 AM

I was on Prednisone but many years ago. I don't remember the dosage but the original low dose did nothing so they increased it to a higher dose but only as a short term thing about six weeks I think. I was then returned to the original low dose. It w
NSD and diet-related;
Jump to new posts Re: Beginner questions by L33 @ 02/19/18 02:20 PM

Hi, Yes diet should make a difference. If you do Have an Autoimmune condition you can try No starch diet, Low starch diet or the Paddison program see in the diet forum. @Robin_H yes chocolate for me causes extreme pain I also think it is the sugar.
Helpful Tips
Jump to new posts Re: Monitor CRP at home by L33 @ 02/19/18 01:57 PM

Hi Robin_H Sorry for the late reply. I am not currently on NSD but some good fat sources I would use are, avocardo, olives, coconut milk those are just some i can think off at the moment. I am planning to try an antibiotic to treat my AS. You can
Alternatives
Jump to new posts Re: Short Term High Dose Prednisone by L33 @ 02/19/18 01:33 PM

Hi All I have tried Prednisone for a while now and it does help but a word of caution to all who use it since when I stopped suddenly without tapering off, I broke out in Acne throughout my body and had lots of akes and pains in places where I never
#1 AS Web Support Group
Jump to new posts Re: Symptoms of AS but no Diagnosis by Robin_H @ 02/16/18 07:20 PM

Hi Auggie: I actually did mean do yoga every hour. I knew that would catch people's eye. I do about eight minutes of yoga every hour when at home for a whole day otherwise I would go insane from the discomfort in my body. When I am out for the da
Surgery
Jump to new posts Re: recent surgery problems by AnitaC @ 02/16/18 01:47 PM

Hi, I need advice. I had surgery January 3rd. It was laminectomy & dicectomy (sp?). My recovery went well at first. By the close of the month my incision site began to swell. Not hot, not seeming to be infected. I was going in for a follow up
#1 AS Web Support Group
Jump to new posts Re: Symptoms of AS but no Diagnosis by Auggie @ 02/16/18 09:56 AM

Hi Robin_H, Taking all your suggestions into consideration. I have been purchasing the bulk of my meats organic from local supermarket, but am looking into local producer to see if bit more affordable, and I will abstain from eating canned fish. The
#1 AS Web Support Group
Jump to new posts Re: Psoriatic Arthritis by Robin_H @ 02/16/18 09:54 AM

Giving doctors the "big picture": most don't want to hear to avoid burnout -- "compassion fatigue" When I try to tell a GI doctor about the inflammation in the sacrum and the rest of the spine and skull she says to tell a rheumat
#1 AS Web Support Group
Jump to new posts Psoriatic Arthritis by Sue22 @ 02/16/18 07:46 AM

Can you have psoriatic arthritis if your mildest symptom has been the psoriasis and your worst symptoms have been the joint problems and the GI problems? This is the question I will be asking my rheumy next visit. He landed on this dx after our last
Anti TNF and other biological medications
Jump to new posts Re: How to get Anti TNF medication by Sue22 @ 02/16/18 07:23 AM

For me, finding a rheumatologist who could and would diagnose and treat me was the challenge...that took 12 years and several rheumies. Once I found one, then it was easy. He said I had to have failed at least 2 or 3 nsaids...I failed 10+.... He's
Sporting ASKickers
Jump to new posts Re: Posting Slacker Alert - SORRY!!! by Sue22 @ 02/16/18 07:13 AM

still walking.... good to see you here too <3
#1 AS Web Support Group
Jump to new posts Eye Pain, but not inflammatory uveitis by Sue22 @ 02/16/18 07:12 AM

Hello all, Every so often I get this really bad eye pain. Its not uveitis / iritis / inflammation; my ophthalmologist said he'd be able to see remnants of damage if I had that. And I do get dry eye (from the inflammatory process), but that feels
NSD and diet-related;
Jump to new posts Re: Beginner questions by Robin_H @ 02/16/18 07:05 AM

CHOCOLATE: If a person has their symptoms driven by Leaky Gut, or has SIBO, or some pathogen then chocolate would be a problem because of the sugar. I ate lots today and feel horrible. I had one last Magnum ice cream bar too and am feeling even wor
#1 AS Web Support Group
vitamin C: 500-1000 mg daily, Ester C vitamin D: 10,000 IU daily, vitamin shoppe brand (and yes, that much, not a typo to keep my levels where they should be) LDN: low dose naltrexone...my rheumy prescribes both LDN and humira...as they affect the
#1 AS Web Support Group
Jump to new posts Re: Confused - which drug to take by Sue22 @ 02/16/18 06:58 AM

I've been on Humira for my spondy since june 2013 and have only had good results. The shot hurts, but that's it. It isn't perfect, sometimes my flares are stronger than the Humira, and then I take some Aleve (but that quickly causes gastritis and e
NSD and diet-related;
Jump to new posts Re: Fringe foods by Robin_H @ 02/16/18 06:57 AM

Hello Josh: Pretty much every iffy food you just listed can hold you back for many reasons. I'm more strict than you and am suffering. My major obstacles are coffee, chocolate and nuts. We should eliminate them for at least a month and see what
#1 AS Web Support Group
Jump to new posts Re: Symptoms of AS but no Diagnosis by Robin_H @ 02/15/18 09:17 PM

For some of us I think this is best: A low allergen, zero starch diet (replace calories with fat: olive oil, bacon, coconut butter/oil, avocado, ghee/butter).Only organic fresh fish, chicken, lamb, and occasional beef (canned fish can be rotting i
#1 AS Web Support Group
Jump to new posts Re: Symptoms of AS but no Diagnosis by Auggie @ 02/15/18 02:30 PM

Hi all, sorry for falling off the grid, my household has had the flu and we are just coming around. AlpineAg, hope the radon tx helps and would appreciate it if you have time to post an update when and if you notice any improvement, as I am curious.
NSD and diet-related;
Jump to new posts Re: Fringe foods by annelore @ 02/14/18 12:21 PM

Sometimes is not enough with NSD or LSD. I had to check with FODMAP diet created especially for IBS suffers
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Recent Posts
Re: recent surgery problems
by AnitaC
02/16/18 01:47 PM
Psoriatic Arthritis
by Sue22
02/16/18 07:46 AM
Eye Pain, but not inflammatory uveitis
by Sue22
02/16/18 07:12 AM
Fringe foods
by Josh300788
02/14/18 05:42 AM
Diet success stories see a halt in progression?
by kimberlyjo
02/13/18 01:25 PM
Beginner questions
by PauloFreitas
02/12/18 11:28 AM
How to get Anti TNF medication
by GemStar
02/09/18 03:11 PM
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