AS Recently-Miserable - 03/10/15 04:12 PM
Hello Everyone,
There are a lot of things I want to discuss here, I dunno where to start...I want to discuss the diet, and I have a lot of questions to ask.
I will start off with a bit about myself, so when I was 21 yo I started getting major pain in the nerve at the left buttock areas...it was so painful that I couldnt switch sides in bed when sleeping, and this pain would switch sides, but mostly left side...then a year after Uveitis, fast forward few years after (btw during those years I kept having the same pain and it would go on and off) andyways, when I was 26, I started getting lower back pain when am sleeping. I reached a point I couldnt sleep well...went to the doctor, and they did mri for hip and SI, showed nothing, and he said its all in my head.
I excepted the pain, and lived with it, and thought maybe its because of the drive i used to do (every weekend I'd drive 5 hrs one way straight and back 5hrs same thing)
5 months ago, pain reached a point where I couldn't take it anymore, went to the doctor, did xray and blood tests...doctor asked me to do HLA B27, and tested positive. A week after I had the worst neck pain in my life, my upper body was all pain. I couldn't cough, sneeze or do anything. Doctor referred me to a specialist, specialist spent 2mins and said you have AS, and put me on light NSD...I chose not to take any drugs...I looked into the diet thanks to kickas
I started a strict diet immediately, and felt relief within days, still had pain, but at that point I thought maybe diet is the answer..
right now, I don't eat any of the following: rice, bread, potatoes, onions, garlic or any dairy...even sometimes chocolate, and ice cream (dairy :-( )...I feel relieved most of the time, but when i try new things first I get pain in my leg joint in the left side, then goes to right side, then during sleep I have lower back pain...
I do get days with no pain, but am wondering about the stiffness because before the diet for 2 years every morning I had stiffness, now its no stiffness, but still some pain during sleep. Can someone discuss this? Does that mean the diet works? I'm asking because am still not 100% sure yet.
My other concern is weight loss, is that normal? Within 3months Ive lost 17 pounds. I was about 164 pounds before. When am on this diet, will the body reach a point where it stops losing and maybe gain? or will I always stay thin when am on this diet? Did anyone have this issue starting this diet?
My daily diet is as follows:
Breakfast
2 eggs with some meat and some mushrooms with tomatoes and orange juice
lunch
chicken with veggies and orange juice
dinner
chicken or fish or meat with mixed veggies and fruit salad after with orange juice
snacks
just dried fruit, such as dried figs, and raisins.
my diet does not include any nuts, and the mixed veggies dont include onions or garlic as am not sure of these yet, also still need to test dairy. I know I drank milk one day to try it and had some pain when I was sleeping.
I have tons of other questions too, am just in a state of shock and worried about my future. Anyways sorry for the long story.
There are a lot of things I want to discuss here, I dunno where to start...I want to discuss the diet, and I have a lot of questions to ask.
I will start off with a bit about myself, so when I was 21 yo I started getting major pain in the nerve at the left buttock areas...it was so painful that I couldnt switch sides in bed when sleeping, and this pain would switch sides, but mostly left side...then a year after Uveitis, fast forward few years after (btw during those years I kept having the same pain and it would go on and off) andyways, when I was 26, I started getting lower back pain when am sleeping. I reached a point I couldnt sleep well...went to the doctor, and they did mri for hip and SI, showed nothing, and he said its all in my head.
I excepted the pain, and lived with it, and thought maybe its because of the drive i used to do (every weekend I'd drive 5 hrs one way straight and back 5hrs same thing)
5 months ago, pain reached a point where I couldn't take it anymore, went to the doctor, did xray and blood tests...doctor asked me to do HLA B27, and tested positive. A week after I had the worst neck pain in my life, my upper body was all pain. I couldn't cough, sneeze or do anything. Doctor referred me to a specialist, specialist spent 2mins and said you have AS, and put me on light NSD...I chose not to take any drugs...I looked into the diet thanks to kickas
I started a strict diet immediately, and felt relief within days, still had pain, but at that point I thought maybe diet is the answer..
right now, I don't eat any of the following: rice, bread, potatoes, onions, garlic or any dairy...even sometimes chocolate, and ice cream (dairy :-( )...I feel relieved most of the time, but when i try new things first I get pain in my leg joint in the left side, then goes to right side, then during sleep I have lower back pain...
I do get days with no pain, but am wondering about the stiffness because before the diet for 2 years every morning I had stiffness, now its no stiffness, but still some pain during sleep. Can someone discuss this? Does that mean the diet works? I'm asking because am still not 100% sure yet.
My other concern is weight loss, is that normal? Within 3months Ive lost 17 pounds. I was about 164 pounds before. When am on this diet, will the body reach a point where it stops losing and maybe gain? or will I always stay thin when am on this diet? Did anyone have this issue starting this diet?
My daily diet is as follows:
Breakfast
2 eggs with some meat and some mushrooms with tomatoes and orange juice
lunch
chicken with veggies and orange juice
dinner
chicken or fish or meat with mixed veggies and fruit salad after with orange juice
snacks
just dried fruit, such as dried figs, and raisins.
my diet does not include any nuts, and the mixed veggies dont include onions or garlic as am not sure of these yet, also still need to test dairy. I know I drank milk one day to try it and had some pain when I was sleeping.
I have tons of other questions too, am just in a state of shock and worried about my future. Anyways sorry for the long story.